acqustic neuroma

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pieball
New Member


Date Joined Aug 2007
Total Posts : 10
   Posted 8/13/2007 4:18 AM (GMT -7)   
Hi, i have just had my op to remove a tumour from my ear.  It took the doctors nearly three years to find out what is was!  During that time i have had mild pain to severe pain.  After being diagnosed i had many sleepless nights not knowing what was going to happen to me.  I now have no hearing in my right ear, just a constant noise that is driving me mad.  The consultant said it would get easier, but after 8 weeks it is worse that ever.  How do i adjust to the fact i am off balance most of the time and i feel people must think i'm drunk or on drugs or something.  I have a constant screaming in my ear and i am embarrassed because i am always asking people to repeat themselves because i can't hear them.  I thought after having the last couple of years so bad that, after the op everything would be great?  I wonder how this is going to affect the rest of my life?
 
I am at the moment off work which, i have been for 8 weeks.  The problem is it has made me feel very upset and down confused I had fallen out of love with my job that, i used to love, and now i don't want to go back.  The thought of going back really upsets me, i know i have to because we all have to pay our way.
 
I really want to feel positive, but i feel a little lost at the moment??

ShynSassy
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Date Joined Dec 2005
Total Posts : 3036
   Posted 8/13/2007 4:42 AM (GMT -7)   
Hi Pieball

Oh wow,I can not even imagine what you are going through.I am so sorry!
Have they given you something for the pain? Are you going back again?



Shy
Mod- Depression

Chronic Depression, Panic Attacks,Anxiety Attacks,Anorexia
Meds I have taken throughout the years:Wellbutrin,Tranxene,Paxil,Prozac,Valium,
Lexapro,Zyban,Buspar,Clonazepam
Off of all meds at this time...woohoo!!
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"I am woman,hear me roar one day and cry the next!!!"


pieball
New Member


Date Joined Aug 2007
Total Posts : 10
   Posted 8/13/2007 6:39 AM (GMT -7)   
Hello Shy,

I thanks for replying, yes the doc gives me strong pain killlers and tabs for killing the pain in the nerve endings, also tabs for the noise. The first are used as anti-depressants and epilepsy but, i am unsure about taking them, i already feel out of control enough. I don't know what effect they will have, i have just been putting up with the pain.

I went Back to the consultant last week. He told me it will take at least a year to get my balance back to any kind of normality. I am starting on a course of balance physio and keep taking the tablets??????????

They suggested before my op to have a trial run with a baha (bone anchored hearing aid) i did this for 4 weeks. It is supposed to transmit sound from the bad to the good so it feels you can hear both sides. It didn't work, i think once the hearing has gone you can't get it back. Thats one big problem to come to terms with, i have no hearing in one side after years of 1st class hearing. I feel like i have become less of a person. I look at forms i have to fill in and the any disability to declare and, i don't know what to put?

It took them all that time to find out what the problem was, i think if they had acted earlier could they have saved my hearing??

There are so many questions and nowhere near enough answers.

Post Edited (pieball) : 8/13/2007 11:52:46 AM (GMT-6)


ShynSassy
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Date Joined Dec 2005
Total Posts : 3036
   Posted 8/13/2007 12:08 PM (GMT -7)   
Those are hard questions to answer,I really hope that you are able to gain your hearing back.
Is is a possibility that if it does not come back that you can gain some hearing by wearing hearing aids?



Shy
Mod- Depression

Chronic Depression, Panic Attacks,Anxiety Attacks,Anorexia
Meds I have taken throughout the years:Wellbutrin,Tranxene,Paxil,Prozac,Valium,
Lexapro,Zyban,Buspar,Clonazepam
Off of all meds at this time...woohoo!!
www.healingwell.com/donate



"I am woman,hear me roar one day and cry the next!!!"


els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 8/13/2007 2:48 PM (GMT -7)   

Hi pieball, I am so sorry for what your going through!  I have MS and sometimes I will get a ringing or a vibration feeling in my ears and head.  It's weird but at least I know it will go away the next day if it happens.

Please by any means at least give the medications a try that your doctors have prescribed for you.  I would think they have your very best interests at heart and wouldnt prescribe something they didnt think wouldnt be helpful for you.  You will never know unless you try them.  And if it does ease some of your pain then why not take them?  There is no reason to make yourself suffer as you are.

The funny thing about some of these medications is that they have dual uses and purposes.  As do a lot of medications on the market...so dont let "antidepressant or epilepsy" scare you.

Elisha
Co~Mod: Depression
Moderator: Heart & Cardiovascular Disease
http://www.healingwell.com/donate


pieball
New Member


Date Joined Aug 2007
Total Posts : 10
   Posted 8/14/2007 5:42 AM (GMT -7)   
Hello Elisha, thanks for being positive, its what i need right now. One question though, do the pills and driving go together? I have to drive a lot in the job i do!

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 8/14/2007 6:41 AM (GMT -7)   

Hello Pieball,

Welcome to Healing Well. I am so glad you have joined this special forum where the members are so very warm and caring.

I am sorry about your surgery and the hearing loss and I know from experience after a very minor ear surgery that coming out of it and having my hearing diminished was scary. So I can't imagine how it must be for you. :(

Please know I am here and you have my support.  Keep posting. ((((((((((((((HUGS))))))))))))))

 


Respectfully
Kitt
Moderator Anxiety ~ Panic Disorders
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression 
******www.healingwell.com/donate******
_____________________________________________________
"If you doubt you can accomplish something, then you canโ€™t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.โ€ 
~Rosalyn Carter

 


els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 8/14/2007 9:13 AM (GMT -7)   

Hey pieball, With my conditions I take many medications (an antidepressant, antianxiety and 2 different muscle relaxants at night) and am able to drive just fine.  Just dont ask my mom about it cause she will tell you different...lol! 

Seriously though, you may want to give yourself a few days to adjust to them after you start taking them and see how you feel.  Sometimes people may feel drowsey for a few weeks but usually that can be solved by adjusting the time you take the medication.  I used to have to drive a lot with my other job also so I understand your concern there.  Very good question! :-)


Elisha
Co~Mod: Depression
Moderator: Heart & Cardiovascular Disease
http://www.healingwell.com/donate


pieball
New Member


Date Joined Aug 2007
Total Posts : 10
   Posted 8/14/2007 9:21 AM (GMT -7)   
Hi kitt, really nice of you to say hello. It's great to have so much support, i wish i had joined ages ago.

Thanks so much

pieball
New Member


Date Joined Aug 2007
Total Posts : 10
   Posted 8/14/2007 9:22 AM (GMT -7)   
Elisha, thanks, i am going to give them a go. xx

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 8/15/2007 4:40 PM (GMT -7)   
Your most welcome dear :-)    Please do let us know how you do and feel free to post as often as you like we are always here.

Elisha
Co~Mod: Depression
Moderator: Heart & Cardiovascular Disease
http://www.healingwell.com/donate


pieball
New Member


Date Joined Aug 2007
Total Posts : 10
   Posted 8/17/2007 8:59 AM (GMT -7)   
Hi everyone, just been to the docs, he told me its going to take at least 12 months before my balance is restored and things return to any kind of normality. He has given me a note to tell my employer that i have to be office bound and no driving offenders around (i normally take offenders to their community service and help them through their orders). This i feel is not too bad, i wouldn't mind being office bound for a while, it will help me get my concentration back. Don't feel i could put up with offenders being offenders.

I will be going back to work the beginning of next month (help!)

thanks for all the encouragement xx

ShynSassy
Veteran Member


Date Joined Dec 2005
Total Posts : 3036
   Posted 8/19/2007 6:06 AM (GMT -7)   
Pieball
I know it has to be frustrating,but there is a light at the end of the tunnel now.

I think that when I was looking for a job,and basically sitting around home most of the day my depression was way worse. Going to work will help you keep your mind off of things,at least for 8 hrs a day.


Shy
Mod- Depression

Chronic Depression, Panic Attacks,Anxiety Attacks,Anorexia
Meds I have taken throughout the years:Wellbutrin,Tranxene,Paxil,Prozac,Valium,
Lexapro,Zyban,Buspar,Clonazepam
Off of all meds at this time...woohoo!!
www.healingwell.com/donate



"I am woman,hear me roar one day and cry the next!!!"

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