why isnt there a forum for tourettes syndrome.

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MANDY4U
New Member


Date Joined May 2005
Total Posts : 7
   Posted 5/7/2005 8:17 AM (GMT -7)   
yeah  Having living with my child with tourettes sydrome,hes 10 now and has suffered with the disease for nearly 6 years .People kept saying to us about hes behavier but we knew this wasnt how our son was,with facial tic and abnormal noises ,we were left concerned and worried about what was happening.
2 years later we were sitting at home whatching television and on came a documentary regarding tourette syndrome ,not know what it was we whatched,and as we whatched we saw our little boy coming to us in out minds.THE NEXT DAY WE TOOK OUR QUESTION TO THE DOCTORS AND AFTER 4 WEEKS HE WAS REFERED.(finally we new our son was getting to help he needed and the help we also needed)
Tourettes syndrome is not very highly pressed in england and after spending the last 6 years copeing and learning we want to finally help others .People say that ,people with tourettes syndrome walk about swaering all the time but that is not true as our son dosent but that goes with the different levels of the disease. nono We beg people ,doctors,specialists and other medical assistants no to be ignorant to our familys that live there lives with such dispare ,the big thing we had to do was to get the school board together and to teach them and convince them that this disease dose exist and that the grass isnt always greener on the other side.
Tourettes syndrome is the lack of dopemein to the brain(plz excuse my spelling)some how it is linked to parkinsons but we are yet to prove it.
i have asked HEALINGWELL.COM if i can open a forum for tourettes to help others to find the help they need ,to give them or their children a normal and happy life.
THANK YOU FOR READING MY LETTER AND HOPE YOU COULD EMAIL HEALINGWELL.COM TO SUPPORT MY REQUEST.
THANK YOU MANDY.
 
 
 
yOU CAN GATHER IMFORMATION AT ;   WWW. TOURETTES.COM eyes

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/7/2005 9:08 AM (GMT -7)   
Mandy,

I'm sorry you haven't been able to find a support forum for Tourettes. We do have some boards here which are rather stagnant. I wonder if when you emailed the Admin here (Peter) if you let him know that you would be willing to moderate under the HealingWell forum rules if that might be helpfull. Some of the forums here do not have moderators so I think Peter might be reluctant to add another forum while we are trying to adequately cover the available forums.

There is also a cost factor for additional space and HealingWell is seeking funds to keep the current forums paid for.

There is something very healing about having like-afflicted people to talk to and share info. I hope you find or start such a group if there isn't a way to do so here. That's how Peter started HealingWell to fill a need.

Blessings!
In His Grip,
AlwaysRosie
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, High BP, GI Inflamation, Diverticuloses
Plaquenil, RX Motrin, Lexapro, Amitriptylene, Salagen, Lotrel
 
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MANDY4U
New Member


Date Joined May 2005
Total Posts : 7
   Posted 5/7/2005 10:20 AM (GMT -7)   
thank you for the reply and i would be willing to help raise funds to add anouther forum,

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/7/2005 6:33 PM (GMT -7)   
Mandy,

Peter (HealingWell Administrator) won't see your post here. You can either email him or click on the yellow diamond in the upper right of your post and you can message him there.

Good Luck!
In His Grip,
AlwaysRosie
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, High BP, GI Inflamation, Diverticuloses
Plaquenil, RX Motrin, Lexapro, Amitriptylene, Salagen, Lotrel
 
Please help HealingWell help others. Donate today: http://www.healingwell.com/donate/

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