Crohn's metamorphosis...also posted in chrohn's forum

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yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 6/5/2009 1:38 PM (GMT -7)   
My body:    Once stong, active and attractive,
                   Now frail, weak, and unsightly
                   Once healthy and capable
                   Now diseased and immobile
 
My mind:     Once sharp, witty, and carefree
                   Now haunted with shadows of fear and uncertainty
                   Once inquisitive, confident, and open
                   Now cynical, unsure, and angry
 
   One might say I'm still the same person I used to be to comfort me that I'm still valuable, but they don't live inside this body. They don't experience 24 hours a day the aches and pains and nausea and weakness and fear of what the future holds for a deteriorating body wracked with Crohn's disease. They don't feel the side effects of powerful drugs that offer little help. This disease had a beginning so there must be an end.  

Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, B-12 injections and iron. Feeling much better!
God Bless. Tony


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 6/5/2009 3:19 PM (GMT -7)   

Dear Tony,

I validate your pain and the fears of living with Crohn's and how it can rob you of so much.

You see my hubby has had Crohn's for 33 years, 3 surgeries and has fought his way back every time.  We raised 4 children. I became a nurse so that I could work and also be able to care for him whenever he needed me.

He is in pain a lot but just keeps on going.  If I ask how are you or do you have any gut pain, he just looks at me and says, I always have pain somewhere.

He went through a radical prostatectomy last year for cancer.  His colonscopy last week, unable to pass the scope due to his stricture.

I understand the life you live.  I have watched my husband live this same life.  He is malnourished and must drink Ensure but he does it. 

He has always been a biker, a Harley Man,  he is my hero.

I hope you have someone in your life who supports you.  You have us now so know we care.

Hugs to you and Crohn's be darned.

Kitt



 

Kitt, Co-Moderator:
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THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 18746
   Posted 6/6/2009 8:08 AM (GMT -7)   
i wish i could take away your pain, i can't, but i send my love directly into your heart. a place of that is pure, strong and ever alive. luv always, jamie
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