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Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 9/14/2005 12:21 PM (GMT -7)   
Hello Everyone,
I am a newly diagnosed Type 2 Diabetic(about 4 months ago), and was diagnosed with Neuropathy of the hands and feet R/T Uncontrolled Diabetes. I have read a lot on-line about this condition and I don't seem to fit into this catagory.
 
I have pain in my hands 90% of the time. My feet at times are so sensitive I can not stand anything to touch them, but most of the time, they just ache. Feels like the bone is hurting. I was wondering if those of you out there with this Diagnosis would share what you experience with me. I am really ignorant of this Disease. I am on oral med..Avandia Metformin and Amaryl, however am still not controlled. My lowest BS most days is 260-270, have been as high as 490.
 
Any input will be greatly appreciated.
 
Flopsie
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
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seanny007
New Member


Date Joined Sep 2005
Total Posts : 1
   Posted 9/14/2005 5:56 PM (GMT -7)   
Hi Flopsie,

I'm an Type I Insulin Dependent Diabetic and can tell you that my limbs *really* hurt on high sugar levels (above 250) but in your case it spunds like neuropathy is adding even more to it.

Seanny007

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 9/18/2005 12:08 PM (GMT -7)   
Flopsie,
Has your doctor discussed starting you on insulin? Nobody should be sustaining blood sugars like that without the doctor intervening and helping you out! Prolonged high sugars can cause kidney damage, blindness and limb loss. I would definitely make an appointment with a new doctor or an endocrinologist to get on some kind of program to get those sugars under control. But first you should email me your doctor's phone number so I can email him/her and give them a piece of my mind! (Jeannie walks away grumbling about inept physicians who don't do their jobs...)
~ Jeannie

"As one goes through life one learns if you don't paddle your own canoe you don't move."
-Katherine Hepburn


"Madness takes its toll.
Please have exact change."


Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 9/18/2005 12:33 PM (GMT -7)   
Hi Jeannie, LOL
The ER doc I saw when I went in with the 500 BS told me I needed to either be on a daily or s/s insulin. I told my PCP and he said "not necessary". I was scheduled for class August 29th to teach me the exchanges and how to eat, but the were cancelled. Am hoping to get into one in the next couple of weeks. I also have an appt. with a new doc on Monday, so we will see how it goes.

Oh,.. Jeannie, do you think this pain is Neuropathy or Fibro?

flopsie
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
Help HealingWell.com continue to help others. Donate Today....http://www.healingwell.com/donate/
 
co-moderator for Arthritis and Anxiety/Panic
 

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 9/18/2005 5:09 PM (GMT -7)   
I really couldn't tell you... I'm guessing neuropathy though with those sugars. I was so mad I asked for the doc's email so I could call him!!! If you have to go on insulin, it's not bad at all. Chutz & I are both on it and I find it easier than putting on mascara. Hope all is better with your new doc.
~ Jeannie

"As one goes through life one learns if you don't paddle your own canoe you don't move."
-Katherine Hepburn


"Madness takes its toll.
Please have exact change."


Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 9/18/2005 5:12 PM (GMT -7)   
Thanks dear!
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
Help HealingWell.com continue to help others. Donate Today....http://www.healingwell.com/donate/
 
co-moderator for Arthritis and Anxiety/Panic
 

Warren
Veteran Member


Date Joined Oct 2005
Total Posts : 534
   Posted 10/27/2005 1:40 PM (GMT -7)   
LOL - I can't believe a doctor has you on oral meds and lets you get away with blood sugars that high. That's simply irresponsible on the doc's part. What causes the pain, in most cases of neuropathy, is when the nerves are dying. Yep, sorry to give you the bad news, but your high blood sugar is killing those nerves along with silently destroying your kidneys and heart.

you REALLY need to go see an endocronologist before you do damage to an organ that can't be undone!! Don't get me wrong, Im not a doctor, but most of us in this forum know that those kinds of numbers over an extended period of time can cause you irreparable harm.

Best wishes

Warren

Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 10/27/2005 2:20 PM (GMT -7)   
Hi Warren
Thanks for the info. I know we are not doctors, but sometimes you can get more info from someone that has had the same experience than you can from a doc.

I have changed to an Endocronologist and since that time, have been  taken off of oral meds and placed on Daily insulin. Also have been to Diabetic Education classes and talked with Dietician, so am now following her prepared meal plan..# of carbs at each meal etc..

The pain in the hands and feet is better, but not gone. I believe that the problems with my eyes were also caused by my incompentent doctor, well he did not cause them, but if I had been controlled, maybe they would be better.

I have narrow angle Glaucoma and will have the first of 3 surgeries done this coming Monday. They will create an opening to allow the fluid to drain. If any of you have had this, I would sure like your thoughts on it. Also Have a cyst inside right eyeball, don't know what caused that.

Thnaks again,

flopsie


Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
Help HealingWell.com continue to help others. Donate Today....http://www.healingwell.com/donate/
 
co-moderator for Arthritis and Anxiety/Panic
 

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 10/27/2005 8:49 PM (GMT -7)   
Blessings and prayers Flopsie... I'll be thinking of you... And may the fleas of a thousand camels infest the nether regions of your old doctor's torso! Shame on him! I'd report him to the local medical society... and maybe get a good lawyer as well. You could lose your sight or a limb or your kidneys! He must have been one of the docs who graduated in the lower 50% of his class...
~ Jeannie

"As one goes through life one learns if you don't paddle your own canoe you don't move."
-Katherine Hepburn


"Madness takes its toll.
Please have exact change."


Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 10/27/2005 9:05 PM (GMT -7)   
Jeannie, LOL, you always have the best things to say. Good visual.
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
Help HealingWell.com continue to help others. Donate Today....http://www.healingwell.com/donate/
 
co-moderator for Arthritis and Anxiety/Panic
 

dave z
Regular Member


Date Joined Dec 2004
Total Posts : 164
   Posted 10/28/2005 8:59 AM (GMT -7)   
Hi Flopsie.  As you know i have both fibromyalgis and diabetes.  To me the pain from fibro and diabetes in my hands and feet are very distinctive.  For me the fibro pain in the hands and feet are ice cold along with a burnning  sensation.  The diabetes related pain in  the hands and feet are tingling and prickly sensations.  So if my hands and feet are burnning alot then i am having a fibro flare.  If my hands and feet are very tingley i attribute that to neuropathy.  There are also times when all four of the specific pains, ice cold, burnning, tingley and prickley feelings are going at the same time and WOW that relates to a super flare.  So far i have not found any med which helps the fibro, ice cold and burnning sensations.  For neuropathy i have tried neurotin, which did not help at all and had sider effects.  Next I tried cymbalta for 8 weeks, which was a total disaster and increased my tingling and prickly feelings.  The latest med out for neuropathy is LYRICA and there are currently 2 threads about it here at HW.  There are also a lot of threads here about CYMBALTA.  At this time I am going to take a wait and see attitude about LYRICA to see what others report about their experience about it.

Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 10/28/2005 9:08 AM (GMT -7)   
Thanks to all of you for sharing.
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
Help HealingWell.com continue to help others. Donate Today....http://www.healingwell.com/donate/
 
co-moderator for Arthritis and Anxiety/Panic
 
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