I've been searching up and down for a good diabetes forum on the internet where I can vent my frustrations. I don't know if this place counts, but I'm going to vent anyway.
I live in Ontario Canada. I've had type 1 diabetes since 1998. I'm 29 years old now. I've had 2 "specialists" since being diagnosed. Neither of them was worth spit.
The first man couldn't be bothered to explain or console a 23 year old guy who has just been told his lifestyle is about to radially change. He couldn't have cared less what was going on in my mind. He didn't even take the time to educate me -- he handed me a bunch of pamphlets instead. He was rude and unapologetic and a complete waste of time. What's more, he perscribed me -- a 23 year old male who has just moved out on his own -- 2 shots of combined insulin a day. I assume he'd never heard of MDI treatment? Did he expect that I was going to suddenly lead a senior sitizen's lifestyle right out of the gate? Was this moron thinking at all?
Ok. A year after that, I moved to a new town. I didn't have a G.P. and I didn't see an endocrinologist for many years during which my diabetes was mostly un-monitored. I didn't even own a proper glucometer for most of this time. Eventually, I get my act together (with the encouragement of my lovely fiance) and find get a referral to an endo through a local clinic (still no G.P.). From the first moment I'm introduced to the woman, I know right away that I've made a mistake. I indicated to her that I was in school and that I was very interested in insulin pump therapy as I believed it would cure many of the control problems that I'd been wrestling with. She would have nothing to do with it, and even chided me for puchasing a glucometer that (god for bid) recorded and downloaded my readings to my PC. She refused to look at any of my numbers unless they were HAND WRITTEN. She claimed that, unless I was hand writing them, that I was not "engaging my diseas". Understand, that I'm a technical person. I work with computers for a living (at the time, I was in school for computers and I've always had a thing for techology). If writing down numbers was her way of "engaging" thats fine, but what the hell does that have to do with me?
So, months later, I finally find a G.P. in my area. She's great. Young and forward thinking -- fresh out of med-shool. I tell her my dilema and she nods and indicates that she will refer me to the place she did her internship which has a very good diabetes clinic. I'd spoken to another type 1 who was using an insulin pump and she'd gone to the same clinic and was quite happy. So was I. That was in October.
I'm still waiting for my appointment. It was cancelled last week because the nurse who I was supposed to see called in sick. Now I have to wait until Feb. before I can get in. In the mean time, I've picked up some literature on insulin pump therapy and I'm in constant awe. I can't believe this was never suggested to me before. I don't understand how the ball got collectively dropped by pretty much every health-care professional I've seen.
Can you see my frustration? I'm not sure my words are getting it across properly. Incase you don't: AHHHHHH!!!!