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analex
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 10/1/2008 11:43 PM (GMT -7)   
:-)  Hi everyone
 I am 37 years old and have had type 2 diabetes for 13 years now. I originally had gestational diabetes with the birth of my second child. My diabetes was under control for the first 11 years and then I was diagnosed with rheumatoid arthritis and had to be put on prednisone, which I took for 2 years and was on a very high dose. For those of you familiar with prednisone, it wreaks havoc on your blood sugars and it certainly did on mine. I went from controlling my sugars with just diet and excercise before prednisone, to using janumet which nearly killed me as I was in the hospital for 6 days due to lactic acidosis from the med and my out of control sugars. At that point I was put on insulin in the hopes that it would control my sugars better. My sugars were routinely in the 300-500 range no matter what I did. It got to the point where I was afraid to eat. I am now taking Lantus twice daily and a sliding scale of Novolog. I check my blood sugars about 4-6 times a day. My lantus and Novolog are gradually increased, depending on how my blood sugars are. Life  has gone on like this for the past 7 months, it's been hell, but somewhat tolerable. about a month ago, my rheumatoid docs felt that I could no longer continue on prednisone, that the doses I was taking were too high and were doing more harm then good to my overall health. So within a month, I was off prednisone completely.I have been off prednisone completely for 3 weeks. Since that time, I have had CONSTANT nausea (no vomiting), diarrhea, loss of appetite, weight loss, and peeling skin on my fingers and toes. My blood sugars are out of control, I will check and it'll be 240, I'll take my insulins, check about an hour or 2 later, and blood sugar is 320 or something like that. Completely unpredictable. Never been like that before. I feel like the insulin is no use and I might as well be injecting myself with water. I am currently taking 60 units of Lantus in am and 50 in pm and sliding scale of Novolog. I recently saw my doctor 2 days ago and he feels I have gastroparesis and I have been put on Reglan. I would appreciate any advice from anyone out there with this illness and also anyone who is taking Reglan. I also posted a note on the GERD/Reflux site as well. I am feeling very overwhelmed with all of this and have just been hit with one thing after another for the last 2 years. Any advice is appreciated. Thanks for your time... Anne 

ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
   Posted 10/2/2008 6:32 AM (GMT -7)   
I have been on huge doses of pred and still trying to get off. I am on much lower dose now. The pred lingers in the body for a while. Give it time to get out of your body and see how the blood sugar tests. I was up in the 800's before being diagnosed and now keep 70's to 100. I have reflux but take Prevacid. Hang in there, things will get better:)

analex
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 10/2/2008 6:51 AM (GMT -7)   
Thank you for your words of encouragement. I hated prednisone while I was on it, but I'm not sure I like being off it either, if that makes sense. I am having alot more pain and inflammation now that I'm not taking it anymore, but it was causing me so many more health problems. The bloat in my face and swelling in my legs and feet are finally starting to go down. My PCP feels that my rheumatologist tapered me off the prednisone too quickly and that's why I'm having some of the problems I'm having now. He said that may have even caused the gastroparesis. I'm looking all over the web for info on a link between discontinuing pred. too quickly and gastroparesis, but haven't found much literature on it. You said you are still trying to get off of it, how quickly are you tapering down?

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 10/2/2008 10:29 AM (GMT -7)   
Analex,
The peeling fingers and toes can result from a strep infection that you had about 2 weeks ago. You may not even have known you had it as your body fought it off but it would spike your sugars and cause the peeling. This is just conjecture on my part but my daughter has recurrent strep infections and always knows she had it for sure when the peeling starts.

I'm not seeing any mention of your food plan or exercise here. Also, are you working full time? Stress levels? A lot of this stuff affects blood glucose as well so fill us in and maybe we can shed some light on the situation, ok?
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


analex
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 10/2/2008 10:53 AM (GMT -7)   
Hi
It's funny you mention strep infection, because my daughter is currently getting over one. I however, did not have a very bad sore throat or anything, only a slight sore throat that I attributed to the change of season (we live in CT). I was in ER last week due to high blood sugar and alot of blood work was done. I just got a call today from that ER that some of my cultures came back and show that I have a UTI, which I was not complaining of either and did not know I had. I am to start ampicillin today. As for my food plan, it's whatever I can tolerate eating right now because of the nausea. Mostly farina, soups (like chicken and rice or vegetable or beef barley) sometimes wheat toast or sandwich with tuna or turkey. Honestly, very bland, boring stuff. Due to my arthritis, excercise is difficult. I do walk several times a week. Usually in the early evening since mornings my limbs are too stiff from arthritis. I am currently out of work and looking for a part time job. I am the mother of a 15 year old boy and 13 year old girl and I have a wonderful, loving, supportive, fiance. But, my life is stressful. Mostly, I am stressed about my health. 2 years ago, I was fine and now I have the med list of an 80 year old. It's depressing. It seems like once I tackle one problem, another is right there. Earlier this year I was also dealing with an aggressive basal cell carcinoma and had to have 3 surgical excisions to my back. I do use meditation and positive imagery, read self help books and focus on family and friends.

ceebee
Regular Member


Date Joined Dec 2006
Total Posts : 401
   Posted 10/2/2008 11:08 AM (GMT -7)   
My doctor kept putting me on and off pred every month. It almost killed me. Ended up in the hospital every month for a week and he just kept doing it over and over. Plus, the doctor would put me on insulin while in hospital and send me home with no meds and no mention of diabetes. I changed doctors and am weaning off slowly. I am on 10mg right now and will go to 7.5 for two weeks, the 5 for two weeks and so on. Then I have to get tested to see if my adrenal gland has been affected. If I can get off, I will not go on it ever again. Going off too fast can cause death if a person has been on it for long periods of time. It also caused the diabetes. I do not trust doctors as much and question all they do now. I know my body better than the doctors do. I prefer the constant, severe pain to being killed slowly by the pred. I will work with the doctor with alternative treatment but never pred again. Give your body some time to adjust and just take good care of yourself. Right now you need to put yourself first. Good luck:)

analex
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 10/2/2008 11:22 AM (GMT -7)   
Thank you for your kind words.
I know what you mean about being willing to deal with the pain rather than go back on the meds. That's pretty much how I feel, too. The prednisone was too scary and 2 years is much too long. I feel like the prednisone has affected my health in ways that it may never fully recover and that upsets me. But, I am just taking one day at a time and trying to deal as best as I can. I have never been on one of these forums before, and figured a little give and take of supportive communication was what I need the most right now. I, too, have lost faith in all of my doctors save 1. It's sad, but I was able to post under several different illness forums on this website. I hope for you that you find what you need as well. I am really considering going the alternative medicine route now as well.

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 10/2/2008 6:27 PM (GMT -7)   
Analex,
You may want to look into a low carbohydrate food plan and eliminate your breads, cereals and all grain based foods for a bit. Switch over to more veggies (a LOT more!), a few fruits (not juices), plenty of good protein that you enjoy and some healthy fats like nuts of all kinds, avocados, olives and olive oil. This food plan will naturally lower your blood glucose while giving your body what it needs and craves. It will help lower your cholesterol and lower your inflammation rate as well.

I found that doing this low starch food plan made me feel better and when I mentioned this to my doc she explained that carbs feed into inflammation and actually make my arthritis worse. Worth a try, huh?
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


analex
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 10/2/2008 6:50 PM (GMT -7)   
That sounds worth a try to me. I like alot of those foods you mentioned and would have no problem eating them. Eggs are ok, right? I hope so, cause I like eggs, egg whites, anything that has to do with eggs. I'm going food shopping this weekend, so I will look into things. Also, this time of year always makes me feel more like cooking and trying different recipes and stuff. Thanks so much for the advice. smilewinkgrin

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 5406
   Posted 10/2/2008 7:59 PM (GMT -7)   
Analex, you've been through a lot!  The diet that Jeannie is talking about is actually simple because it's based on lots of vegetables and protein.  The hardest part might be avoiding bread (and crackers, bagels, muffins, etc.), cereal, potatoes and rice.  Those are laden with carbohydrates and it's the carbs that will raise your blood sugar.  Vegetables have carbs too but not in the concentrated amounts that all the "white" food does.  Fats, oils, eggs and nuts are fine.  Some dairy like yogurt (unsweetened), cream cheese, other cheeses and cream (for coffee or cooking) are fine, too.  Sometimes whole grain or whole berry bread will be ok if you eat one slice.  Since our metabolism is all different from others, the bottom line is to test your blood sugar after eating a meal to see how your own body reacts.  Bell peppers, mushrooms, asparagus, zucchini, cauliflower, broccoli, spinach, eggplant, green beans give us a great variety for our meals, and salad food like lettuce, spinach, cucumbers, radishes, celery, too.  If you're not a vegetarian, then any meat, fish or poultry is fine.  Good luck with everything and come back and ask questions!  wink



Lanie
forum moderator - diabetes
diabetes controlled so far by low/no carb diet and exercise; no meds

Post Edited (LanieG) : 10/2/2008 9:02:11 PM (GMT-6)


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 10/3/2008 8:41 AM (GMT -7)   
Analex,
I'll try to make this easier for you. It's called the nothing white but cauliflower (and cottage cheese!) food plan. Simply stated we don't consume any grains or grain based foods except oatmeal in the beginning. We avoid potatoes and products made from them. This plan eliminates pasta, baked goods, snack foods, crackers, breads, buns, cookies, cakes, pastries, anything made with flour, rice, wheat, etc. Because past consumption of these foods has been saved as fat in our bodies we use that stored fat for energy instead of the present day carbohydrates and sugars. Diabetes has been theorized as the body's defense mechanism against famine using fat storage to get us thru the rough times. Since we don't encounter famine, we need to sort of simulate it by eliminating carbs and living off of our "savings account".

Now this is not so difficult. When I go to McDonalds I have a double cheeseburger or 2 mcChickens and toss the buns. The mayo and ketchup and stuff on these little protein meat bundles is ok. Just don't eat the buns. Get a side salad and you're good to go! Plant fats like olives, olive oil, avocados, mayonnaise, and nuts are fine in moderation. These fats slow stomach emptying time and make us feel satisfied. Adding them to our protiens and veggies enhances the flavors and helps absorb vitamins.

Fruits in moderation and no juices because they are waaaay high in sugar content. Whole fresh fruits have each cell full of goodness surrounded by a cell wall (Fiber!) and this is more difficult for the body to break down and access. Because of this, whole fruit acts like a time release food, slowly letting go of it's nutrition as it passes through the intestinal tract. And some of the whole fruit, if not chewed well, will exit undigested. This is a bonus because although we feel full eating it, we don't get so many fruit carbs.

Veggies of all kinds are wonderful for us. Adding a little pat of real butter will enhance vitamin absorption and really kick up the flavor. I also like to add things like garlic to my beans, cinnamon to my squash, stuff like that. I also like to sauté or grill veggies in olive oil and garlic. Yum.

Read back in the posts and you will find all kinds of good ideas for this food plan. Following this I was able to get off my Lantus and Avandia and now only take Metformin. Your mileage may vary. turn
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

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