reactive hypoglycemia and "browning out"

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rpgdancer
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Date Joined Sep 2010
Total Posts : 373
   Posted 12/25/2015 7:27 PM (GMT -6)   
so i have reactive hypoglycemia, and every so often i start to see double then slowly everything goes black. The weird thing is i come to on my own as though waking from a nap; and weirder still, i feel 100X better even if i've only been out a short time. Today I was out for 12 minutes (according to my activity tracker) while I was at the movies but when I came to, I felt surprisingly amazing. I did go eat about 15 minutes later, but I was able to finish watching the movie, record a quick video for my youtube channel, and walk out to the concession stand first.

does anyone else have this issue? I feel like my doctor doesn't take this seriously and even though I come to on my own, I am terrified that the time will come when I don't.

Lanie G
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Date Joined Nov 2006
Total Posts : 5915
   Posted 12/25/2015 9:12 PM (GMT -6)   
Welcome to the Diabetes Forum, rpgdancer! I have not experienced this but I am concerned about your blacking out. What tests has your doctor performed to diagnose reactive hypoglycemia? Do you take your own blood sugar so you know what your blood sugar is during those times?

If I were you, I would get another doctor and be re-evaluated. Maybe it's something else. Maybe it is reactive hypoglycemia, but either way you need some sort of proper diagnosis and treatment plan. I can't imagine living like this with the unknown!

Here is a link with more information but there are other sites that discuss this, too. www.hormone.org/questions-and-answers/2013/nondiabetic-hypoglycemia

Do you have any family members with diabetes?
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 373
   Posted 12/25/2015 9:38 PM (GMT -6)   
my whole dad's side of the family has diabetes. The reactive hypoglycemia was diagnosed because my insulin levels were through the roof but my A1C was normal. I have had measured blood sugar levels as low as 50 but only ever as high as 110 (that said I only measure when I feel sick or have been having sugar issues and want to document progression). I've had to get a glucose shot one time after passing out but otherwise I have always come to on my own.

Now every time I ask the doctor, he replies that I just need to fix my diet but it doesnt seem to make much difference and I can't see a dietitian here in TX without having a DIABETES diagnosis and I don't.

Captaindd
Regular Member


Date Joined Nov 2015
Total Posts : 65
   Posted 12/26/2015 12:23 AM (GMT -6)   
In 1988 I was having problems with vision and wanting to fall a sleep after eating pot luck at church. I went to see a doctor and was told I had hypoglycemia and told to eat a piece of candy when I felt tired. In 1997 I went to the same doctor because my weight had gone up to 328 pounds. I was put on Fen,Fen and lost 148 pounds in 5 months. In 2002 I went in to see my doctor after fasting because of blurred vision. He found nothing wrong. Two weeks later I went back to the same doctor but I ate before I went and my blood sugar was over 400. If I had to do this all over again I would kept records of what I had eaten and got my self a blood test kit and check my self every day before eating and 3 hours after eating.
10/9/06 PSA.05 11/04/2010 PSA 1.8 10/22/2013 PSA 4.1 3/03/2014 PSA 4.4
10/08/2014 PSA 5.9 VA 11/10/2014 PSA 7
11l20/2014 Started Gluten Free Diet Weight 268 Pounds
12/12/2014 Biopsies Parts 1,2,3,4,and 5 Benign Part 6 Positive 10% Gleason Score 3+3
3/32/2015 PSA 5.1 9/16/2015 PSA 9.0
9/17/2015 Stopped eating red meat,dairy, eggs,chicken,turkey 11/09/2015 PSA 10.5
12/18/2015 All Biopsies negative

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 5915
   Posted 12/26/2015 8:05 AM (GMT -6)   
rpgdancer, I'm not exactly sure about reactive hypoglycemia so I don't know the best answers for you. I've read that eating smaller, more frequent meals might help the blood sugar from dropping so drastically. Also, carrying some packets of glucose that you can buy at the drugstore over the counter can help when you're starting to have that 'feeling'. Of course, it would be important to know that your blood sugar is low at that time and you would have to test.

I think keeping a record of these episodes is important. It seems to me that with your family history and your blackouts that your doctor could write up a diagnosis in such a way that it would be acceptable to any insurance company to cover.

And - still, maybe it would be better to find another doctor. I think your doctor should be more active and assertive in visits to him. It doesn't sound like he's giving you much guidance!

Captaindd, welcome to the Diabetes Forum. I'm going to make another post for you for your own thread.
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 373
   Posted 12/28/2015 6:34 PM (GMT -6)   
@Lanie yeah, i took my sugars in my doctor's office after i had a hamburger and he said something about it must have been a small burger and i should have had a milkshake... then when i said that he'd told me not to treat my sugars with sugar but with protein, he was like... "oh, right" and I was left feeling confused.

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 5915
   Posted 12/28/2015 8:24 PM (GMT -6)   
Argh. He said that? Please, can you find another doctor? You need a doctor who knows about blood sugar/diabetes. And here is a website for you to look through: www.phlaunt.com/diabetes/

And in order not to be caught getting too low, please carry some glucose tabs or gel. Any store with a pharmacy sells them.
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 373
   Posted 12/29/2015 12:01 AM (GMT -6)   
with the reactive hypoglycemia, they said that glucose tabs wouldn't work. my body overproduces insulin so it would just make things worse. they said protein but you can't exactly carry chicken around with you. I was on protein shakes but when I got c-diff the doctor said to stop them. I'm negative now but he never said I could start them again.
24 year old female
diagnosed: Ulcerative Colitis or Crohns, Chronic Migraines, depression, anxiety disorder, and OCD. Aspergers.

Meds: Lialda, nexium, zoloft, seraquil XR, nadolol, necon, topamax, Singulair, Endocort, Culturelle

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7466
   Posted 12/29/2015 7:26 AM (GMT -6)   
You could carry some nuts (for protein) or jerky around with you.

Almonds probably are the best choice...

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 5915
   Posted 12/29/2015 2:26 PM (GMT -6)   
Nuts are great to carry! Rpgdancer, why did he say to stop the protein shakes? I don't understand the connection.
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 373
   Posted 1/2/2016 4:36 PM (GMT -6)   
just had a blood sugar reading of 57... and i'm upright but my head is killing me.

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 373
   Posted 1/2/2016 5:09 PM (GMT -6)   
i ate half a hearshy bar and a burger from steak express and had a glass of milk. 10 minutes post eating i was up to 70
24 year old female
diagnosed: Ulcerative Colitis or Crohns, Chronic Migraines, depression, anxiety disorder, and OCD. Aspergers.

Meds: Lialda, nexium, zoloft, seraquil XR, nadolol, necon, topamax, Singulair, Endocort, Culturelle

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 373
   Posted 1/2/2016 5:33 PM (GMT -6)   
30 minutes post eating: 94
24 year old female
diagnosed: Ulcerative Colitis or Crohns, Chronic Migraines, depression, anxiety disorder, and OCD. Aspergers.

Meds: Lialda, nexium, zoloft, seraquil XR, nadolol, necon, topamax, Singulair, Endocort, Culturelle

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 373
   Posted 1/2/2016 6:24 PM (GMT -6)   
1.5 hours post eating: 103
24 year old female
diagnosed: Ulcerative Colitis or Crohns, Chronic Migraines, depression, anxiety disorder, and OCD. Aspergers.

Meds: Lialda, nexium, zoloft, seraquil XR, nadolol, necon, topamax, Singulair, Endocort, Culturelle

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 5915
   Posted 1/2/2016 11:16 PM (GMT -6)   
When was the last time you had eaten before your reading of 57?
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 373
   Posted 1/3/2016 9:30 PM (GMT -6)   
i got home at 4:30 and i had a king sized snickers at 2 because i felt my sugar getting low and that's what my dad (with diabetes) told me to eat.
24 year old female
diagnosed: Ulcerative Colitis or Crohns, Chronic Migraines, depression, anxiety disorder, and OCD. Aspergers.

Meds: Lialda, nexium, zoloft, seraquil XR, nadolol, necon, topamax, Singulair, Endocort, Culturelle

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 5915
   Posted 1/4/2016 8:24 AM (GMT -6)   
When I had suggested taking glucose gel if your blood sugar was low, you told me it would give you an insulin response and make matters worse, so you were supposed to have some protein. Why did you eat a Snickers bar? It's full of sugar?

I'm trying to understand this.

I also think you need to see a different doctor who can give you better care.
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 373
   Posted 1/4/2016 11:46 PM (GMT -6)   
I have no idea. i just did what my dad told me to do. i have autism and it's hard for me to do things when i'm panicked. i am going to get another a1c and fasting blood sugar test tomorrow (last one was 145 days ago) but i asked to be referred to a nutritionist and they decided to redo blood tests instead. honestly, i don't understand it all either.
24 year old female
diagnosed: Ulcerative Colitis or Crohns, Chronic Migraines, depression, anxiety disorder, and OCD. Aspergers.

Meds: Lialda, nexium, zoloft, seraquil XR, nadolol, necon, topamax, Singulair, Endocort, Culturelle

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 5915
   Posted 1/5/2016 3:12 PM (GMT -6)   
Hmm. Maybe if you write down what to eat or drink in situations like this, it would help? I don't have reactive hypoglycemia but since you told me that you should have protein and not sugar when you're feeling like that, if you kept a note with you on your phone or in your wallet, then you would be able to take something that would help instead of make things worse.

If you are able to change doctors by yourself, then please find an endocrinologist who understands reactive hypoglycemia.

It must be stressful to have your blood sugar bounce around like that.
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 373
   Posted 1/8/2016 8:55 PM (GMT -6)   
I am seeing the doctor again on Monday. will keep you updated.
24 year old female
diagnosed: Ulcerative Colitis or Crohns, Chronic Migraines, depression, anxiety disorder, and OCD. Aspergers.

Meds: Lialda, nexium, zoloft, seraquil XR, nadolol, necon, topamax, Singulair, Endocort, Culturelle

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 373
   Posted 1/11/2016 9:29 PM (GMT -6)   
they're trying to find out if i have an insulinoma. slightly worried.

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 5915
   Posted 1/12/2016 8:32 AM (GMT -6)   
This might be the reason for your wide swings. Read this: www.surgery.usc.edu/divisions/tumor/pancreasdiseases/web%20pages/Endocrine%20tumors/pancreatic%20tumors/insulinoma.html

If this is the case, I hope it can be taken care of as soon as possible! When will you get the test results?
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 373
   Posted 1/13/2016 2:49 PM (GMT -6)   
i have the test on friday morning. my dad's kidney transplant is tuesday so i hope we at least know the results before he goes in.
24 year old female
diagnosed: Ulcerative Colitis or Crohns, Chronic Migraines, depression, anxiety disorder, and OCD. Aspergers.

Meds: Lialda, nexium, zoloft, seraquil XR, nadolol, necon, topamax, Singulair, Endocort, Culturelle

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 5915
   Posted 1/13/2016 3:40 PM (GMT -6)   
I hope your dad's surgery goes well and is successful! Good luck with your test results and keep us updated!
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

rpgdancer
Regular Member


Date Joined Sep 2010
Total Posts : 373
   Posted 2/8/2016 4:01 PM (GMT -6)   
found out today that I do have a mass on my pancreas. doing more tests and talking to a surgeon. masssive panic attack when told. thank heavens my doctor also has a daughter with autism like me.
24 year old female
diagnosed: Ulcerative Colitis or Crohns, Chronic Migraines, depression, anxiety disorder, and OCD. Aspergers.

Meds: Lialda, nexium, zoloft, seraquil XR, nadolol, necon, topamax, Singulair, Endocort, Culturelle
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