I can understand. Whenever diagnose with a life changing illness, mine was Crohn's Disease, it is natural to feel a great loss. the best advice I can give you is if you feel like screaming, scream. Go out whereyou can't be heard by anyone and let it all go. I spent 35 years keeping the happy face on dealing with my illness when inside, there were days that it was all I could do to get out of bed. Hopefully you will get some relife soon and feel like you are able to lead as normal of a life as possible. If you need to talk, my email link in HW is active. drop me a line. Best wishes!
We can respond to irritation with a smile instead of scowl, or by giving warm praise instead of icy indifference. By our being understanding instead of abrupt, others, in turn, may decide to hold on a little longer rather than to give way. Love, patience, and meekness can be just as contagious as rudeness and crudeness.
Dx'd with Crohn's at age 12.
Symptoms since age 5.
Learning to live with this Disease rather than be its victim after 34 years.