Three month test results

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ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
   Posted 2/15/2008 1:38 PM (GMT -7)   
I got my blood work back last night,

A1C is 6.1 down from 15.2

Total cholesterol is 127

Triglycerides is 112

HDL is 59

LDL is 46

CMP is normal. This means I test normal for no kidney or liver damage and diabetes. So, diabetes does not show up and it is in control? Doctor says I should be proud and brag about these numbers. I wanted A1C of 5.5:( The doctor is running them again next month because there are three weeks where I was still in the 200-300 bs on these. She also said because of the prednisone and lantus I should not try for 4.4 or 5 A1c as I could go low and die. So, opinions on these results? Thanks to all who helped me. I couldn't have come this far without you:)

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 2/15/2008 3:03 PM (GMT -7)   
yeah Doing the happy dance here!!!

You should extend your right arm out in front of you, bend it at the elbow and reach around and give yourself a big pat on the back! You done good!

Now if you can just hold the line on these numbers you will probably be healthy as a horse and outlive us all!

Great job!
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


fergusc
Regular Member


Date Joined Dec 2005
Total Posts : 230
   Posted 2/15/2008 5:26 PM (GMT -7)   

I'm delighted for you ceebee. That's fantastic progress, you have done wonderfully well!

6.2 is such an improvement on your previous numbers. But don't let your team talk you out of aiming even higher (lower?). HbA1c's in the 4's and 5's are not life threatening, they are perfectly and safely achievable. I've been in the 4's for a number of years now, and I'm still here!

Keep the faith!

fergusc


ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
   Posted 2/15/2008 11:16 PM (GMT -7)   
Thanks Jeannie and fergusc. I was aiming for the 5's in the A1C and still aiming! What else can I do ti get it down? I am trying to get off the prednisone and that should really lower it quite a bit I think. I just can't find a doctor to help get off the pred while lowering the lantus so I don't crash. Still looking for an endo as my internest doesn't feel comfortable doing it. I do it myself if I knew how much to lower the meds together. Medical care here is so poor and I have great insurance. I can't fathom what people do without insurance.

Question: The crestor is eating away my muscles so dr. changed to lipitor. I think I can do it with eating. Is this safe to try? Dr. will check in a month to see if it happening with the lipitor but I don't need any more muscle loss. Still dropping weight fast, 5 pounds at a time. If the lipitor is still eating my muscles, dr. has no choice but to take me off. Also, I was very sick when the first test were done so they were bound to be bad, right?? Otherwise my levels there were always low. It seems once they put you on a med, they never want to take you off. I am on $3500 a month in drugs and want to get off some of these. Thanks for making me feel not so very alone with this disease:) Any advice is so appreciated:)

ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
   Posted 2/15/2008 11:41 PM (GMT -7)   
Hey fergusc......forgot to say...and happy that I am you are still here. Sometimes I come here a little down and see some of your post and they put a smile on my lips and a giggle in my heart:)

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 5396
   Posted 2/16/2008 8:24 AM (GMT -7)   
Ceebee, I hope you can find another doctor!  It seems you're on several medications and maybe you need to be re-evaluated?!  confused

Lanie
forum moderator - diabetes
diabetes controlled so far by low/no carb diet and exercise; no meds


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 2/16/2008 9:43 AM (GMT -7)   
Ceebee, I have had to take Prednisone off and on over the years.  One time I was on 80 mg. a day to see if it would stop my loss of hearing.  If I remember correctly, I would cut back 5 mg. per week.  I know it took me close to four month to wean off it.  It's pretty miserable stuff. 
 
I take Zocor and have had no problem with it.  But, I wanted to raise my HDL levels.  I was searching online and saw that avocadoes are terrific for lowering cholesterol and raising the HDL.  You may know that already but I didn't.  By the way, it's the small Haas avocadoes that are the best in nutrients and cholesterol lowering properties.  They have a lot of fat but it's the good fat.  Just thought I'd pass that on.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 2/16/2008 10:29:36 AM (GMT-7)


ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
   Posted 2/17/2008 1:03 AM (GMT -7)   
Hi:) A lot of my meds are for allergies and asthma. I think I could do with less but no doctor wants to take me off. They keep putting me on pred and yanking me off and it was a cycle. Now I am on 20mg for the past three months. I will try lowering it the 5 mg at a time and see if that is the answer. I see a new lung doc next week so we will see. I also am making an appointment with a new endo. Finding good doctors is the trick:)

gelchick
Regular Member


Date Joined Aug 2006
Total Posts : 477
   Posted 2/17/2008 3:32 PM (GMT -7)   
cee bee
 
Congratulations on your awesone results!!!! yeah   I am a big fan of happy dances, so if your floor is vibrating- it's just me!
I'll bet your bg values are better than your A1c right now- and once you have 12 weeks of steady blood sugars, your A1c will drop a lot more - probably into the low 5's anyhow.
 
sandy
I just want to live happily ever after-every now and then. Jimmy Buffett


Marburg
Regular Member


Date Joined Mar 2006
Total Posts : 486
   Posted 2/18/2008 12:04 PM (GMT -7)   

Congrats on the numbers Ceebee!

about the meds--you can get off them--I did. Years ago I took prednisone for asthma and aldactone for hormone imbalance.  The prednisone saw my bs increase and the aldactone caused a dramatic rise in cholesterol and triglycerides (from 106 to over 300).  It took a bunch of years but eventually I was able to get off the prednisone.  I found certain berries (Blueberry) really helped with my asthma (still don't know why).  So, I only use the prednisone now when I have an upper respiratory infection.  As of the cholesterol meds--I found that the after getting off the aldactone the numbers didn't quite come back down to under 200.  Instead they hovered around 250 while on the cholesterol meds and I was getting a lot of muscle cramps.  So, with my doctor's permission I stopped taking the meds for a month and then had my cholesterol checked.  It was down to 195, at the end of 3 months it was 106 and at the end of 1 year the numbers were 165.  They have stayed between 150 and 195 ever since.  It was 3 years ago that I quit taking them.  My liver enzymes have been normal since quitting them.  The only thing I did was watch the amount of fried foods and trans fats that I consumed.

 

So--if I can do it, I'm pretty certain you can do it.  But, like you said, the trick is finding a doctor who will work with you on this and is open to trying things.  I was lucky in the the doctor I had at the time was open to herbal approaches and trying to get off meds--its too bad he left practice to go back home.

Let us know how it goes.

Marburg

ceebee said...
Thanks Jeannie and fergusc. I was aiming for the 5's in the A1C and still aiming! What else can I do ti get it down? I am trying to get off the prednisone and that should really lower it quite a bit I think. I just can't find a doctor to help get off the pred while lowering the lantus so I don't crash. Still looking for an endo as my internest doesn't feel comfortable doing it. I do it myself if I knew how much to lower the meds together. Medical care here is so poor and I have great insurance. I can't fathom what people do without insurance.

Question: The crestor is eating away my muscles so dr. changed to lipitor. I think I can do it with eating. Is this safe to try? Dr. will check in a month to see if it happening with the lipitor but I don't need any more muscle loss. Still dropping weight fast, 5 pounds at a time. If the lipitor is still eating my muscles, dr. has no choice but to take me off. Also, I was very sick when the first test were done so they were bound to be bad, right?? Otherwise my levels there were always low. It seems once they put you on a med, they never want to take you off. I am on $3500 a month in drugs and want to get off some of these. Thanks for making me feel not so very alone with this disease:) Any advice is so appreciated:)

ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
   Posted 2/19/2008 12:23 AM (GMT -7)   
Hi:)

Thanks for all the help. I am going off the pred by myself. This drug is killing me slowly. I am starting 10mg today and it is going good. Then I am going to 5 and stopping. My HDL and LDL were always good before I got so sick with the diabetes. With diabetes now in control, shouldn't they get back to normal naturally? Also, I was sick and my blood pressure was up for two weeks 137/90 and the doc gave me blood pressure pills. Now I am better and I have been getting 125/80 to 127/80 all week. I bought my own blood pressure monitor to keep check. I don't feel I need another pill to be on forever. These seem good blood pressure readings to me. I really watch everything I eat and cut almost all fats and carbs and want to go natural in my treatment. They give me one pill and then two more to handle the effects of that pill. This is crazy. Thank God for HealingWell and all the information here:)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 2/19/2008 8:45 AM (GMT -7)   
Ceebee, I'm not sure if you are trying to lose weight but I thought I'd pass this along about weight and blood pressure.  I was very overweight at one time.  My blood pressure raised to about your level.  I was put on diuretics and that really helped.  Then, when I moved, my new doctor gave me Accupril 10 mg.  It's a blood pressure med.  He said I was spilling a little protein in my urine and this would help prevent me from ever being on dialysis since it takes the protein out of the system.  I did as he said.  I continued to lose weight.
 
After losing about 60 pounds, I started having problems with digestion and kept getting partial bowel obstructions and being hospitalized.  I was not given medication in the hospital and, when they sent me home they told me to continue all medication.  I'd get sick almost immediately!  I was getting short of breath, dizzy, I could barely eat anything without having a blockage. 
 
During a check-up, my blood pressure was 60/32!  They couldn't believe that I was walking.  They told me to stop the diuretic and I'd be fine, but that wasn't so.  While reaching for a pan under my cabinet, I nearly passed out and, when I stood up I literally couldn't breath!  I knew it was my blood pressure and stopped my pills and called my doctor the next day, since it was a Sunday.  When I saw him, my blood pressure was 117/60 and has remained like that for over two years with no medication!  (He thinks that the combination of diuretics and blood pressure pills slowed everything down, including my organs.  It's rare but can happen.  It slowed down my bowels to the poiint of getting frequent bowel obstructions.) 
 
So, the reason for this long story is to say, be careful about blood pressure pills if you are losing weight.  I'm glad to see that you have a blood pressure monitor.  I didn't, at the time but I have one now.  I had always heard that once you had to take blood pressure pills, you had to take them the rest of your life.  This obviously isn't true.  So, please be vigilent.  I don't want anyone going through what I did.  I could have died.
 
P.S.  By losing weight, my diabetes is better and I'm not spilling protein anymore. 
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
   Posted 2/19/2008 10:19 AM (GMT -7)   
Thanks for sharing Sherrine:) I am losing weight just following the low carb diet. I have lost 70 pounds already. Most of that I had put on while taking prednisine for three years. Whoo, feels good not carrying all that weight:) I continue to lose weight so I am not taking the blood pressure meds yet. I want to see how everything checks out when I am off the pred in a couple weeks. Doctors seem to want to push pills really fast for everything. The blockage thing is scary. Since being on diabetic meds I am having some problems there. I use to be regular every day but now only once every 4 or 5 days with lots of stomach cramps. Is this a concern to talk to the doctor about? Seems with asthma, fibromyalgia and now diabetes that my home is a pharmacy! Has to be an end to how many pills one can take sometime.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 2/19/2008 11:12 AM (GMT -7)   
Ceebee, I think maybe you should drink more water, if you aren't already.  That helps keep things moving better.  Irritable bowel syndrome is one of the symptoms of fibromyalgia.  I'm putting a link for you to read about it.  This is from the National Institute of Health.  Hope this helps.  If  you have more questions, pop over to the fibro forum and I'll help you there.   
 
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 2/19/2008 10:33 PM (GMT -7)   
Ceebee,
I have asthma (pretty mild, though), diabetes and fibro... Yes, my home is a pharmacy! LOL!

Just wanted to post to you that you shouldn't eat grapefruit or drink grapefruit juice with the statin drugs (Lipitor and all). Can cause a fatal drug interaction. Some people are even sensitive to grapefruit sodas with the statins.

Didn't want you to be doing all this hard work to get healthy and have you die from trying to lose weight with grapefruits.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
   Posted 2/19/2008 11:08 PM (GMT -7)   
LOL Jeannie:) I am glad you told me that because no doctor did. I guess it is fortunate I can't tolerate any fruit and keep my bg low. I am just wondering what other important facts the doctors forgot to mention? I appreciate all the help I get here:)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 2/20/2008 9:25 AM (GMT -7)   
Hmmmm...I drink Fresca and it is a grapefruit soda!  I didn't know about that.  Thanks, Jeannie!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 2/28/2008 8:45 PM (GMT -7)   
ceebee,
I know you want off the pred but you need to go slower then you are talking about. Once you get to 5mg's you really need to do 4 for a week 3... etc. Also at least tell your doctor you are doing this even if you don't plan on asking his opinion. Adrenal insufficiency is very dangerous and even more so if you have diabetes.
Please be careful.

ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
   Posted 2/29/2008 1:34 AM (GMT -7)   
Thanks sjkly:)
Maybe that is why I have so much trouble staying off the pred. The doctors I have take me off too fast and I end up in hospital and on pred again. I am on 2 10mg right now. The new lung doc gave me only 30 5mg's to wean off. Went to my internest and got a bottle of 100 10mg. So. I should go to 1 and a half for 1 week, the one for 1 week and one half for 1 week? They don't say how to take them, just to wean off and come back in a month. When I dropped from 2 10mg to 1 10mg, I had trouble. I went back to the 2 10mg. I feel like I am on my own here. Where are all the good doctors?? Thanks for the concern and help:)

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 2/29/2008 11:51 AM (GMT -7)   
Ceebee, are the 5 mg tablets scored so that you can cut them in half?  If so, I'd take one 10 mg tablet and 1/2 of a five mg tablet.  (That would be equivilent to 12 1/2 mg.)  See if that works.  If it does, then drop down to the 10 mg tablets.  After that take a 5 mg and 1/2 of another 5 mg.  (That would be equivelent to 7 1/2 mg.)  Then progress to one 5 mg tablet and lastly down to 1/2 of a five mg tablet. See what I mean?  If you are concerned, call you doctor and ask how you should wean yourself off.  You need instructions.  Besides, Ceebee, that's what you are paying them for...advice!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
   Posted 2/29/2008 1:30 PM (GMT -7)   
Thanks Sherrine:)
I printed your advice and will try it the slower way you suggest. Going from 2 10mg to 1mg just doesn't work as I have been on 2 for over 3 months. I have a pill cutter that works really good.
Now, I have to see a heart doctor for a stress test and work up. That's it, all of my body is falling apart!LOL There is nothing that works right by itself. Getting older is not for wimps. Plus, the fibro fog makes everything just a bit harder:)
I have lost another 5 pounds in the two weeks since I have seen my internest. I am not trying to lose, it just goes with the low carb diet and not much exercise as my fibro and MPS are trying to kill me off! Does the weight just keep going and going by just eating right? My bg is staying steady at around 90 but I have to eat when not hungry to stay there at times. Too much meds? The more weight I lose, the more I have to eat. Plus getting off pred will make it harder to keep up. I have been getting lows so tried a piece of bread and it raises me to 200! Bread, milk and fruit are still very bad for me. Any ideas on what would bring the bg up just a bit and stay there? Thanks:)

tutorgirl
Regular Member


Date Joined Aug 2007
Total Posts : 235
   Posted 3/1/2008 8:20 AM (GMT -7)   
Ceebee, A very belated "Way to go, girl!" You are really doing an awesome job. I am needing inspiration to get back on track and this is wonderful inspiration. You keep up the good work.
===================
>Karen<
~Forum Moderator/Diabetes~


ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
   Posted 3/2/2008 1:05 AM (GMT -7)   
Thanks tutorgirl:)
I was disappointed the A1c wasn't lower but I am working on getting into the 5's! I couldn't have done it without the help from everyone here. The diet the hospital sent me home with almost killed me. I can't eat any fruit. wheat or milk products( cheese is okay though) or my bg rises high and fast. Don't know why cheese is okay and a cup of milk is so bad? I can eat Greek style yogurt also. Yummy:) You will get back on track. Eating this way takes a lot of time and effort and I never took that time for me before. Now, I have to and I do tell people no sometimes now where my time is concerned. With it being your job, you can't do that. Just think, "I come first" and take that time to get your menu and foods ready You are an inspiration to me. Take care:)
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