Been posting on here and not introduced myself!

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Lizanne
Regular Member


Date Joined Aug 2005
Total Posts : 20
   Posted 8/29/2005 11:55 AM (GMT -7)   
Hi, my name is Lizanne and I am 55 years old. I live in the UK in a town called Shrewsbury, one of those beautiful old towns with lots of history dating back to before the Romans.
 
I have been an Insulin Dependant Diabetic for 46 years and have lived through so many dietary, exercise and insulin changes introduced by the medical profession that it makes my head spin sometimes. When I was first diagnosed you had to weigh everything including meat and veg. The only thing you were allowed as much as you like was fats such as cheese, fat on meat, butter etc. Now the diet is much easier I think, but only because I have been dealing with it so long probably. Oh and I have been admitted to hospital twice with my diabetes since being diagnosed.
 
I am one of these people that if someone says you can't do that because you are a diabetic I will do my best to prove them wrong. When I was first diagnosed as a diabetic strenuous exercise was forbidden, so I trained as a swimmer! Represented my county, same as a state in the US but undoubtedly smaller in size. In the late 60's when I wanted to train as a nurse I had to try 10 hospitals before someone would accept me. Got accepted but had to work as a nurses aid for a year on days and nights to prove I wouldn't go hypo. Anyway I trained and specialised first in inflammatory bowel disease and then in endocrine disorders. Eventually became a Senior Lecturer in Nursing where I ran courses in all sorts of subjects but my specialisms were 1.altered physiology and 2. diabetes.
 
Due to developing multiple endocrine disorders I had to give up work, luckily I had worked long enough for a full pension so I now socialise with my family and increase my education by studying at my local college, oh and I have 2 cats called Suki and Mogwi. I have had to give up disco but my grey hair began to make me a bit conspicuous anyway.
 
If you want to ask any more please feel free to ask and I will answer the best I can.
 
IDD / Thyroid disease / Addisons disease / High BP ( now under control) / retinopathy /  neuropathy / bilateral frozen shoulder / thoracic radiculopathy / sciatica.  

April S
New Member


Date Joined Sep 2005
Total Posts : 4
   Posted 9/26/2005 8:45 PM (GMT -7)   

Hello.  I am reading through the posts on here and I just now signed on.  My name is April and I am 26 years old.  I have had type 1 diabetes since I was 11, so it has been almost 15 years.  I read where you said you wanted to do things just to prove to people that you could when they said you couldn't because of diabetes and I am like that myself.  I also saw where you have neuropathy.  How long have you had it?  How did it start for you?  I have the smallest little numb spot on my toe, but I have no other problems with my feet and I have been to the dr about it, but it is so slight that they have no idea yet about it.  It doesn't bother me at all, but I was very depressed for the week after I discovered it.  I was depressed just knowing that diabetes will eventually take its toll and lead to complications.  I am really something of a worrier, I guess.  It was nice to hear from someone who has had diabetes for as long as you have.  Were you able to have children?  You have really accomplished a lot.  Reading your post has lifted my spirits.  Thank you!

 

Type 1 Diabetes for almost 15 years/Grave's disease


Lizanne
Regular Member


Date Joined Aug 2005
Total Posts : 20
   Posted 9/27/2005 1:51 AM (GMT -7)   
Hi April, nice to hear from you.
First things first - a numb spot on 1 toe does not necessarily mean neuropathy, numb spots occur in people due to knocks, shoes pinching, even a bad back etc etc. I am not belittling your worries but as diabetics we are sometimes too quick to jump to the conclusion that everything that happens to us is due to a complication of diabetes. Have you done any reading into neuropathy. In my experience of having neuropathy and working with diabetics who have it, a numb spot is not usually the first symptom.

How long have you been diagnosed with Grave's Disease? Unstable thyroid disorders can also lead to some funny sensations in fingers and toes

As to my having children, unfortunately I lost 2 children before they were born. When I was in my child-bearing years so little was known about pregnancy and diabetes that bringing a child to full term was often not possible. This was due to the impure insulins, no blood sugar machines - only urine testing, lack of knowledge re diet etc etc etc.

Lizanne
Regular Member


Date Joined Aug 2005
Total Posts : 20
   Posted 9/27/2005 2:10 AM (GMT -7)   
Sorry, hit a wrong button and posted reply before finishing it.

Nowadays maternity and endocrine specialists work together and the chance of a successful pregnancy is as high as in the general population.

Must go now, it is 09.55 hours here and I have a long day in front of me. Shopping, meeting friends for lunch - all those difficult things one has to cope with when one retires. Look after yourself and remember you are an individual that has adapted diabetes to your lifestyle, never use the word diabetic to describe yourself.

This is hard to explain but I hate it when people say I am a diabetic, you are not you are a person with a name, personality and everything that goes with that. Diabetes is only a small part of what makes you you. You are a person/individual first and the diabetes lives with you. Anyone who calls me a diabetic gets into BIG trouble, especially Doctors and Nurses. If they see me as a diagnosis they had better watch out, I do not fit into a text book and text books do not describe me. I tell them that and they are really shocked, the good ones then work with me as an individual aqnd we get on fine.

devine007
Regular Member


Date Joined Feb 2005
Total Posts : 76
   Posted 9/27/2005 8:32 AM (GMT -7)   
Hello April, my name is Robyn. I'm 25 and have been type one for 24 years. I just wanted to let you know that 15 months ago I gave birth to my first very healthy baby (and she was only 8lbs 3 oz) and am now pregnant with a second. Just so long as you check your sugars, take your insulin and eat properly you'll have no problems having kids. As for your tingling toe, i used to get some tingling or numbness in my feet after working. My doctor told me to buy better shoes and believe it or not i haven't had a problem since! Hope this helps. Robyn

April S
New Member


Date Joined Sep 2005
Total Posts : 4
   Posted 9/27/2005 8:47 AM (GMT -7)   
My doctor also suggested that I be fitted and buy a good pair of running shoes and wear them as much as I can.  What type of shoes did you get when your doctor told you this?  Were they like orthopaedic type shoes or regular Nikes or somethng like that? 
Thank you for your help!

April S
New Member


Date Joined Sep 2005
Total Posts : 4
   Posted 9/27/2005 9:17 AM (GMT -7)   
Thank you, Lizanne, for your information.  My doctor said the same thing really that you did about neuropathy.  She said I was probably worrying about nothing really.  It is just good to hear is from someone else with diabetes and neuropathy rather than the doctor, I guess.  Even though the doctor is supposed to be the expert, like you said, it is not textbook.  I went to my first local support group meeting last night and then came home and found this forum and I have really enjoyed reading the posts.  I have never wanted to be a part of a support group or get newsletters or anything having to do with diabetes because I have really been angry about having it.  I am more accepting of it now because of this numb spot on my toe and I realized that diabetes can have real complications.  I do have good control and that is the part that is so frustrating.  I have taken good care of myself and I may still have complications one day.  Anyway - I am glad to have found this site.  I did have a healthy baby girl 22 months ago.  She was perfect and healthy and I am so thankful for her.  My pregnancy went along just fine.  They do know so much and can do so much now and that is very encouraging.  Oh - I have had Grave's for just a year now and I honestly don't even know much about it besides the basics.  I really do need to educate myself on it, though.  Thank you!

Lizanne
Regular Member


Date Joined Aug 2005
Total Posts : 20
   Posted 9/27/2005 9:39 AM (GMT -7)   
you know there is a great deal of benefit to be had from belonging to a forum, I do beleive education is central to living a long and healthy life. After all much of the education on diet and exercise is the same for the general public as it is for people adapting to diabetes.

It sounds like you are having to adapt to multi-endocrine disease. They have discovered that thyroid disease (high and low) occurs more commonly in people living with IDDM. They beleive there is a genetic link between the 2 however thyroid disease is not a side effect of diabetes or vice versa. They are both auto-immune diseases, auto meaning self, your immune system attacks your own cells causing disease.

Are you being treated with drugs for the over-active thyroid or have they used radio-active iodine. They tried drugs on me first but eventually used radio-actine Iodine. Thats why I now have an underactive thyroid gland and take thyroxine.

Lizanne
Regular Member


Date Joined Aug 2005
Total Posts : 20
   Posted 9/27/2005 10:04 AM (GMT -7)   
http://www.diabetes.org/type-1-diabetes/diabetic-neuropathy.jsp

this is a good link. On the right hand side of the page is a link to a diabetic neuropathy checklist. You can do a self assessment here. I have a feeling if you use this you will definitely discover you do not have neuropathy - unless there is something you are not telling us

devine007
Regular Member


Date Joined Feb 2005
Total Posts : 76
   Posted 9/28/2005 8:18 AM (GMT -7)   
For the shoes I bought a pair of black ones, i just don't remember whether they were nike or reebok. I didn't get orthopedic ones, just some namebrand runners.
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