Treatment update

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JD68
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Date Joined Aug 2008
Total Posts : 205
   Posted 11/12/2009 9:19 AM (GMT -7)   
Hi All-
 
Sorry I have been busy with driving DH to UW and back every other day.  So far the treatments are going well, although there is no improvement.  He did show some signs last night of some short term memory issues which I will monitor today and if I continue to notice I will have them test him tomorrow when we go back to UW for his 5th treatment.  Other than that he has had no headahces or other side effects what so ever.  Does seem to be sleeping less but still is very very depressed.  I know that it can take numerous treatments to see and effect so we will continue to hang in there......I will hope the the memory thing was just temporary and has improved over night.  If not that will be a concern.  I am sure they will assure us that this will resolve after all treatments are done.  I do hope you all are well and I will do my best to keep updating.......not sure how many we have left we should find out on Monday after his 6th.....likely 6 more i would think.
 
Hugs and Support to all.........Jenn

getting by
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   Posted 11/12/2009 9:39 AM (GMT -7)   
Hey Jenn,
 
Thanks for the update, I have been wondering how things were going.  I am sorry that he is losing some of his memory.  I understand that happens.  But hopefully the overall treatment will be a success. 
 
I am glad that you are able to be there for him.  And I hope that these next six treatments get over soon. 
 
Keep us posted on how everything is going and know that our thoughts and prayers are with you...
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


JD68
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Date Joined Aug 2008
Total Posts : 205
   Posted 11/12/2009 9:59 AM (GMT -7)   

Thanks for the prayers I appreciate them immensely!

-Jenn wink


THE HAPPY TURTLE
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Total Posts : 18774
   Posted 11/12/2009 9:02 PM (GMT -7)   
keep positive jenn. jamie. can take some time.
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.


JD68
Regular Member


Date Joined Aug 2008
Total Posts : 205
   Posted 11/13/2009 4:23 AM (GMT -7)   
Doing my best....Thanks Jamie! sad

getting by
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   Posted 11/13/2009 10:32 AM (GMT -7)   
Hey Jenn,

Just wanted to check in with you today. I have to go to work soon so this will be short.

Know that I am thinking about you and hope that all is well with you and your husband.

Keep us posted, as we all care.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


JD68
Regular Member


Date Joined Aug 2008
Total Posts : 205
   Posted 11/13/2009 1:10 PM (GMT -7)   
Hi Karen-
 
5th treatment was this morning.  He is not doing well at all.....the treatments are going great no side effects to speak of.......I thought maybe some memory loss but if that was the case it was very temporary.  He has his 6th on monday and they will have him take the depression "test" to see if there is any improvement......guessing not.  So then we will continue treatments.  They said today it can take up to 12 to notice and difference.....SIGH.  Don't we all want instant gratification :-)
 
I am hanging in there....goin to go out for dinner with his folks tonight and maybe hook up with some friends for a drink after.  I need to get out of the house.  It is going to concern him I am sure....he is very insecure that way but I can't be a prisoner all the time I need to enjoy life.
 
Thanks so much for the post.....I will continue to update with hopefully better news.
 
Hugs.....and have a great weekend!!  -Jenn

getting by
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   Posted 11/13/2009 9:50 PM (GMT -7)   
Thanks Jenn,

I am working this weekend as usual, but do get next weekend off. We are busy with deer hunters right now. It is crazy... But goes by really fast.

I am glad that you are getting out of the house. You need that. And you deserve it. Let us know how it goes.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


JD68
Regular Member


Date Joined Aug 2008
Total Posts : 205
   Posted 11/14/2009 3:50 PM (GMT -7)   

Working on the weekend....That's too bad. 

Did go out for a bit last night.....DH was not happy when I met up with some friends and insisted I have one a come home.  Dinner was nice though.  Of course got home and he promptly went to bed....so why did I come home?  SIGH.......oh well.

Got some cleaning done today.....still more to do but I will do that tomorrow.......Hope your work is quiet and you can enjoy some of the weekend!!

Hugs......Jenn


THE HAPPY TURTLE
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Date Joined Mar 2009
Total Posts : 18774
   Posted 11/14/2009 3:58 PM (GMT -7)   
keep well and positive. you are in my thoughts always. jamie
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.


getting by
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Date Joined Sep 2007
Total Posts : 40601
   Posted 11/14/2009 4:09 PM (GMT -7)   
Went into work for a few hours today to help out. It went by really fast because it was so busy. Lots of hunters up here. The woods will be orange tomorrow morning with them sitting there. I have to work tomorrow too, a longer shift. Hope it goes by fast.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


JD68
Regular Member


Date Joined Aug 2008
Total Posts : 205
   Posted 11/14/2009 6:05 PM (GMT -7)   

Thanks Jamie!!  Your thoughts are appreciated and I do hope all is well with you!  Hunting season .........means the holidays are right around the corner.  where does the time go.

Hoping for a quick day for you tomorrow Karen.....Hugs to you both......Jenn scool


getting by
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   Posted 11/14/2009 7:57 PM (GMT -7)   
Thanks Jenn,

Should be busy mid day and early afternoon. That is when they come out of the woods. lol...

Hope all is well for you.

Jamie,

Hope that you are doing good too.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


THE HAPPY TURTLE
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Date Joined Mar 2009
Total Posts : 18774
   Posted 11/15/2009 1:31 AM (GMT -7)   

karen-jenn, straight back at ya's. hunting season, sounds totally wild!!! be good. keep well and positive. jamie :-)


YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.


JD68
Regular Member


Date Joined Aug 2008
Total Posts : 205
   Posted 11/17/2009 8:02 AM (GMT -7)   

Well sixth treatment was yesterday......this was preceded by sunday night him just crying and telling me he felt worse than when he started.  He kept saying this is my last hope what if this doesn't work?  I told him it is very important that he let the physicians know how he is feeling.....I said I can be an advocate but they need to hear from him how he is really feeling.  He needs to help them help him by being honest on his emotions/moods etc.  He agreed and then proceeded to tell them yesterday that he felt fine when they asked how he was doing.

I immediately spoke up and told them about the previous nights events and his lack of leaving the house or talking for that matter.  They stated that it can take 12-13 treatments before he notices that he feels better.....SIGH.  6 down many to go I guess.  So I don't know....we go up tomorrow for another treatment and then see what the plan is I guess.  Likely I will be having a charlie brown thanksgiving this year.......Popcorn, toast and jelly beans:-)  No reason to cook the whole meal as DH doesn't eat much these days and what I do make he complains about.  He used to love my cooking confused    My boys are going with their dad for thanksgiving which is fine I want them to be somewhere happy for the holiday.  And our house is anything but.

So that is the most recent of events.......Another day to go. sad

 

Hugs to all......Jenn


getting by
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Date Joined Sep 2007
Total Posts : 40601
   Posted 11/17/2009 10:05 AM (GMT -7)   
Hi Jenn,
 
Maybe all this emotional feelings are normal for right now.  Maybe he is getting things out.  I am sure this is scarey for him, and I hope that he starts feeling better soon. 
 
I know that it is hard for you too.  But you are so wonderful to stick by him through all of this.  He is one lucky guy to have you there for him.  And you are one good woman to be there.  I am glad that you have each other. 
 
Who cares if you don't have a big dinner for Thanksgiving.  Just as long as you are together, that is what matters.  Faminly.  And you two sound like a wonderful couple.  I am glad that he has you to be there for him.  Just do what makes you happy on that day. 
 
I am sure that his lack of appetite is normal for right now.  It sounds that way anyway.  I can just imagine what he is going through and to have you there to support him, probably really makes him feel good.  You are a very good person.
 
Keep posting and let us know what is going on.
 
And remember that we are here for you.
 
Take care my friend.
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 18774
   Posted 11/18/2009 7:53 PM (GMT -7)   
sorry i haven't posted 4 a bit jenn. serious mouth infection. anti-biotics slowly helping. trying to catch up with the house. can't eat much, thus i have been feeling quite depressed. lack of energy, etc. oh well, hopefully dh feels better real soon. take care and know that i am thinking of you guys, even though i am not around much. hopefully i can make a come back to the forum in a few days. cheers, real hot here. jamie.
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.


getting by
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Date Joined Sep 2007
Total Posts : 40601
   Posted 11/18/2009 8:42 PM (GMT -7)   
Jamie,
 
I am sorry that you got infection in your mouth.  This must be very uncomfortable and painful.  I hope that it gets better soon.  Did the dentist say why he thought it happened?  Which teeth were they? 
 
I hope that you are feeling better soon.  We do miss you when you don't post on the forum.  It is like a part of the family missing.  Aurora has been ill and missing for a while so I sent a shout out to her.  Erik has been gone for a while.  Becky was gone for awhile too.  And there are others that I think about.  Especially now when I am working and don't get on here as much. 
 
Right now, I am working on Christmas wreaths for the animal shelter, I have done it for a few years now.  So on my days off, I have to do this.  Also walked the dogs today.  That felt really good.
 
Well Jamie, I hope that you do feel better soon.  Keep us up with what is going on in your life when you feel up to it?  Try to pop in now and then until then.
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 18774
   Posted 11/18/2009 11:47 PM (GMT -7)   
yeah i heard about erik. hopefully aurora feels better soon too. bottom left molars. had some hash browns tonight, trying to force down some real food. take care. keep plugging away with your wreaths. jamie.
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.


JD68
Regular Member


Date Joined Aug 2008
Total Posts : 205
   Posted 11/19/2009 6:49 AM (GMT -7)   

Yikes Jamie!!  There is nothing worse than tooth pain/infection.  I do feel for you and hope it resolves quickly and you are on the road to recovery quickly!!

Christmas wreaths!!  Tis the season I suppose......good for you Karen what a wonderful thing to do for the animal shelter.

They started an different form of ECT yesterday.......he was receiving bilateral frontal and they have changed to bilateral temporal.  Apparently this is more effective but has a higher risk of memory loss.  Time will tell.  Second one of this type tomorrow.

Stay well the both of you!!  Hugs and cheers.......oh and it is chilly here Jamie, winter is on it's way.....UGGGHHHH!!!

-Jenn


getting by
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Date Joined Sep 2007
Total Posts : 40601
   Posted 11/19/2009 10:44 AM (GMT -7)   
Jenn,

I hope that the new treatment helps your husband. I know that this must be frustrating for the both of you. But you are being so supportive of him. You are such a wonderful person.

Almost finished with my wreaths. The Christmas walk is Saturday. So I am doing good.

I hope that you have a great day. Keep us up on what is going on.

Best wishes to you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 18774
   Posted 11/20/2009 4:19 PM (GMT -7)   
well done karen on ya wreaths and the work you do at the shelter!
jenn, your committement to your man touches me greatly. i am the same with my lady. keep positive, keep beleiving. here for ya always. jamie scool
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.


JD68
Regular Member


Date Joined Aug 2008
Total Posts : 205
   Posted 11/23/2009 5:48 PM (GMT -7)   

We went up to UW for his 9th treatment today and they didn't do it and discontinued them. His memory loss since starting the new ECT last Wednesday has been significant to say the least and as of now no improvement in mood either still very down and now very confused. So we just saw his MD here and we just have to wait.....they up'd his dosage on his meds and we will wait to see when the memory improves if there is any improvement. They stated that a lot of the time once the memory returns you can see an improvement in mood. Time will tell. I am now off work this week as he cannot be left alone. I have to call UW next monday and update them and then call his MD here as well. Should he fall further behind I am to let them know immediately and they will have me admit him for observation.

So hurry up and wait......I am tired of playing the insurance dance that is for sure. But I have everything in my purse and have stayed on top of his health and disability insurance needs so hopefully I will run into no problems there.

Just thought I would let every one know that things have taken a turn for the worse but hopefully when the fog lifts there will be a rainbow.


getting by
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Date Joined Sep 2007
Total Posts : 40601
   Posted 11/23/2009 6:55 PM (GMT -7)   
Hi Jenn,
 
I am so sorry to hear that things aren't improving for your husband.  I take it that they are doing the treatments because he was treatment resistant.  Have they mentioned a vns system?  I think we have a member on the forum that used one.  I sure hope his memory comes back and that he feels better.  I am so sorry that you are going through all of this and have to miss work to take care of him.  Hopefully soon he will start to turn around.  He will (and you too) be in my prayers and thoughts. 
 
I finnished my wreath order.  I will be doing very few now.  Saturday I delivered the wreaths and swags to the animal shelter to sell at the Christmas walk.  Yesterday I celebrated my birthday.  Today I finished decorating the large wreaths.  Tomorrow I will deliver them and rest up for work.  I have to work on Thanksgiving, so we will have ours on Friday.  What a week, I guess.  My dogs took turns being sick.  I am worried about the german shepherd.  But she seems to be doing a little bit better today.  So that is good.  She ate something and did keep it down.  I am glad for that.  Well, I guess I have filled you in on my life.  This is your thread, sorry, just rambling I guess.  I hope that things get better.  I will be saying prayers for you and your husband.  Let us know what is going on.
 
Take care Jenn,
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


JD68
Regular Member


Date Joined Aug 2008
Total Posts : 205
   Posted 11/23/2009 7:42 PM (GMT -7)   
First off Karen .......HAPPY BIRTHDAY !!!!
 
Second this is everyones thread....I am happy you feel safe "dumping" on me that's what this is for.  I am so proud of you for all you do for the animal shelter......we did a few things when DH was feeling better.  Being animal lovers it's hard not too.....I would take them all home if I could and they would all be fat and sassy:-)
 
I wish you could have your thankgiving on the day but totally get having to work on that day......about 10 years ago....I worked many holidays.  And you know what it was ok.....other people were in the hospital and I would rather be helping than being in a bed.  However, I so appreciate being "home" for the holidays now.
 
This year will be quite a bit laid back......which I am ok with in light of everything that has happened.  DH WILL get better.  I am going to get him up by 9am tomorrow and we are going to go for a walk and I am going to have him give me directions.  It is going to be chilly but I can bundle up.  The dogs will love it.  The DR's all say they believe that once his memory returns he will feel better.....Pill box is full, white board has the day and I am here.......it will all be ok.  I am thankful if for nothing else that
 
# 1   My job allows me to work from home and take care of DH at the same time
# 2   I have the great support of this site and all the wonderful friends I have met
# 3   I have two boys who support us in all of this and understand whats going on and respect all that is being done to help.
# 4   My great family that may not always understand the way everyone here does but still stands by us, sometimes blindly.
 
Happy Thankgiving to all......
 
Happy Birthday Karen....I do hope you got everything you wished for and then some.........You so deserve it!!!
 
I will be on this week for sure and will do my best to support for a change:-)  I see quite a few new posts that need an ear......
 
Hugs to all.........Jenn
 
 
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