Ten years of a terminal illness & a newbee tels me I am healthy?????

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Having2LeftFeet
Regular Member


Date Joined Feb 2005
Total Posts : 472
   Posted 5/30/2005 5:09 PM (GMT -7)   
nono  My Rheumatologist retired and left me in the hands of the wolf. All his patients were redirected back to their PCP's. I have had Lupus for 10 years, habe the positive labs, X-rays, MRI's, CT scans, and any other dern thing you can think of. My last visit and blood work showed a SED rate of 50 and my ANA was pos with 1:640 w/CREST variant and a centremere pattern leaning to another auto immune disease. I bout hit the roof when I got his E mail on Saturday with the joyous news. That means for 10 years I have put myself, husband, family through a living hell???? Well, if it's not Lupus, what is it. Dr. so and so need to go get a degree at Mr. Goodwrench. What a putz and I will have a little alk with the man on Monday. Hold good thoughts. 
 
"Lefty"  
There is no such word as can't. Can't simply means wouln't. Grab as much as life as you can. Future is a long way away for those who don't believe. Don't build a foundation of life on sand. It will take it away with the tide. Love a little more, be unkind a lot less.


Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 5/30/2005 6:04 PM (GMT -7)   
The new Dr. told you that you don't have Lupus?! I do think this definitely needs to be addressed!! You seem like you are a direct person and that's what you'll have to be with this-you need some answers. Did this new Dr. send any blood test results, or anything to back this up?? What made him think this? I always love it when they email, mail or leave messages, and then are closed for the Holiday weekend after dropping a bomb!

Please know that I'm in your corner! And don't forget to let us know what happens after the feather's fly!?

Hugs, Teri :)
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
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CheerDad
Veteran Member


Date Joined Apr 2004
Total Posts : 2284
   Posted 5/31/2005 10:53 AM (GMT -7)   
Sending positive thoughts your way.
We can respond to irritation with a smile instead of scowl, or by giving warm praise instead of icy indifference. By our being understanding instead of abrupt, others, in turn, may decide to hold on a little longer rather than to give way. Love, patience, and meekness can be just as contagious as rudeness and crudeness.
 
Randy
 
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Having2LeftFeet
Regular Member


Date Joined Feb 2005
Total Posts : 472
   Posted 6/1/2005 7:18 AM (GMT -7)   
Thanks a lot guys. Anyone have a medical license???

hugs
"lefty"
There is no such word as can't. Can't simply means wouln't. Grab as much as life as you can. Future is a long way away for those who don't believe. Don't build a foundation of life on sand. It will take it away with the tide. Love a little more, be unkind a lot less.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/1/2005 8:31 PM (GMT -7)   
Hey Lefty,

I'm sorry you have to deal with another new doc. That's a rough one. I am confident that your PCP will refer you to another rheumy. You have too much going on for a primary care doc to manage. There may eventually be a silver lining to this cloud if you find a better rheumy.

BTW . . . what did you decide to do about your back? Just wondering.

I like Randy's message . . . I will aslo send you some positive thoughts.

Blessings!
In His Grip,
AlwaysRosie
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, High BP, GI Inflamation, Diverticuloses
Plaquenil, RX Motrin, Lexapro, Amitriptylene, Salagen, Lotrel
 
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AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 6/1/2005 8:33 PM (GMT -7)   
Hey Lefty,

I'm sorry you have to deal with another new doc. That's a rough one. I am confident that your PCP will refer you to another rheumy. You have too much going on for a primary care doc to manage. There may eventually be a silver lining to this cloud if you find a better rheumy.

BTW . . . what did you decide to do about your back? Just wondering.

I like Randy's message . . . I will also send you some positive thoughts.

Blessings!
In His Grip,
AlwaysRosie
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, High BP, GI Inflamation, Diverticuloses
Plaquenil, RX Motrin, Lexapro, Amitriptylene, Salagen, Lotrel
 
Please help HealingWell help others. Donate today: http://www.healingwell.com/donate/


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 6/5/2005 12:26 PM (GMT -7)   
Ah-ha! Another Dr who needs a little tune-up from the hob-nailed combat boots from the lupus board, along with the slapping commitee!

Guess we should start making notches in the sole of the boots.

Seriously though, this guy is nuts!
Lynnwood

Lupus/Sjogren, 2001, Plaquenil, Piroxicam, Imuran, Trazodone
4/20/05 Dropped Prednisone, Xanax

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