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lookingforpeace15
Regular Member


Date Joined Apr 2011
Total Posts : 35
   Posted 12/5/2011 11:45 AM (GMT -7)   
hello everyone,
i don't have a diabetes diagnosis but i do have a history of elevated fasting glucose....pre-diabetes/pcos related, i believe. my doctor has brought up the idea of using victoza off label to help lose weight. i'm hoping to hear some feedback about any of your experiences with using this drug.
thank you!

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 3879
   Posted 12/5/2011 12:41 PM (GMT -7)   
I can't help you.  I don't know of any members here using that medication.  I do wonder about using a drug for off-label use though.
Lanie

diabetes moderator
diabetes type 2 controlled so far by diet and exercise
very low carb way of eating

lookingforpeace15
Regular Member


Date Joined Apr 2011
Total Posts : 35
   Posted 12/5/2011 12:48 PM (GMT -7)   
thanks for your response. the off-label thing is a bit different i agree but the more i read about it i'm surprised how often it's used, and safely at that. i'm figuring it's worth a try and was just looking for some feedback.

It's Genetic
Veteran Member


Date Joined Mar 2010
Total Posts : 1540
   Posted 12/5/2011 7:17 PM (GMT -7)   
Hi, Lookingforpeace15. In diabetics, the stomach does not produce adequate enzyme levels which break down disaccharides. Victoza supplies the missing enzyme and enables diabetic patients to prolong the time when damage to the nervous system can occur from high levels of glucose in the system.

It is true that Victoza will cause you to lose about 10 pounds or so, but you have the problem of using an enzyme that you already may be manufacturing in your stomach. I have no idea how adding the additional enzyme would affect your body's ability to manufacture the enzyme once you stop taking Victoza.

Are you seeing an internist or a general practitioner? My internist
recommended that I take Victoza which is very helpful. However,
her recommendation was within the parameters of the on-label uses for Victoza.

If it were I, I would go for a strong reduction of fat in my diet and
increase my exercise level than to resort to an off-label use of a drug like Victoza. Increase your intake of fresh water; cut out caffeine which causes appetite increase and sugar, as you already know. If you  go that route you will lose the weight and not have to worry about  medication designed specifically for diabetic, type II patients.

The decision is yours, of course. But I'd get another doctor's recommendation if you aren't seeing an internist.  If an internist
says, okay--maybe it's safe for short-term use.
 
(Victoza is injected into the abdomen within 1 hour of eating. Can you give yourself an injection?)

Have a Merry Christmas.

It's Genetic

Post Edited (It's Genetic) : 12/5/2011 6:27:54 PM (GMT-7)


lookingforpeace15
Regular Member


Date Joined Apr 2011
Total Posts : 35
   Posted 12/6/2011 5:00 PM (GMT -7)   
thanks, in genetic, for your thoughts. my endocrinologist is the one who's been talking to me about this so i do trust his judgment. i'm only planning on being on it for 3 months max...so we'll see. i've read a lot about how it suppresses appetite so it may be a good jumping off point for me. do you happen to know how long it's safe to be out of the fridge?

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 3879
   Posted 12/6/2011 5:44 PM (GMT -7)   
 
You should ask your endo or the pharmacist for more information about how to handle and use this.  If there are any members here on this medication, maybe they can also give you more guidance. Good luck.
Lanie

diabetes moderator
diabetes type 2 controlled so far by diet and exercise
very low carb way of eating

2thebitterend
Regular Member


Date Joined Jan 2012
Total Posts : 42
   Posted 5/5/2012 10:00 PM (GMT -7)   
I take 1.2 units of Victoza every night before bed. I take Onglyza and Glipizide in the morning. My fasting sugars were in the 200's almost every morning before the Victoza and they're now around 100. I started with .6 units then moved to 1.2 and will most likely my Dr will up the dosage again at my three month appt. I've been taking it for a few weeks and I've lost over 5lbs so far. My first injection made me a little nauseated but after that I had no problems. When the dosage was increased I didn't have any side effects. I'm happy with the injections. The teeny tiny needle barely hurts...it's so fine it sorta feels like a mosquito bite and that's it. I can't speak towards taking it just for the weight loss since I'm a type 2 diabetic but I say if the Dr recommends it, I'd give it a try.
-Tanya-
"When the world says give up, Hope whispers try it one more time."

-Diagnosed w/Fibromyalgia (1-25-12)
-Auto-immune disease also suspected (Rheumy appt 3-1-12)
-Type 2 Diabetic
-GERD
-Tons of other probs & symptoms!

:Prevacid, Onglyza, Glipizide, Motrin, Flexeril, Elavil

+Engaged to an employed man who cooks & cleans!
+Mother of 3 ages 13, 11 & 9
+Cosmetology Student

It's Genetic
Veteran Member


Date Joined Mar 2010
Total Posts : 1540
   Posted 5/6/2012 9:09 AM (GMT -7)   
The weight loss for me was about 10 pounds; that was quite nice.

I.G.

JGriffin
Regular Member


Date Joined Jan 2006
Total Posts : 100
   Posted 5/6/2012 10:13 PM (GMT -7)   
I can't get a handle of what this medicine is. I see it described as victoza insulin and other places for non-insulin diabetics. Can you explain to me exactly what it is?

RosieA
Regular Member


Date Joined May 2012
Total Posts : 24
   Posted 5/17/2012 1:16 AM (GMT -7)   
it is not insulin and it is not specifically for diabetics. It slows down food in the stomach so as to keep the food in the stomach longer so as to stave off hunger thus resulting in weight loss thus resulting in lower sugars.

I had a hideous experience with Victoza. I tried it...the first dose made me so sick and vomiting and was flat on my back for 2 days. It went away and I increased it a bit and so far so good. I lost 11 lbs and the sugars were getting better.
I was working my way up to the maximum dose when I developed a HIDEOUS backache which ultimately led me to the ER--twice. I was finally diagnosed with pancreatitis.
Previous to using the Victoza, I was on glyburide pills and my sugar was OK but needed tweaked which is why the dr suggested adding Victoza. Well after having the pancreatitis my doctor said I couldnt take it so I went back to just the glyburide. It never worked for me again. Even at a higher dose. Leading me to injecting insulin which I can not get to work properly after a few months of trying and increasing my dose and increasing it. I sought a new dr just today and got my meds changed around a bit and hopefully this will help regulate my sugars.
Victoza is known to cause pancreatitis and thryoid cancer. In fact, if you call their phone number, it has a disclaimer about those things in the recording before you hear anything else!
I do believe Victoza ruined my pancreas and I am currently involved in a class action suit against the company along with a large large number of others. If nothing else, it caused me MONTHS of severe pain and agony.
That being said............it seems to work like a top for many people.
Welcome To My Nightmare!!!

Distrought Son
New Member


Date Joined May 2013
Total Posts : 2
   Posted 5/29/2013 10:31 AM (GMT -7)   
Please, I urge anyone who is taking Victoza to discontinue use immediately. My mother was just diagnosed with stage IV pancreatic cancer a couple of weeks ago and probably doesn't have much longer on this Earth. Last year she began taking Victoza for her type 2 diabetes. After taking it for 11 months she was taken off of it because it was not effective on her. A few months after discontinuing use she began to have abdominal pain and a general feeling of discomfort. After seeing several doctors (family, gastrologist, diabetic, etc...) with no results, she finally went to the E.R. where they gave her a CT scan. I'll never forget as I sat next to her, the doctor saying it was most definately cancer. I held her tight and reassured her that it would be ok and that she would fight through it, not knowing the severity of her condition. While researching her condition I began to come across many cases similar to hers and then to find out that there is a class action lawsuit against the makers of the drug was just a wakeup call. This is why I am searching forums warning anyone that may be affected. If I can keep this heartache from happening to someone else then at least my mom will not die in vein. She is only 48 and is very scared. She worries about my brother who is just 17, and me and my kids. She has been like a mother to her grandkids who don't have a mother and she's my best friend. The problem with our society is that everything is about money. The drug companies, along with the banks, oil companies, etc... own our government and are not there for the greater good of humanity. They are there with one simple agenda, you guessed it, to make lots and lots of money. Assuming my mother makes it out of critical care, they will most certainly make even more money off of her via chemotherapy and other drugs. I went to pick up her prescription for Tarceva, a drug commonly taken with chemo, and was told that her medicare would not cover it. The cost for one little bottle of pills, $5000!!! for a one month supply. Sorry got a little off the subject. In closing, DO NOT TAKE VICTOZA.

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 3879
   Posted 5/29/2013 4:06 PM (GMT -7)   
I'm very sorry about your mother.
Lanie

diabetes moderator
diabetes type 2 controlled so far by diet and exercise
very low carb way of eating

Distrought Son
New Member


Date Joined May 2013
Total Posts : 2
   Posted 5/29/2013 7:58 PM (GMT -7)   
Thank You so much. I'm just trying to spread the word so this doesn't happen to someone else.

sunshine50
New Member


Date Joined Sep 2013
Total Posts : 7
   Posted 9/9/2013 10:50 AM (GMT -7)   
I am so sorry to hear about your mum, my heart goes out to you.
I am a 52 yr old woman living in the UK who has been on vitoza for two years, l have lost 5 stone in all, but l would put it all back on , now not to be in the position l am in. I have stopped Vitoza 6 weeks ago after suffering lots of problems and now l have been referred up to the hospital and l am awaiting a CT scan ( got to wait 6 weeks ) for suspected cancer of the pancreas . I have constant pain in my stomach , crazy diarrhea and extreme wind pain. Feel so tired all the time. i used to go to the gym 5 - 6 days a week and now l have no energy. No appetite really and l am now scared to eat as what it does to my digestive system. I am about to lose my job as l am to weak to do it, Life my GP said if l had money l could pay for a private scan and be sen tomorrow !
STOP TAKING VITOZA NOW EVERYONE

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 3879
   Posted 9/9/2013 12:30 PM (GMT -7)   
Welcome to HealingWell, Sunshine50. I am very sorry about these problems you're having. I hope your tests don't find cancer but in the meantime, have you consulted with an attorney?
Lanie

diabetes moderator
diabetes type 2 controlled so far by diet and exercise
very low carb way of eating

sunshine50
New Member


Date Joined Sep 2013
Total Posts : 7
   Posted 9/9/2013 12:52 PM (GMT -7)   
Thks Lanie
No l haven't consulted with an attorney , haven't been diagnosed yet. Just waiting in pain for help

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 3879
   Posted 9/9/2013 1:02 PM (GMT -7)   
I'm not in the UK so I'm sorry if this is an ignorant question. If the doctor suspects cancer, couldn't you be moved up on the list to have the CT scan sooner?
Lanie

diabetes moderator
diabetes type 2 controlled so far by diet and exercise
very low carb way of eating

sunshine50
New Member


Date Joined Sep 2013
Total Posts : 7
   Posted 9/9/2013 1:27 PM (GMT -7)   
Ah ha Lanie well l have rung the hospital today and they said there are urgent cases and my Doctor put suspected pancreatitis . Today after my hell of a weekend with digestive problems , l thought l wouldn't eat today as eating seems to cause a lot of problems. I rang my local GP up at the surgery and told her l am afraid to eat, l don't actually feel hungry a bit faint now and again but not hungry. had 3 cups of tea with sugar today and have had two hypos and taken no insulin. Tomorrow l will ring up the hospital and try to get through to someone to tell them my symptoms are worse and l am not eating and see where that gets me.

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 3879
   Posted 9/9/2013 8:27 PM (GMT -7)   
Sunshine, are you on any other diabetes meds besides the insulin?  I understand you did not take any insulin today (which is probably 'yesterday' when you're reading this...).
 
I read that victoza might cause pancreatitis as a side effect.  If you developed this, then when you do start eating again, try to stay away from beef and certainly don't drink any alcohol.  I hope you are feeling better and try to keep your blood sugar up to normal.
 
I'm hoping you can get the CT scan soon!
Lanie

diabetes moderator
diabetes type 2 controlled so far by diet and exercise
very low carb way of eating

sunshine50
New Member


Date Joined Sep 2013
Total Posts : 7
   Posted 9/10/2013 12:46 AM (GMT -7)   
Morning Laine
Sleeping well thank goodness and in the day so tired. Got to tell my boss today l can't come back to work at the moment . I take 7 units of Lantus a day and insulin when l eat.
Feeling today is that l still have a gnawing stomach pain and a pain in my back. I will try to phone the hospital today and tell them l am feeling worse had to stop work and l am not eating, maybe l will get my scan brought forward. Update you latter. hope you are having a good day

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 3879
   Posted 9/10/2013 7:34 AM (GMT -7)   
I hope you're doing better. The best you can do for yourself is to be very very careful about what you're eating, eat at regular times as well as you can, that is, and take the insulin. I hope they can get you in for more tests and I hope the results are good.

Have a good day and please do keep us updated.
Lanie

diabetes moderator
diabetes type 2 controlled so far by diet and exercise
very low carb way of eating

sunshine50
New Member


Date Joined Sep 2013
Total Posts : 7
   Posted 9/10/2013 11:42 AM (GMT -7)   
Hi Lanie
Thks for your messages , I have rung up the secretary to my GI Doctor and told her l am worse and l haven't eaten for two days now because l have constant stomach ache feel bloated and have no appetite and also scared to death of the uncontrollable diarrhea and wind pain if l eat. I have spent the last two days just sleeping on the sofa in the day and resting. Anyway the secretary said she would speak to the GI Doctor and get back to me which she kindly did and now he has made my CT scan appointment with IV contrast on this next Monday coming only five days to go instead of waiting till the 8th October. That is a good thing. Hope all is well with yourself ? yer l haven't drunk anything for over 30 years and l don't smoke either .

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 3879
   Posted 9/10/2013 1:10 PM (GMT -7)   
Wonderful! Fingers crossed for your results! I hope you feel better today though. Please let us know the results.
Lanie

diabetes moderator
diabetes type 2 controlled so far by diet and exercise
very low carb way of eating

sunshine50
New Member


Date Joined Sep 2013
Total Posts : 7
   Posted 9/10/2013 1:35 PM (GMT -7)   
Of course Lanie l will

sunshine50
New Member


Date Joined Sep 2013
Total Posts : 7
   Posted 9/17/2013 1:11 AM (GMT -7)   
Well Well had my CT scan with IV contrast yesterday , now 9 days without eating and no appetite, and stomach feels like l have just eaten a christmas meal. I am now getting rather scared and worried. The nurse at the hospital said they would put urgent on my files as l have not eaten in so long. I keep having Hypos at the rate of 2 a day, have come off all my insulin. Trying to stay positive .
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