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tjbessey
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 9/29/2012 1:57 PM (GMT -6)   
I have been a forum member for quite some time, but like most byetta users I just drop in from time to time. On Monday I will be taking my first bydureon injection. Given the success I have had with Byetta, I am really excited about the change. I am lucky because my insurance company sees the benefits of GLP-1 inhibitors and makes them very affordable for diabetics. I am looking for advice, suggestions and observations from any people who are on Bydureon. I just want to know what to expect over the next few weeks.

Tony

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 3743
   Posted 9/30/2012 7:30 AM (GMT -6)   
Hi Tony, long time no see!  I had not even heard of Bydureon until now.  I hope it works well.  Why are you changing to it?  Has the Byetta not been effective?
Lanie

diabetes moderator
diabetes type 2 controlled so far by diet and exercise
very low carb way of eating

tjbessey
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 10/1/2012 1:42 AM (GMT -6)   
Lanie,

Bydureon is the once a week version of Byetta. I am changing because my insurance company is requiring Byetta users to go on the medicine with better glycemic control. My insurance company has a chronic care plan for diabetics that will give us the copay of a generic drug for name brand drugs in the formulary. In my case I get a three month supply of bydureon for $20. Hard not to change with that kind of incentive.

Tony

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 3743
   Posted 10/1/2012 8:39 AM (GMT -6)   
Wow! A progressive insurance company! Good for you! I hope it works well. Once a week? Please keep us updated on how it works for you. You're the first member who's mentioned this medication.
Lanie

diabetes moderator
diabetes type 2 controlled so far by diet and exercise
very low carb way of eating

tjbessey
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 10/1/2012 12:53 PM (GMT -6)   
Well, dose number one was administered at 11:50 am EST today. I took the first part of my day off to see how I will be reacting to it. I had watched the administration video several times on the internet and the process was actually very easy. The problem I was dreading was the 23 gauge needle. Fortunately that was not a problem.

Tony

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 3743
   Posted 10/1/2012 2:45 PM (GMT -6)   
I have never had to give myself a shot so I'm in awe!  I know many people have meds that require this but I still wonder if I could learn how.  In any case, I'm glad you didn't run into any problems.  I am also amazed that a weekly shot can help control blood sugar!  That's incredible!
Lanie

diabetes moderator
diabetes type 2 controlled so far by diet and exercise
very low carb way of eating

tjbessey
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 10/1/2012 4:17 PM (GMT -6)   
Lanie, I am so afraid of needles it is not even funny. That said if that is the difference between staying healthy or becoming insulin dependent, I choose the needle. There was a big psychological issue with the size of the bydureon needle, but in the end non insulin dependent wins out every time.

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 3743
   Posted 10/1/2012 4:46 PM (GMT -6)   
I agree with you 100%.
Lanie

diabetes moderator
diabetes type 2 controlled so far by diet and exercise
very low carb way of eating

tjbessey
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 10/5/2012 3:54 AM (GMT -6)   
So I took my first dose of bydureon on Monday. The first three weeks of transition from Byetta to Bydureon are supposed to result in Blood Glucose reading that are all over the place. I decided to allow myself to let lose for the first week. I am still impressed with how the medicine is working.

Things of note:

1) the 23 gauge was not as bad as I thought for injecting the medicine
2) If you follow the instructions online or in the package the process of preparing and taking the shot are very easy.
3) I did not get a bydureon bump at the injection site.
4) I love the freedom of not having to take a shot twice a day.
5) I am happy to have an option that is not in any way associated with victoza.

I will chime in again sometime after the second dose.

Tony

tjbessey
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 10/6/2012 4:10 PM (GMT -6)   
Okay, so after thinking about how my week flows, I decided to take my second dose of Bydureon today (Saturday), rather than Sunday. Much to my surprise my second shot was just as painless as the first. There was so mild discomfort, but overall things went well. In transition my blood glucose readings are all over the place, but 1) that is to be expected and 2) I have been treating myself a little this week. The major thing I enjoy about the change is simply not having to take a shot twice a day. Once shot a week is cool.

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 3743
   Posted 10/6/2012 10:22 PM (GMT -6)   
Tony, I think it's great that a shot only once a week can control your blood sugar.  I'm just trying to imagine how this is possible.  I can understand time release or extended release taken on a daily basis, but how in the world can a shot taken once a week work?  It's incredible!
 
I'm glad the shots are not difficult for you.  How long will it take for the blood sugar to "even out" and not be all over the place? 
Lanie

diabetes moderator
diabetes type 2 controlled so far by diet and exercise
very low carb way of eating

tjbessey
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 10/9/2012 6:01 AM (GMT -6)   
Lanie,

I have been told this is a three week process, but I also need to start eating right. Today is the one week mark of being on the drug and I need shift into compliance mode. We shall see. Given the bad eating I have been doing and looking at my numbers I am surprised they are not higher.

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 3743
   Posted 10/9/2012 7:27 AM (GMT -6)   
Tony, nono

I think for some occasions you can sneak a little of the food that's normally off the list but not on a regular basis.
Lanie

diabetes moderator
diabetes type 2 controlled so far by diet and exercise
very low carb way of eating

pegasus13
New Member


Date Joined Oct 2012
Total Posts : 2
   Posted 10/11/2012 10:30 AM (GMT -6)   
I am a new user of bydureon. Previously i have been on oral meds only (type 2). I am not happy with the bumps (nodules). Five shots to date and 7 bumps at the injection sites. Called Amylin and found out that the bumps MAY be the after effect of the polymer (PLGA) that makes up the microspheres. The microspheres are what makes the active medicine (exenatide; same as byetta) last for a week or so. They are supposed to go away in a month or so. We shall see. FWIW, I inject in the belly area away from the bb.

For tjbessey: what injection technique are you using? The 23 gauge needles are NOT painless despite what everyone else says...

tjbessey
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 10/12/2012 11:47 AM (GMT -6)   
Peg,

I was on byetta for three years prior to starting bydureon last week. So I was used to taking a twice daily shot with a 31 or 32 gauge needle. While 23 gauge is a big needle for most people, I have so far found the transition to be completely painless. That is counter to your statement above, but I suspect I learned a thing or two about injections and what is most comfortable for me in the three years I took byetta. So far I have injected only in the belly. I do not have the right amount of fat to use my leg and I cannot reach the back of my arms with this needle set-up. I do not get the bumps and I am curious to see if you are more likely to get the bump if you did not take byetta.

Again I have been taking shots for three years twice a day. A little 31 or 32 gauge can be painful as all heck if you overuse an injection site or his a sensitive area. After three years of byetta I know the places I can and cannot use for injection site. The only criteria I have for choosing an injection site is comfort. I hope this helps.

tjbessey

pegasus13
New Member


Date Joined Oct 2012
Total Posts : 2
   Posted 10/13/2012 1:04 PM (GMT -6)   
Interesting theory about me not ever being on byetta. FWIW, the first bumps did not appear for 3 weeks. i have 2 shots left before my next refill and i am leaning toward stopping this Bydureon and seeing if the bumps do go away.

Do you use the "pinch" technique or the "spread" technique in the belly area?

Curious what was so wrong with Victoza...

tjbessey
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 10/13/2012 4:49 PM (GMT -6)   
Peg,

My theory with Byetta is two fold, but I have not been taking Bydureon long enough to know if I will or will not get the bump. I will post that as time goes by so others here can learn more about the medicine before they take it. The other part is just that I have been giving myself injections for three years and because I know in painful detail what does and does not work for me, I am not able to have a pain free shot just about every time. I just seconds ago took my third does with no pain or discomfort.

As for Victoza, that was not an option for me. As I mentioned I have followed Byetta for two to three years. I am a very highly self educated diabetic. Before I got my business degree in college I was a nursing major studying Biochemistry, Biology, pharmacology and anatomy and physiology. I am highly motivated to use my knowledge to prevent Diabetes from ruining my life. During its own FDA approval process the makers of Victoza did all kinds of things to imply that Amlin had not done all its research on the Bydureon product at a time when the FDA was wrapping up work with Amlin to satisfy questions about accellerated heat beats. Just when victoza was approved the FDA decided once again to review the black box warning research on thyroid tumor growth to make sure Amlin had done all of their homework. That delayed Bydureon from hitting the market for two years.

If victoza were the only medicine left of the earth to help control my diabetes and I have the choice between taking victoza and losing fingers, toes and more...... I would cut them off myself when the time came. That is how much I HATE Novo Nordisk and crapoza.

Tony

tjbessey
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 10/15/2012 1:24 AM (GMT -6)   
Okay, so I took shot three Saturday afternoon. Going into my third week I am very pleased with concept of one shot a week. I never have to worry about my schedule getting in the way of my shots and I enjoy the numbers so far.

My two week average is 157 and my one week average is 135. So I am not seeing as drastic an increase in my sugars as expected. Not it is time to make sure we get the right amount of daily exercise and we should be even better.

For those of you who might be curious, I am a firm believer in walking and I follow a walking program that fits the government's guidelines for moderate exercise. This was quantified in March of 2009 and you can read about that health.usnews.com/health-news/family-health/heart/articles/2009/03/17/walk-100-steps-a-minute-for-moderate-exercise

That is simply 3000 steps in 30 minutes 5 times per week. This is highly effective and I suggest that you invest in a high quality, reasonable cost Omron pedometer. I use the Omron HJ-303. If you are going to walk for exercise, don't skimp on the tool you will use to measure your progress. I also track my information on walkertracker.com.

tjbessey

LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 3743
   Posted 10/15/2012 8:15 AM (GMT -6)   
Tony, it looks like your average numbers are coming down then.  That's great! 
 
I am also a 'walker' - or was, until I was hit by hip bursitis in the spring.  And this reminds me to remind others to stretch.  I was walking for about 50 minutes a day.  (I don't have a pedometer.)  To make a long story short, my hip bursitis was a result of inflammation of the IT band, the ileo-tibia muscle that is on the outside of the thigh from the hip to the knee.  After two bouts of this and therapy, it was an astute therapist on the second round who pressed on my outer thigh which made me see stars.  This was confusing to me because I was in therapy for the hip.  She explained the bursitis was the symptom of the IT inflammation/strain and that was caused by not stretching before or after my walking.  So, all this time I had been treating the symptom but not the cause - and it was my second therapist who explained this cause/effect, not the doctor.  Previously the doctor prescribed prednisone pills and then a cortisone shot and other therapy but the pain returned.  If I had spent time stretching, I wouldn't have aggravated that muscle and the muscle wouldn't have bothered the bursa in the hips.  Live and learn!
 
Walking is free.  It also gets you outside into fresh air.  It helps your circulation, is easy on the joints, helps blood pressure and the heart and blood sugar.  It also helps our 'mood'.  Make sure you have proper walking shoes.  I did go to an athletic shoe store and was fitted with some 'tennis' shoes, which are a size or half a size larger than I would normally buy because, as the lady explained, our feet will swell with all this activity and you don't want to cramp your toes and feet.  And don't wear cotton socks because they keep moisture which is bad for your feet.
 
So, Tony, I'm very glad for your success!  Thanks for the updates, too, because they help all of us understand the process you're going through with this medication. 
Lanie

diabetes moderator
diabetes type 2 controlled so far by diet and exercise
very low carb way of eating

JGriffin
Regular Member


Date Joined Jan 2006
Total Posts : 100
   Posted 10/15/2012 9:00 AM (GMT -6)   
I too enjoyed walking and now occasionally "strolling" compared to what I used to do. I love the fresh air and seeing the changes in weather and seasons.
BUT.....my feet, arches and a sprained knee that bothered me for months convinced me to treat my joints more gently. I bought a recumbant stationery bike and spend 30 minutes to an hour on it every day. So I could not give myself an excuse, I placed it where I watch tv. Now I can't ignore it and the time goes by quicker when you are focusing on something beside "Oh, no. It has only been 10 minutes." There also is not problem with the weather...so no excuses!
When I have over-indulged in carbs or my glucose is high for any number of reasons (sometimes it seems seasonal allergies are the perfect reason), I hop on the bike for some extra exercise. Consistently, 30 minutes on the bike at moderate speed will bring my reading down 30-40 points.
On those days when I "treat" myself, I go home and automatically do 30 minutes for my indulgence.
So, Lainie, very very very good advice. No matter what the medicine, don't skip the exercise!

RosieA
Regular Member


Date Joined May 2012
Total Posts : 24
   Posted Yesterday 11:52 PM (GMT -6)   
I got a prescription for Bydureon but have clo clue how to use it so I have to go to the pharmacy to find out...

I had planned to start this last week but got sick with the flu and had to postpone it. Still not feeling well so dont know exactly when I will start it

Did you get nauseaus or anything? Any side effects?



I too HATE Victoza. It put me n the hospital twice with pancreatitis before anyone figured out it was the Victoza. Also, I think it destroyed my pancreas as I wasnt on on insulin shots until after the Victoza fiasco.

tjbessey
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 10/22/2012 7:33 AM (GMT -6)   
Rosie,

First off I have on big question. Are you on insulin? Bydureon is not recommended not is it encouraged for use with insulin dependent diabetics. Victoza and Byetta are both basically GLP-1 antagonists so I seriously wonder if Bydureon will be any better for you than Victoza.

Second if you start with Bydureon you need to 1) pick a day during the week that you can dose. I choose Saturday because it worked will with my schedule. 2) You don't need to go to the pharmacy to learn how to use bydureon. This drug is so new many pharmacists are not familiar with it. You need to go to the Bydureon website and watch the following video. You can find it here Bydureon Video.

I hope this helps. I am interested in your answer to my question about insulin. I would also like to know who (what type of doctor) prescribed this for you given your reaction to Victoza.

Tony

RosieA
Regular Member


Date Joined May 2012
Total Posts : 24
   Posted 10/22/2012 10:43 AM (GMT -6)   
Yes I am on insulin. My family dr prescribed Victoza. But he retired, so I got a new family dr who is also diabetic and he prescribed the Bydureon.
Welcome To My Nightmare!!!

tjbessey
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 10/22/2012 12:09 PM (GMT -6)   
Rose,

There is a big hypoglycemia warning for mixing Bydureon and any type of insulin. That is not to say that it cannot be done, but I believe the practice is discouraged. I am NOT a physician, but that raised a flag for me. Given your history with Victoza, I would see the opinion of an Endo before using the Bydureon. I want you to have a success with this treatment, but I also want to see you maintain your health.

Again, I am not a physician, so my opinion is worth exactly what you have paid for it. That said, given your history, I would not proceed with bydureon until you got a consult from and Endo.

Tony

RosieA
Regular Member


Date Joined May 2012
Total Posts : 24
   Posted 10/22/2012 12:14 PM (GMT -6)   
well I have an appt with my family dr on Nov 9 so maybe I will just put it off til I talk to him. I searched the web after reading your post and discovered you are right...
I also need to go to the pharmacy this afternoon and I am going to talk to the pharmacist just to see what he has to say.


Ever since I have been on insulin, I am hungry ALL THE TIME. It never goes away.
I was hoping the Bydureon might help that.

Actually I was on Victoza before I was on insulin, it caused me so many problems. I do believe that is how I ended up on insulin.
Welcome To My Nightmare!!!
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