Direct electrical brain stimulation trial NYC

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theswan
Regular Member


Date Joined Nov 2005
Total Posts : 197
   Posted 4/15/2010 7:19 PM (GMT -7)   
Hello my friends
 
Sorry I've been out of touch. I recently moved (again) and have started and am halfway through a clinical trial for depression.
 
Now understnd that I may be recieving a "sham" or inactive device trial but already feel improvement. This can be owed to the placebo effect or it may be working it's magic.
Waht they do is soak two electrode leads in salt water and attach on ple to the top of my forehead above my left eye. This was a carefully measured area to target a specific brain part. The other lead goes on my right arm.
The power pack is powered with a nine volt battery and the voltage in tiny (1-2 millivolts) I sit for 20 minutes and chat with the doctor and it's over!
I have felt very sleepy an hour after on three ocassions and felt minor tingling one time in a total of 7 trials.
After trial 10 I will be given the chance to continue for 10 more that will be the actuall trial device if I want it. (as of now not even the doctor knos if it is real or sham)
 
My mood is better and my pain level also feels better. As I said it may be the placebo or wishful thinking at this stage as I can not know for sure if I'm getting the "real deal"
I feel very hopeful and am happy to be in NYC where so much is happening in the way of research.
 
My depression was horrible at its worse last year at this time until around September 2009. Death was almost welcome as my depression had manifested into severe anxiety. I cannot bear anxiety let alone depression. Thank God it is a thing of the past. The anxiety left after a lot of prayer and I did avail myself the use of a Christian science practioner as is my fiancee's religion.
 
I am not a CS but a Catholic but do believe this woman helped me.
 
I will update on the trial as it is ongoing
 
God bless
 
Glen
This too shall pass


THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 18748
   Posted 4/15/2010 10:03 PM (GMT -7)   
glad that you are receiving healing on all levels. be proud of what you are doing my friend. always here for you. god bless for the continued therapy and love you are receiving. healing prayers to you my friend. thx for posting. keep well and know that i care, with compassion, jamie.
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40574
   Posted 4/16/2010 7:27 AM (GMT -7)   
Hi Glen,

Even if this is a placebo effect, it is helping. So that is good. This is very new to me, never heard of it, but if it is working, well, that is good.

Take care my friend, glad that you are back.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


theswan
Regular Member


Date Joined Nov 2005
Total Posts : 197
   Posted 4/16/2010 10:39 AM (GMT -7)   
Thanks and hello Jaimee and Karen

It is actually not new but has been getting new attention. Google it under tDSC or tDCS I always screw it up but the one that pops up about "transcrainial direct brain stimulation" is correct. My doctor is Peter Bulow of Columbia

Do not be afraid of the name it is NOT electro convulsive treatment at all. I mean if you put your tongue on a 9 volt battery and felt that slight tingle, it is 100X weaker then that!

It gets into the "rythm" of the nerve cells and helps them work to their potential or better stated, "action potential" which is the fireing process of nerve cells.

They also do magnetic treatments that have worked well and may soon start an alternating current trial

I'll update as needed

Glen
This too shall pass


THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 18748
   Posted 4/16/2010 6:43 PM (GMT -7)   
cheers glen. keep up the good work. jamie.
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.


theswan
Regular Member


Date Joined Nov 2005
Total Posts : 197
   Posted 4/19/2010 9:23 AM (GMT -7)   
I get treatment/sham #9 today and #10 tommorrow then next week will start the real treatment (for sure-no possibility of sham control)

I ahve read so much about this and the doctor is quite sure it will help. Not only him but my regular psych doctor upstate went to a conference on tDCS in Las Vegas and he said it looks promising. He told me most of the doctors present at the conference partook of the stimulation themselves. As I said, it is nothing to fear only a nine volt battery is used.

I am suprised there is not more response to this post as this may offer a lot of promise and therefore hope.

God bless

Glen
This too shall pass


THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 18748
   Posted 4/19/2010 11:04 AM (GMT -7)   
i am very interested glen, albeit i can't even get access to a psychiatrist!! neither privately or public. keep me posted. jamie.
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.


theswan
Regular Member


Date Joined Nov 2005
Total Posts : 197
   Posted 4/20/2010 4:35 PM (GMT -7)   
ok Jamiee
 
i got last treatment today and get the real deal so to speak starting Monday. I may have gotten the sham but in either case it does work better the more one gets.
 
Do you live near a big city? they have free trials and even some where you get paid. look up trials at 'clinicaltrials.gov" they have all the listings by state city and disease or malady just type it in
 
Good luck
 
Glen
This too shall pass


THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 18748
   Posted 4/20/2010 6:03 PM (GMT -7)   
cheers 4 that. jamie.:-)
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.


theswan
Regular Member


Date Joined Nov 2005
Total Posts : 197
   Posted 4/28/2010 8:11 AM (GMT -7)   
update
 
I get my third real treatment today no real change to report yet.
 
Will update as I feel better or not
 
Glen
This too shall pass


THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 18748
   Posted 4/28/2010 3:31 PM (GMT -7)   
all the best. it can take some time for the treatments to kick in. keep positive theswan. jamie.
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.


theswan
Regular Member


Date Joined Nov 2005
Total Posts : 197
   Posted 4/29/2010 3:46 PM (GMT -7)   
missed yesterday as doctor called in went today and got third treatment feel no different yet

Glen
This too shall pass


THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 18748
   Posted 4/30/2010 12:06 AM (GMT -7)   
hoping it does for you soon. remain positive my friend, here for ya. jamie.
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.


theswan
Regular Member


Date Joined Nov 2005
Total Posts : 197
   Posted 5/5/2010 7:51 AM (GMT -7)   
Treatment number 5 and doing well!

Glen
This too shall pass


THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 18748
   Posted 5/5/2010 7:13 PM (GMT -7)   
excellent. scool scool scool jamie.
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.


theswan
Regular Member


Date Joined Nov 2005
Total Posts : 197
   Posted 7/26/2010 1:53 PM (GMT -7)   
Update sorrt it took so long

The tDSC went well but not as good as I hoped. My anxiety is gone and i'm happy for that. I wish I could get more treatments as they helped albeit not as greatly as I hoped.

How are you all?


Glen
This too shall pass


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40574
   Posted 7/26/2010 4:16 PM (GMT -7)   
Glen,

I am glad that it did help some.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 18748
   Posted 7/26/2010 5:17 PM (GMT -7)   
me too. am severly depressed at this time, i wish i could have some treatments as well. started back in therapy yesterday; it's been a very long time. keep postin'. good to see you on the forum. know that we care glen. with compassion, jamie.
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.


theswan
Regular Member


Date Joined Nov 2005
Total Posts : 197
   Posted 7/27/2010 9:42 AM (GMT -7)   
I now see that you are from down under
I wonder if the big citys there do not have clinical trials?
This too shall pass


THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 18748
   Posted 7/27/2010 5:32 PM (GMT -7)   
they do. rarely advertised though. hang in there mate. jamie.
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.


theswan
Regular Member


Date Joined Nov 2005
Total Posts : 197
   Posted 7/31/2010 9:29 AM (GMT -7)   
try the internet we have "clinical trials ,gov" and I think they even have international trials I mean heck it's worth a lookup

The trials are free and some even offer pay for it

Not sure of exact URL but google clinicaltrialsgov and it should pop up

I'm on Wellbutrin in addition to Serzone I feel kinda "speedy" but will wait it out
This too shall pass

THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 18748
   Posted 8/1/2010 4:52 AM (GMT -7)   
thx glen, but i may go in to hospital, am losing it, jamie.
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.

theswan
Regular Member


Date Joined Nov 2005
Total Posts : 197
   Posted 8/2/2010 10:31 AM (GMT -7)   
so sorry to hear that
 
do what you think best but think it through with the up and down side
 
I wanted to be admitted last year but as I worked 22 years in psych. I knew there was not a lot for them to do and I'd be cooped up and not able to leave for 72 hours at least.
 
I guess you know all this so make an informed choice and God bless you
 
Glen
This too shall pass

THE HAPPY TURTLE
Elite Member


Date Joined Mar 2009
Total Posts : 18748
   Posted 8/2/2010 6:48 PM (GMT -7)   
thx, stayin' out. done enough time in. jamie.
YESTERDAY IS A BUTTERLY WITHOUT WINGS. (ME)
 
DX, MDD, SEVERE BORDERLINE PERSONALITY DISORDER.
 
REMEMBER TO LOVE YOU. BE YOU AND BE TRUE.
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