Help for a friend's daughter??

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New Member

Date Joined Aug 2004
Total Posts : 13
   Posted 5/14/2008 6:28 PM (GMT -6)   
I normally post on another forum (Crohns) so know how helpful everyone can be.  I'm hoping someone can give us some advice.  I may not have all of the correct vocabulary for diabetes - forgive my errors, please!
confused My dear friend has a 14 year old daughter with very fragile diabetes.  Her blood sugar often elevates to close to 1000 - surprisingly, she remains otherwise generally healthy, although has recently been diagnosed with rheumatoid arthritis as well.  The specialists (endos?) have been unable to find out why they simply cannot control her insulin levels.  She is currently being kept in a picu to record "clinical data" so if they can find a long term care facility that specializes in juveniles with such a fragile status, they will have data to send them.  This brings me to my question:
Other than the Cleveland Clinic in Ohio, does anyone know of a long term care facility that specializes in juveniles with such sever issues with their diabetes? The doctors are suggesting that my friend's daughter be sent to one of these facilities for a month or two to see if they can find a way to regulate her.  FYI, she has already been on an insulin pump - even that cannot keep her regulated, sad to say... now Mom just wants to find someone who will admit they just don't know what else to do or has some other suggestions -
I'll check back later for responses....
Thank you all so very much -

Veteran Member

Date Joined Apr 2004
Total Posts : 6056
   Posted 5/14/2008 10:50 PM (GMT -6)   
Can't offer anything but prayers for this one.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

Pin Cushion
Regular Member

Date Joined Feb 2003
Total Posts : 442
   Posted 5/15/2008 1:54 AM (GMT -6)   
Wow she is a walking coma! my first question is does she take any kind of steriod, prednazone or big antibiotics? Lots of meds out there that can send blood sugars through the roof. Don't take it for granted that they have checked that alot of docs forget that, It happened to me once. I was being yelled at a doc for not taking care of myself or was sure I was cheating on my diet until my GI was testing me for something else and realized I was was heavy dose of pred. And the same doc that was yelling at me was the bozo that had me on it.
Can't help ya on the clinic I am on the Oregon coast.
Moderator for the Diabetes forum
Sigmoid Colostomy / Crohns / Type 1 Diabetic / Ostioarthritus / Fibromyalgia / Asthma / High Blood Pressure / High Colesterol / Migraines. Ain't life a joy?

* I think it may be time for a colorful metaphor*

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