Tingling in foot

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Lynnwood
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Date Joined May 2005
Total Posts : 7471
   Posted 1/5/2016 7:29 PM (GMT -6)   
Okay, so it's pretty well known that tingling and/or numbness in the extremities can be a sign of diabetes.

What if you have another illness that can also cause this symptom? Anyone know how they go about figuring out which disease is in play? I've read a number of on-line articles and don't see anything other than "might mean a blood sugar issue". At some point they have to be able to say, YES or NO, right?

I have one foot that likes to tingle. No idea if it's from my Lupus or maybe related to blood sugar -- looking for clues as to what kind of Dr I can get interested in figuring it out. It's intermittent and I'm trying to track tingling with blood sugar readings, but it's going to take a good amount of data before I can draw any conclusions.

Thanks to any thoughts y'all have!

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 5924
   Posted 1/5/2016 8:27 PM (GMT -6)   
This is what the Mayo Clinic site says about testing for diabetic neuropathy: www.mayoclinic.org/diseases-conditions/diabetic-neuropathy/basics/tests-diagnosis/con-20033336

I don't know if I read it there or another site but somewhere it said if it's diabetes related, it usually starts in both feet, not one. Anyway, this link talks about tests.

I know it could be as simple as pins and needles from sitting wrong or nerve damage from some an injury. I had one of those Tempur-pedic pillows but I gave up sleeping with it because it caused one of my shoulders and arm to tingle and feel numb. I figured that a nerve in my neck area that was on the pillow was involved like getting pins and needles as when you sit on your leg folded under you for awhile.

I do know that neuropathy from diabetes may occur after years of uncontrolled blood sugar; it doesn't happen suddenly. If you've had regular physical exams over the years, you would have been told that your blood sugar was too high or that you had diabetes before now.

So, basically - I don't know! I'm only guessing. You'd have to see a doctor who would conduct these tests. I wish I had a better answer.
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7471
   Posted 1/5/2016 9:06 PM (GMT -6)   
I know you said once that you'd not seen an endocrinologist -- what kind of Dr diagnosed & treats your diabetes?
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 5924
   Posted 1/5/2016 9:37 PM (GMT -6)   
Yes, I had seen an endo but it wasn't for diabetes. My regular doctor, a GP, prescribed a meter 10 years ago when my fasting result was "elevated". I think it was 130 (can't remember). But this was after several years of elevated fasting results. At that time I didn't know anything about blood sugar and she (my doctor at the time) just gave me the ADA pamphlets, etc.

I was referred to an endo for thyroid and after some blood tests, this endo put me on metformin and thyroid medication, but for subsequent visits, I went back to my regular doctor. Now, I have a different GP but I don't see an endo at this point because, I guess, the blood sugar is considered under control.

So, Lynnwood, if you're not seeing an endo, maybe you should if only to confirm that your doctor is doing the right thing for your care. You ask about tingling and that can be a real concern. It may be nothing but you need to know that and be reassured. The worst feeling is not knowing.

(The following has nothing to do with tingling but it got the hair on the back of my neck standing up. You can skip this account if you want.) I have seen two nutritionists because I think that's what insurance tells the doctors to do with diabetes patients and each one explained the Food Pyramid to me which at that time was very heavy on grains, bread, etc. After learning about food, diet and blood sugar (which I expound here, lol), I told the second one the bottom line for me was what my blood sugar was but I took all her handouts home, followed what she said (She said 45 g. carbs at each meal.) on some days and recorded my blood sugar and then ate my usual fare on other days and recorded my blood sugar and the difference was astronomical even with my metformin taken as usual. My blood sugar hovered around 160 to 200. I sent her the results in an email and she didn't respond and she "forgot" our next appointment. I didn't pursue this. It wasn't worth my time. When I told my GP what happened and gave her copies of my results, she told me I understood my blood sugar better than she did. :-/
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7471
   Posted 6/30/2016 5:35 PM (GMT -6)   
Finally some news from a new neuro on my foot tingling.

Even though my Lupus and my Sjogren's are in remission, he says both diseases can present with tingling. Lupus neuropathy is generally in the large nerves, and presents more as weakness, while Sjogren's neuropathy is in the small nerves, and presents more as pain. Of course, neither presents as episodic like my feet are doing, so...

We wait for another episode, then try to get blood & nerve testing done while the symptoms are present.

The really disappointing thing is that my rheumatologist, who is supposed to KNOW about Lupus & Sjogren's, sent me to a podiatrist and didn't mention (or know?) that both diseases can cause neuropathy.

More fun with auto-immune disease...
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 5924
   Posted 6/30/2016 7:14 PM (GMT -6)   
Well, I'm glad you have a new neuro who is better informed about this! How long does a tingling episode usually last?
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7471
   Posted 6/30/2016 9:09 PM (GMT -6)   
I've had 2 "bad" episodes in the last 2.5 yrs -- sudden onset after 3-4 days of walking vacations, feet perfectly fine then suddenly painful, tingling, and impossible to walk on. Lasted 5-8 days, not sure if it was just time or just rest that mitigated the problem.

Annual 4th of July 10K run - no problems training last year. This year, I've been getting milder tingling/pain, so have rested 4-5 days every time I get a twinge. Somewhat tingly/painful now.

Plan is to do the run Monday anyway, sorta' hoping for an episode so neuro can do some testing...

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 5924
   Posted 7/1/2016 5:47 AM (GMT -6)   
Good luck in both! I hope the neuro can figure it out and then treat it.
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating
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