I have Minimal Change Disease. Check out http://www.nephcure.org/NephSpace.html
I am also Beth75 on there as well. MCD is really a tough disease. If you read my profile on there you will see my story about
MCD. For the swelling, I take fursomide 20mg every day, it helps some and I 'try' to watch my salt. You can see my meds I take below.
Probably best to contact me through the Nephcure website regarding MCD, you can put up messages and there is already a lot of posts you can look through there. I look forward to hearing from you. There is not much info out there about
this disease and it is scary.
All my best,
Beth, 32 ~ Major Flare Sept/Oct 07 ~ in remission
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 20mg 1xday (taper 5mg a week from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalpril 10mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your protiens!
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.
Post Edited (Beth75) : 4/9/2008 11:39:44 AM (GMT-6)