Medication Rollercoaster

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uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 5/13/2009 8:57 PM (GMT -7)   
 
Hello,
I haven't been here in a while but I should have stayed...I have been on a Diabetic Rollercoaster!! Let me fill u all in..I was diagnosed Type 2 on March 16, 2009.  Dr. started me on Metformin 500 mg. a day. eventually increased to 2000 mg. a day. My levels were in the upper 100's to mid 200's.  then I started having stomach trouble so he switched me to Metformin ER 1000 mg. at night.  Then my levels shot through the roof...all of a sudden. it went up to 414...never had been that high before.  Consistently in the mid to upper 200's all the way to upper 300's.  Nothing had changed, so he put me on Glimepiride 1mg. a day...Blood sugar was still very high and I started having bad dizzy spells at night and in the morning. I was still taking Metformin ER with this...then he switched me to Glipizide 5mg. 2 in the morning plus Metformin ER 1000mg at night.  I tell you what, I am not taking this medication well.  I already take Lisinopril HCTZ 10 mg. a day, Methadone 120 mg. a day, Oxycodone 15mg. 4 times a day and Prilosec.  My stomach is in turmoil...
 
My nurse tells me that maybe I should drop the pills and start taking Insulin...Maybe it would be better.  I am so sick of the pills and changing them every few weeks...My levels are still high...
 
Should I push for the Insulin?  I don't know much about it, but this is really wearing me out...
 
Help!!

 I hate Boats!!!!
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/15 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night
                                                                    

 


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 5/13/2009 11:45 PM (GMT -7)   
I was on insulin and managed to get my weight down a bit with it and went off it. Now it looks as though I'm going to go back on it. I get absolutely far better control with about 5 to 12 units of Lantus than I can ever get on my metformin alone. Also, the shots make me more conscious of my food choices...

Heck, unique.. I don't care if you have to do a rain dance in your underwear... you gotta get those numbers down. That's the most important thing.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 5/16/2009 12:39 PM (GMT -7)   
 
 
My numbers are driving me to drink!!! Literally, I wish I drank so I could forget about being diabetic for one day...Not really, But I am so frustrated with this....My levels have only been low 2 times since March 09...One time it was 90 and I felt so bad, then it was 69 and I thought I was gonna pass out.
 
Since early on my "normal" is around 180...I know, that's still too high...I eat better, I take my meds, I check my levels at least 3 times a day...What more can I do?
 
Could it be that I am one of the people that "Needs" to be on Insulin???
 
Rhonda

 I hate Boats!!!!
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/15 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night
                                                                    

 


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 5/17/2009 2:55 AM (GMT -7)   
Here I go putting my 2cents in.... I am also a diabetic. I take metformin 500mg a day since Sept. 26th, 2007. Then one day just recently...oops... I found out the pharmacy upped my Metformin to 750mg once a day. Yes I called the dr right away.
 
I recently heard about this doctor that put this lady on  insulin and it made her sick all the time. Her doctor told her she was a diabetic. 5 months later she went to this other doctor and ask him/her about her being a diabetic. There were tests done and now she and hubby are sueing her old dr. because of the Big Mistake he did to her and telling her she was a diabetic when she was Not.
 
Hara

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 5/17/2009 10:03 PM (GMT -7)   
Rhonda,
Insulin is not the big deal it used to be and if you're on Lantus it's made from cloned human insulin so it's just about the most natural thing you can put in your body. Give it a try if the doc wants you to. It really works very well at bringing the numbers in line and you may be like me, more careful and then able to lower your dosage until you go off it.

If you're like me, a bit on the roly-poly side, I found the best place to put my shots was in the fat pads on my hips. Hardly any pain sensation there and much easier than my tummy. Good luck with this.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Rob G
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/18/2009 5:29 AM (GMT -7)   
Hi Rhonda, The Diabetic Rollercoaster!!!!

I share some of your issues. I was diagnosed with type ll three years ago and initially was on 1 x 500mg Metformin daily....... a bit of weight went on (unwelcome!) but BSL's were fine and I basically ignored the problem until last year when my numbers crept up a bit.. Doc doubled Metformin to 1000mg and since then chaos ensued!! weight went up again.... (very unwelcome!!) BSL numbers went up too... bugger!! So the Doc changed me to Diamicron... weight went on again and my stomach didn't like the Diamicron either!, but I hung on in there!! then because of my weight increase my BSL levels increased again and the Doc doubled the Diamicron........ more weight and I started suffering from severe reflux, didn't initially recognise the link with Diamicron, and changed meds for reflux (ongoing problem for 10 plus years, I suffer from Barretts Oesophagus (pre cancer cells in gullet caused by recurrent reflux) without any success!! Plus my BP started to go up (on Norvasc 10mg and Avapro 300mg already) so Doc doubled the Avapro dosage without much success.....
after eventually realising the link with Diamicron, Doc swapped me back to Metformin......... weight increased again! still having reflux and also crap BSL readings..... So Doc tried Januvia........... couldn't tolerate the even worse reflux, although weight dropped a little.......... Back to Metformin but as the extended version (Diabex XR)@2000 mg a day taken at night......... even worse BSL readings though no reflux (thank goodness!!) A Gastroscopy confirmed more pre cancer cells in the gullet so I was sent off to an Endo......... He was horrified at the BSL numbers and hauled me off into Hospital for a week and started me on 5mcg Byetta, a twice daily injection (not insulin)... He hoped that as this med was not an oral med we could avoid the reflux issue! WOW!!! what a difference that made, My numbers halved within 24 hours............. no reflux............... BP started to settle down I felt better after 2 days!! Now, I am taking 1500mg of Diabex XR at my evening meal after the Byetta shot and my BSL numbers are pretty near normal most of the time!! Byetta also appears to be responsible for my weight coming down, 2.5 kilos in a week, its expensive because its not covered by our public medical cover here in Australia which means paying privately....... but what the heck ITS WORKING!!!!!
Don't know much about insulin, but maybe you should research Byetta on the net before going the insulin route!! The Endo will up me to 10mcg after a month on 5mcg and then I can expect to reduce the Diabex!! I have heard that some ppl suffer side effects from Byetta but I've been lucky in that a slight evening headache is the extent of it for me, and that beats the horrible headaches that I got before the BSL's started to come down!!
So in summary, Metformin dosage increase....> weight gain.......> stomach problems....> increased BSL readings.....> change meds .......> back to the start!!! Diabetic Rollercoaster!!!

I really hope my experience may be of some help to your decision making Rhonda..... best of Luck!!


Rob
 
Diabetes...........  5mcg Byetta am and pm, 1500 Metformin ER at evening meal.
BP.....................  Norvasc 10 mg, Avapro 300mg am and pm.
Baretts oesophagus (acid reflux) Zoton 30 mg am and pm.
 
WHEN THE GOING GETS TOUGH....... THE TOUGH GET GOING!!

Post Edited (Rob G) : 5/18/2009 6:40:03 AM (GMT-6)


LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 5408
   Posted 5/18/2009 6:28 AM (GMT -7)   
Hi Rhonda, you're not alone on this rollercoaster.  It seems there are other members here dealing with the same thing.  Some factors are similar and others are not.  It seems medication is not tolerated the same way in different people, so it may take awhile for the doctors to find the right combination of meds to work with a particular patient.  Sometimes it takes awhile for meds to work efficiently, too.  And then there's the original diagnosis - maybe the patient is really a type 1 or 1.5.  Sometimes insulin is the only med that really works.  I'm sure it's frustrating to go through all this.  You know that the bottom line is blood sugar control, though.  The only suggestion I have is to be sure to follow the guidelines for the meds.  Some should be taken with food, some not, some give stomach upset depending on what kind of food you eat, etc.  Besides following those instructions for the meds, you can help your body deal with the diabetes by following a lower-carb diet, smaller meals (rather than 3 large or 2 large ones a day) throughout the day, and some sort of regular sustained exercise like walking.  Good luck and keep posting because there are always other members who can help.
:-)
Lanie
forum moderator - diabetes
diabetes controlled so far by low/no carb diet and exercise; no meds


Crone2003
New Member


Date Joined Aug 2009
Total Posts : 12
   Posted 8/19/2009 6:21 PM (GMT -7)   
My numbers are crazy due to the prednisone I take. I have only had one good fasting reading in well over a month. All of my other numbers have been 199 to 560. I can't get off the prednisone but can't get my blood sugars regular either. I'll be glad when the doctors can get this all figured out. I shouldn't complain I guess. I'm feeling better than I was 5 months ago. It's just so frustrating.

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 8/30/2009 11:13 AM (GMT -7)   
 
 
Once again, shame on me... I haven't been here because I usually am on the CP forum..but I think my Diabetes is the main concern...I did go on Lantus...started very low and am now at 35 units at night along with Metformin Er, Glipizide, and a bunch of others...including the Lisinopril HCTZ...
 
I know, everyone is telling me that the HBP meds will increase my blood sugars but it's the only thing that has helped.  I am still having trouble with the levels but that's because I'm not really following a diet...kinda sticking my head in the sand...
 
but no more....I need support!!!  I have a 16 yr. old son who is a bit overweight and it scares me... so far he's ok, but I know that could change anytime.
 
What I need is strength... I hate the food that I should eat so I know that I'm not helping myself.... Help....
 
Me.
 
 

I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 

VIEW IMAGE


LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 5408
   Posted 8/30/2009 12:51 PM (GMT -7)   

Rhonda, you have all the support you need here, but in the end you are the only person who can control what you eat.  You have a teenaged son, and I know you are concerned about his health as well as your own (because you do want to be there for him for many more years, I'm sure.)  Only you can control your diet and you've been around here for a long time and I'm sure you have read all the threads about food, so you do know what you should be eating and more importantly what you should NOT be eating.  We cannot give you motivation but we can give you inspiration here, and I'm sure you've read our posts about how we have been able to bring down the blood sugar by diet and exercise.  By following the guidelines we've talked about, everyone can get better blood sugar numbers even if they're type 1 or 2, on insulin or other meds, combos or not.  Your motivation must come from within.  You want to be healthy for many years to come and you want to enjoy your family during those years - this should be your daily motivation.  If you put off starting on a better diet or better lifestyle until tomorrow or next week, you are not helping yourself or your son. 

Your meds should always be evaluated and re-evaluated when necessary by your doctor.  If your case is complicated, then see an endocrinologist if you're not already seeing one.  Maybe you are not type 2.  Ask more questions of your doctor if you're still having trouble controlling the blood sugar.  There has to be a reason, so try to find out.

I don't know how or why you say you hate the food you should eat.  I supposed that's a personal preference but for me there's nothing to hate about meat, chicken, fish, shrimp, cheese, eggs, butter, cream, salads, spinach, zucchini, bell peppers, eggplant, mushrooms, asparagus, broccoli, cauliflower, nuts, some berries....  Get a grip on yourself, at least for your son.  Start keeping a journal of what you eat and your blood sugar readings.  Get outside and walk (if you can do this) and take your son with you.  Lift dumbbells.  In short, just do it!  And you CAN.  If I have been able to turn my health around, so can you!  Now, get onto the right track, ok?

smurf
Lanie
forum moderator - diabetes
diabetes controlled so far by low/no carb diet and exercise; no meds
                                                                 


loverain
Regular Member


Date Joined Apr 2009
Total Posts : 218
   Posted 8/30/2009 4:18 PM (GMT -7)   
Lanie, you make the foods we can eat sound so delicious! When I first started low carb I thought I would have to eat awful bland food...but, in fact, there are so many good foods we can eat. I don't feel I'm missing out on anything at all. I really don't miss the heavy cakes and cookies anymore. I missed the potatoes for awhile, but I think I almost over that. I do still wish I could eat biscuits or garlic toast and yeasty rolls, but I know I'm going to get over that. I want to keep all my little piggies right on my feet and I want to keep the feet they're attatched to if it's in my power to do it. I'm not so afraid of being pre diabetic like I was when I first found out. I will get through this and I will love my life and live it to the best of my ability! Thanks for all your support and thanks to everyone on this forum. I'm learning more every day.
Joni

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 5408
   Posted 8/30/2009 7:56 PM (GMT -7)   

Joni, we never know what we'll have to face in the future and sometimes it's a lot easier to close our eyes and pretend things are different.  I was in denial for several months after I got my monitor and told I had to check my blood sugar.  But now I realize that I do indeed have the possibility of being full-fledged diabetic (like my mom and grandma were) and I've done pretty well controlling it, even to my doctor's surprise.  I also thought there was NO way I could or would be able to change my eating or lifestyle because it just wasn't "me" but I've learned so much since then and since being involved here on the forum!  And when people like you wander in here and find out we really can have a normal life and can talk with others just like ourselves, it makes it all worthwhile!  :-)   I also want to keep my little piggies!  I don't miss the cakes or even the potatoes.  Sometimes I miss the bread and I've eaten snatches here and there but I also choose very very carefully when I do indulge.  It's not on a regular basis and it's not even every week, more like every couple of months.  In the end, though, it's the blood sugar that counts and I'm doing it for me and to be here for my future grandkids. Thanks for your support, too, because you are also what makes this forum work! 

  yeah


Lanie
forum moderator - diabetes
diabetes controlled so far by low/no carb diet and exercise; no meds
                                                                 

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