Exasperated (started by BIG E / moved by TVEditor)

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TVEditor
Regular Member


Date Joined Aug 2008
Total Posts : 481
   Posted 11/22/2009 9:26 AM (GMT -7)   
(Since this wasn't directed at anyone in particular, I made a new thread for you)


I've been on this board now for a few weeks, and I now want a chance to sound off.
While this is not directed at anyone or anything - I'm getting quite exasperated at reading these posts and hearing of each person's complaining about their side effects of various diabetic and diabetic related medications and their difficulty in living with it.

We ALL have diabetes -whether it was caused by our own poor eating habits earlier in life or it is caused by family histories.

Each of us has a different degree of severity, and we react differently to different medications.

I am a type 2, age 60, who has had this for 10 years.

I've been a lifelong victim of underactive thyroid and high blood pressure - and am on levoxyl, cozaar, toprol, metformin and take aspirin - and had a stent put in me also about 10 years ago.

My basic philosophy regarding the diabetes is this

diabetes ----> limb loss+sight loss----->death

If you don't keep your diabetic condition under control - the next risk is limb loss+sight loss before death.

So I would rather do the preventive measures as uncomfortable as they are (regular exercising - diet control by restricting TYPES of FOODS) and living with the side effects of medications I've been given by my doctors.

I have a tread mill I'm on twice a week for an hour - when I'm not doing that - I'm cleaning house, cleaning the yard, doing laundry etc - but I'm DOING SOMETHING PHYSICAL to give my body exercise.
I'm a CPA - so the winter time I'm the most vulnerable - I recognize that and attempt to reduce my physically stagnant time as short as possible.

I fully recognize that it's not that easy for everyone to follow the same routine, and every diabetic is going to have a different effect from what I described above. Some victims these preventive measures unfortunately won't help has much. I'm aware of that too. There's no majic fool-proof formula for everyone.

But to continually come here and read of each and every discomfort associated with being a diabetic victim is very disheartening.

Would you rather not take these medications, not have the side effects, but increase your chances of disasterous diabetic effects?

Post Edited (TVEditor) : 11/22/2009 6:08:33 PM (GMT-7)


TVEditor
Regular Member


Date Joined Aug 2008
Total Posts : 481
   Posted 11/22/2009 9:37 AM (GMT -7)   
I think most of the people that come here have already made up their minds to take positive steps toward controlling their diabetes and perhaps need a bit of a push to see it through. Also, there are times when symptoms or reactions to meds might be alarming and just knowing that someone else has been or is going through similar events can be reassuring. I know from personal experience that this is true.

I can only think of one occasion during the last 16 months where a person dropped in here and refused to accept the 'unfairness' of the disease, treatments and lifestyle modifications required. That person left and never came back. We all felt sorry about that but everyone did their best to help.

Plus, this forum makes a good place to let off a little steam once in a while don't it? wink
Chris - Forum Moderator, Diabetes

~ Diagnosed Type 2 in July 2008 ~ Dropped 53 or so pounds after following HealingWell advice ~
~ Diabetes under control / no meds - so far - knock on head

I used to eat 100% wrong -- now I eat 95% right


loverain
Regular Member


Date Joined Apr 2009
Total Posts : 218
   Posted 11/22/2009 12:20 PM (GMT -7)   
Chris,

You are so right...this is a great place to vent and let off a little steam. It's also a great place to learn from others and to, hopefully, help others along the way. I'm pre diabetic and am controlling my glucose levels through diet and exercise. I'm seeing better numbers and I attribute it all to you and the many other helpful souls in this place. I'm so glad I found this forum! I accept my condition and I also accept responsibility in taking care of my health...I don't consider myself a "diabetic victim" but a woman with pre diabetes who is working hard to keep from becoming full blown diabetic. Sometimes I do get mad at the whole diabetic thing...after all...I'm only human. Sometimes getting mad makes me try even harder to eat right, sleep right and exercise right! I want to take this opportunity to thank all of you who come to this place and share your experiences with diet, exercise, etc. and help me and others so very much. I hope I can be of help to others.

Joni

TVEditor
Regular Member


Date Joined Aug 2008
Total Posts : 481
   Posted 11/22/2009 6:09 PM (GMT -7)   
Couldn't have said it better myself Joni :-)

Keep up the good work!
Chris - Forum Moderator, Diabetes

~ Diagnosed Type 2 in July 2008 ~ Dropped 53 or so pounds after following HealingWell advice ~
~ Diabetes under control / no meds - so far - knock on head

I used to eat 100% wrong -- now I eat 95% right


LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 5403
   Posted 11/28/2009 9:40 AM (GMT -7)   
Ed, this is a support forum for many illnesses and conditions and, yes, we do rejoice when someone has good news.  Sarcasm doesn't have a place here, sorry.
Lanie
 
forum moderator - diabetes
diabetes controlled so far by exercise and a low/no carb diet


TVEditor
Regular Member


Date Joined Aug 2008
Total Posts : 481
   Posted 11/28/2009 9:42 AM (GMT -7)   
Consider yourself rejoiced smilewinkgrin
Chris - Forum Moderator, Diabetes

~ Diagnosed Type 2 in July 2008 ~ Dropped 53 or so pounds after following HealingWell advice ~
~ Diabetes under control / no meds - so far - knock on head

I used to eat 100% wrong -- now I eat 95% right


TVEditor
Regular Member


Date Joined Aug 2008
Total Posts : 481
   Posted 11/28/2009 11:18 AM (GMT -7)   
Your last line looked a little sarcastic ("since that seems to be the norm on this board. So you could all rejoice.")
Chris - Forum Moderator, Diabetes

~ Diagnosed Type 2 in July 2008 ~ Dropped 53 or so pounds after following HealingWell advice ~
~ Diabetes under control / no meds - so far - knock on head

I used to eat 100% wrong -- now I eat 95% right


Phishbowl
Veteran Member


Date Joined May 2006
Total Posts : 547
   Posted 12/4/2009 7:47 PM (GMT -7)   
Hi BigE!
Diabetes sucks. It CAN be disheartening and yes, even more so when you might be looking for a different kind of encouragement. What might that be? You tell me :-)

I'd be happy to have encouraging, enlightening, and stimulating diabetes conversation on any subject you like... you start (I mean that sincerely - no sarcasm :-)

Cheers
Cheers,
- Phishbowl (Type 1 since Jan'05 - Levemir, NovoRapid)
"What's Not Measured Is Not Managed"

"It is impossible for a man to learn what he thinks he already knows"-Epictetus


LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 5403
   Posted Yesterday 10:09 AM (GMT -7)   
It would be wonderful to change eating habits in any place that contribute to any disease.  If you read the Administrator's statement in about Us (see it in the bar above) he says in part, ..."
about Us

"HealingWell.com is a thriving social network and support community for patients, caregivers, and families coping with the daily struggles of diseases, disorders and chronic illness. Our goal is simple....to help people on their way to "healing well". We offer health resources and social support tools to enable individual's to take control of their illness and start the healing process. ...

"... the site is headed by founder and editor, Peter Waite.  His vision was to build a site with global reach where people could reach out to others and find support and understanding in learning how to manage their health conditions." 

This forum is about support for those who have a disease, helping each other with the knowledge we've gained from our experience dealing with it, doctors and medications.   We can't always sit down and discuss these many concerns with our doctors in the limited time we have with them during appointments, but coming here to HealingWell gives us the opportunity to share what works for us and to ask questions of others. 

For the most part, the members here in Diabetes don't come to complain about their discomfort but to look for help, advice and support, just as the Administrator writes in his mission statement.  And I believe that's what we're doing. 


Lanie
 
forum moderator - diabetes
diabetes controlled so far by exercise and a low/no carb diet

Post Edited (LanieG) : 12/6/2009 10:13:49 AM (GMT-7)


Phishbowl
Veteran Member


Date Joined May 2006
Total Posts : 547
   Posted Yesterday 11:41 AM (GMT -7)   
"I recognize it's a long haul - it's a very unrealistic request - but just like the government did with the tobacco industry they can do with the food industry." - BigE

Realizing just how politically involved the food industry is with government (or visa versa), is what helps make this ideal unrealistic :-)

I do hear ya, though, and think at the very least, we can start with educating ourselves. In retrospect with what I know now about food, metabolism, how the body metabolizes all the things it needs... I knew very little before I was diagnosed. But, I was always eating very healthy, according to what the professionals/guidelines told me I needed. I just simply know better now - they're guidelines meant to accommodate everyone (and no one :-).

Somewhere along the line I stopped believing (after educating myself in various different areas), it was all about the numbers and started really believing it was all about me. NOt to sound arrogant; it was just logical thinking to me. It was in my best interest to learn everything I could about living with a chronic condition all my life. No doc/nurse was gonna do that for me so, it really was all up to me. Now if I could just apply that logic to quitting smoking :)

I think this forum is more about helping INDIVIDUALS come to grips with or share tips/tricks that might help us in our own personal situations. I certainly support some of the suggestions you made regarding "turning the tide" with education (school, media, etc.). but, it's gotta start with being educated ourselves first. Unfortunately, that is also a lot/ too much to ask of some folks. Just give me the pill and the bi-annual visit so I can validate I've done everything I'm told. The other stuff? Smacks of effort as my hubby would say - LOL. As for the doctors? Many are just following the pattern most patients set for them: "where's the 'script?" There are also a lot of organizations that formally exist to address some of your specific suggestions. That we can all become aware and even share some of the same ideals, especially at the global level, is also encouragement to support those ideals at the local level, where it's more possible.

Not sure how far back you've read on our board but, we can get into some pretty interesting discussions about food - especially how to cook things, like squirrel and such. (Had to mention it, Chris :-)
Cheers,
- Phishbowl (Type 1 since Jan'05 - Levemir, NovoRapid)
"What's Not Measured Is Not Managed"

"It is impossible for a man to learn what he thinks he already knows"-Epictetus


loverain
Regular Member


Date Joined Apr 2009
Total Posts : 218
   Posted Yesterday 3:11 PM (GMT -7)   
For starters...I'm a 63 year old woman who has been diagnosed as pre diabetic...I am not taking any meds...I am trying to keep my glucose levels as "normal" as possible by diet and exercise. I do not consider myself a victim of this condition in any way shape or form...I am a woman who is working hard not to develope full blown diabetes. Should I develope the disease of diabetes...I will be a female diabetic...not a diabetic victim.

I come to this wonderful forum to learn and to share. I have never come here looking for sympathy. I will come for understanding and help from someone who has "been there...done that." If someone does come here looking for sympathy... what is the harm in lending a shoulder to cry on a bit? We're all human and need to vent or seek comfort if we feel down.

I've been helped by the great people on this forum. I give sincere thanks to one and all. My husband and I come here to read...to share and to learn. We are grateful for this forum. I've lost weight and my glucose levels are lower since coming here...reading...sharing and learning.

Joni

TVEditor
Regular Member


Date Joined Aug 2008
Total Posts : 481
   Posted Today 5:50 AM (GMT -7)   
"If you don't like the doctor - go to a different one for a second opinion."
 
That easy huh?  Not where I live.
 
"But I don't feel that coming on this board so simply look for sympathy is the answer."
 
Maybe the word empathy would apply better?
 
I, for one, came here looking for education ... and found it.  Like Joni. I learned I could control my diabetes through diet and exercise alone.  OK, so that's 2 people.  There are a few others around here doing the same thing and telling everyone we know about the phenomenal benefits of doing so.
 
Think of it as a grassroots movement wink
 
 


Chris - Forum Moderator, Diabetes

~ Diagnosed Type 2 in July 2008 ~ Dropped 53 or so pounds after following HealingWell advice ~
~ Diabetes under control / no meds - so far - knock on head

I used to eat 100% wrong -- now I eat 95% right


TVEditor
Regular Member


Date Joined Aug 2008
Total Posts : 481
   Posted Today 6:25 AM (GMT -7)   
Editor's Note to Phish: "Now if I could just apply that logic to quitting smoking :)"

Yes, I know what you mean.  Maybe its just my paranoia but I think they put something in those things to keep us smoking?  ;-)  Oh well, another day, another attempt to quit.

"...we can get into some pretty interesting discussions about food - especially how to cook things, like squirrel and such. (Had to mention it, Chris :-)

NP Kris :)


Chris - Forum Moderator, Diabetes

~ Diagnosed Type 2 in July 2008 ~ Dropped 53 or so pounds after following HealingWell advice ~
~ Diabetes under control / no meds - so far - knock on head

I used to eat 100% wrong -- now I eat 95% right


LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 5403
   Posted Today 8:13 AM (GMT -7)   
This is a problem of perception and interpretation, I think.  Big E, you thought this Forum's existence was for other purposes.  This Forum is exactly as we have explained to you a few times, and I also included part of the Mission Statement from the Administrator.  Instead of trying to understand and accept this, you criticize us for not being what you want us to be.   It's a place for information and support, to share experiences and what works and what doesn't work.  We have learned a lot from one another.  We are many types of diabetics here, in different stages and conditions, severity or on the brink - but we're all concerned with our blood sugar and control and what our quality of life is and how to improve it.  We know how the diets of the last 50 or so years have wreaked havoc with much of the population and by educating ourselves, we're also educating our family and friends and even our doctors.  Sometimes we don't agree but we do respect the other person's ideas without attacking them.  ( And I have to point out that we very rarely see this.)   If this is not what you were looking for, then, yes, you need to go elsewhere.
Lanie
 
forum moderator - diabetes
diabetes controlled so far by exercise and a low/no carb diet


LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 5403
   Posted Today 8:14 AM (GMT -7)   
Chris, feel free to delete this thread is you want.  Nothing would be lost. 
Lanie
 
forum moderator - diabetes
diabetes controlled so far by exercise and a low/no carb diet


Phishbowl
Veteran Member


Date Joined May 2006
Total Posts : 547
   Posted Today 8:21 AM (GMT -7)   
Sorry you still feel the way you do, despite our attempts to show you otherwise, BigE. No one was being sarcastic, BTW. You've got some anger fuelling you and I hope you can put it to good use, (maybe seeking with purpose, some realization of your earlier suggestions of reform?). Good luck to you. Hope you find what you're looking for. My open invitation to discussion still stands, should you wish to return with a less aggressive attitude. I mean, c'mon, we ARE really about supporting each other here so, DO try to read our posts with that perspective.
Cheers,
- Phishbowl (Type 1 since Jan'05 - Levemir, NovoRapid)
"What's Not Measured Is Not Managed"

"It is impossible for a man to learn what he thinks he already knows"-Epictetus


TVEditor
Regular Member


Date Joined Aug 2008
Total Posts : 481
   Posted Today 8:26 AM (GMT -7)   
Well said Lanie, Kris and even me.
 
We tried rolleyes
Chris - Forum Moderator, Diabetes

~ Diagnosed Type 2 in July 2008 ~ Dropped 53 or so pounds after following HealingWell advice ~
~ Diabetes under control / no meds - so far - knock on head

I used to eat 100% wrong -- now I eat 95% right


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 12/8/2009 11:32 PM (GMT -7)   
E... it's a disease, not a sin.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

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