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Prosper
New Member


Date Joined Jan 2006
Total Posts : 14
   Posted 1/30/2006 10:40 AM (GMT -7)   
tongue   Hi all,
 
I just want to share some things which I find to be helpful.
 
Brioschi - an old product found in most large drug store chains and in Italian specialty stores.  It is a bit help for indigestion relief.  You just put a capsule of the white granules in a glass of water, wait until fizzing stops and drink.  It tastes like mild lemon water and gives you instant relief...not a medicine, just a great reliever.
 
Pepperidge Farm "Carb Style" wheat bread.  Tastes good, high fiber, soft type bread with about 5 carbs per slice! 
 
Hope these suggestions will help someone.
 
Personally I am still struggling with:
  • A Doctor who doesn't know anything about this medication except what I tell him
  • The fact that my appetite is still the same (I am nearing the end my first 5mcg pen)
  • Morning fasting numbers which are terrible
  • Today I am trying something new...using my byetta at breakfast and dinner, but take the first of my two 850 glucophage at lunchtime and the second gluco before bed with a tiny piece of something no carb like cheddar cheese.  I am hoping to improve my morning #'s and also, I really have the feeling that because the Byetta slows down everything in the stomach, that by taking my gluco at the same time as my Byetta, the gluco is not doing it's job.  I may be wrong, but I feel that there is no harm in trying.
  • My next challenge is to convince my Doctor that I am ready to go on the 10 mcg pen after just one month.

Wish me luck and the same to ya'll.        Prosper

 


deltacece
Regular Member


Date Joined Aug 2005
Total Posts : 95
   Posted 1/30/2006 10:51 AM (GMT -7)   
Hello Prosper, wecome to the HW. I have been diabetic 10 plus years and i still struggle. I take Humalog 75/25 20 U am & pm. I crave sweets at times. My main health problem is heart disease and this all ties together somehow. It's a constant battle, hang in there and visit the HW often, the members here are here to help.

{ Listen to your body talk. } Deltacece


Warren
Veteran Member


Date Joined Oct 2005
Total Posts : 534
   Posted 1/30/2006 12:46 PM (GMT -7)   

Hi prosper,

I was very much the same way you are.  My numbers didn't show a dramtic improvement until the 10mcg pen.  You may have to add a Sulfonylurea like glucotrol to your metformin.  This could give you the extra umph that you need to really bring those numbers down dramatically. 

The other thing you could do is cut your metformin back to 500mg 2 times  per day and add a Thiazolidinedione like "avandia".  These are great at increasing your sensitivity to insulin and could help you with what you are looking for.  There are lots of options out there so if your doc isn't cutting it, get an Endocrinologist even if you have to drive a couple of hours!!

scool Warren
It's not that some people have willpower and some don't. It's that some people are ready to change and others are not. - James Gordon, M.D.
What some call health, if purchased by perpetual anxiety about diet, isn't much better than tedious disease. - George Dennison Prentice

I can only please one person per day, today is not your day...tomorrow doesn't look good either.


jiggy66
New Member


Date Joined Jan 2006
Total Posts : 14
   Posted 1/31/2006 4:28 PM (GMT -7)   
Prosper said...
tongue   Hi all,
 
I just want to share some things which I find to be helpful.
 
Brioschi - an old product found in most large drug store chains and in Italian specialty stores.  It is a bit help for indigestion relief.  You just put a capsule of the white granules in a glass of water, wait until fizzing stops and drink.  It tastes like mild lemon water and gives you instant relief...not a medicine, just a great reliever.
 
Pepperidge Farm "Carb Style" wheat bread.  Tastes good, high fiber, soft type bread with about 5 carbs per slice! 
 
Hope these suggestions will help someone.
 
Personally I am still struggling with:
  • A Doctor who doesn't know anything about this medication except what I tell him
  • The fact that my appetite is still the same (I am nearing the end my first 5mcg pen)
  • Morning fasting numbers which are terrible
  • Today I am trying something new...using my byetta at breakfast and dinner, but take the first of my two 850 glucophage at lunchtime and the second gluco before bed with a tiny piece of something no carb like cheddar cheese.  I am hoping to improve my morning #'s and also, I really have the feeling that because the Byetta slows down everything in the stomach, that by taking my gluco at the same time as my Byetta, the gluco is not doing it's job.  I may be wrong, but I feel that there is no harm in trying.
  • My next challenge is to convince my Doctor that I am ready to go on the 10 mcg pen after just one month.

Wish me luck and the same to ya'll.        Prosper

 

 
Prosper,
You and I are pretty much on the same time frame.  I just got back from my one month check-up this past week after being on the Byetta for 1 month.  My doctor said he was very proud of me and that I am doing a good job, but my numbers still aren't where they need to be.  I am now on the 10mcg pen and taking 1000mg twice a day of my metformin.  Holy smoke, my number are changing!  Also, as for the hunger, something happened to me that I almost couldn't believe.  I came home from work around 4pm, wanted something sweet so I just had a diet soda.  6:30pm rolls around and I still hadn't started dinner yet because I wasn't hungry.  Being a creature of habit, I just "assumed" that I ate when school let out and attributed that to my not being hungry.  Then I realized, holy crap I haven't eaten since NOON!  I was amazed, as I am usually hungry if not by 4pm, definitely by 6pm.
I think you will have some of the same results as I am, if you are put on the 10mcg pen.  Best of luck!

Prosper
New Member


Date Joined Jan 2006
Total Posts : 14
   Posted 2/6/2006 12:16 PM (GMT -7)   

Hi all,

Thank you jiggy and warren for the helpful replies.  Well, tomorrow will be my first day on the 10mcg.  I am hoping that it does the trick...

I would love to think that even though my appetite did not change on the 5mcg, that it will change on the 10mcg.  I don't mind the discipline of low carb eating, I would just like some help in not feeling so hungry.

I will let you know how I do.  This forum is very helpful.  Thank you.

Prosper :-)


jfpt89a
New Member


Date Joined Feb 2006
Total Posts : 4
   Posted 2/8/2006 3:22 PM (GMT -7)   

My wife is on Byetta and is having a very difficult time with the side effects.  My question to anyone taking byetta is are you still using insulin and what other diabetes meds are you on.

 
  She is still on insulin, and other meds.
 
Thanks Mark


 

Post Edited By Moderator (Warren) : 2/9/2006 7:47:08 AM (GMT-7)


Prosper
New Member


Date Joined Jan 2006
Total Posts : 14
   Posted 2/8/2006 4:18 PM (GMT -7)   
Hello Mark,
 
I am Type II diabetic and I don't take insulin - I take Glucophage pills.  Perhaps someone else this forum can be of help to you.  Sorry.
 
Prosper

Warren
Veteran Member


Date Joined Oct 2005
Total Posts : 534
   Posted 2/9/2006 7:43 AM (GMT -7)   
Posted Originally by Birdsong42

Hi, my name is Donna. I have been type II diabetes for three years now. For those three years I was on 1,000 mg of Glucophage a day.

In the past few months no matter how good or bad I ate my numbers were staying in the 200's up to 270. So I went to my Dr. and we did my blood work and my A1C. My A1C was 8.2

That's when my Dr. suggested Byetta. I was a little leary at first because I am petrified of needles! After he explained to me it was as fine a needle as I use to check my sugar I decided to give it a try.

My daughter and I sat through the Byetta video twice before setting the pen up. I was so nervous! But once I did the injection I was like "Is that it!" I was so proud of myself lol.

But I love my Byetta. The first time I used it my sugar dropped to 89 Ü. I was a bit shaky as I have not seen that number in years Ü. So I ate something sweet and went up to 128. Which was fine with me.

I take the 10 mcg 2x a day and cut back on my glucophage. I take the glucophage 500 mg and the first dose of insulin in the morning and it's at a great number. So no 1.000 mg of Glucophage

Now I did feel nausated and burning from the insulin the first time I used the Byetta. But none after that. I also felt a definite decrease in my appetite and have even dropped a pants size. But I can't say that the Byetta is the whole purpose of me losing that much weight. More on that later.

I too have been very cold natured since taking the Byetta-but I can live with that. I have had no other side affects since then.

My husband has been in ICU for 9 weeks now-so I believe that has done a bit with my losing weight. But the Byetta makes me less hungry for the "Carb" and "sweet items."

I have a personal AOL journal that starts from day one what happened to my husband Mark. Start scrolloing down till you see the topic (My husband fell 36 feet) from there go up and it gives the up dates on his set backs, prayers and victories!

I pray I am not violating anything on this blog by giving you my journal page. If so please delete the last part. And I apologize for it. Below is the page. I look forward to meeting others here.



God Bless,
Donna.


===========
Donna, I removed your link, not because it's not ok to post, but because it asked for a sign-in from us and I don't think you want to post your sign-in info on a public forum. You can just tell us about your experiences. We will listen... We all have diabetes and still have to keep living whatever lives we have. Glad to meet you, but not so excited about the circumstances. ~Jeannie

Post Edited By Moderator (Jeannie143) : 2/25/2006 7:53:57 AM (GMT-7)


Prosper
New Member


Date Joined Jan 2006
Total Posts : 14
   Posted 2/9/2006 7:51 AM (GMT -7)   

Thank you Warren for posting that reply.  It was very encouraging.  I was surprised though, that Donna referred to the Byetta as insulin!  It isn't actually insulin - is it??? If so, I didn't realize it. Thanks.

Prosper


Warren
Veteran Member


Date Joined Oct 2005
Total Posts : 534
   Posted 2/9/2006 8:45 AM (GMT -7)   

Hi Donna and Mark,

I moved your Byetta posts here so that we could try and consolodate a thread with people talking about Byetta.  We already have one really extensive thread but perhaps it was a good time for this new one.

Donna - the "cold" could come from low blood sugar.  I know when my blood sugar drops into the 50's or 60's using the 10mcg dose that I get cold and sometimes dizzy.  A coke usually brings me up fairly quickly.  The whole point is to adjust your orals so that that doesn't happen. I find and you may also..that is I eat a meal that is totally carb packed like a huge spaghetti dinner....Nausea can set in later.  These are the only times I ever really suffer from nausea with the Byetta.  If you warm up that pen before you inject, it should alleviate the burning sensation.  Also don't just press that button really hard, ease it down and it will put the Byetta into your injection site slower also eliminating burning.
 
Your blog like is certainly "ok" except that if you aren't an AOL memember with a password you can't get at it!
 
Mark - It is uncommon but not unheard of for someone that uses insulin such as Lantus to use Byetta.  If you are using anything but a long acting insulin, then I'd say your doctor is not prescribing correctly for you.  Typically Byetta and Insulin are not used together.  Byetta is usually used with orals and if you've embarked on Byetta and are on Lantus, your doctor might want to consider substituting orals for the lantus.  If your wife isn't seeing and Endocrinologist, it is very important that she does if she is going to continue to use Byetta.
 
Prosper - I think Donna mistyped as Byetta is not insulin nor is it a substitute.  It is an injectible that stimulates your body to MAKE more insulin.
 
scool  Warren



It's not that some people have willpower and some don't. It's that some people are ready to change and others are not. - James Gordon, M.D.
What some call health, if purchased by perpetual anxiety about diet, isn't much better than tedious disease. - George Dennison Prentice

I can only please one person per day, today is not your day...tomorrow doesn't look good either.

Post Edited (Warren) : 2/9/2006 10:31:18 AM (GMT-7)


jfpt89a
New Member


Date Joined Feb 2006
Total Posts : 4
   Posted 2/9/2006 4:41 PM (GMT -7)   

Thanks Warren for the information.  She is seeing an Endocrinologist but we are still concerned that she is taking 40 units a day of lantus and byetta.  She also has all of the bad side effects and if things do not get better soon (been taking byetta for 6 weeks now) she may stop.  We will see.    Could I ask how you became knowledgable in the Byetta.  Do you take also?

 

    Thanks again,  Mark


jawzz666
New Member


Date Joined Jan 2006
Total Posts : 5
   Posted 2/23/2006 8:51 AM (GMT -7)   
scool Hey Gang!!!
Okay, I started the Byetta on 1-17-06. I know I should be up to 10 by now but I am still at a 5 dose because it has taken me this long to get to an Endo. I will see him next Saturday and hopefully he can make the adjustments to all of my meds and bring me up to the 10.
I have experienced a 10 pound weight loss to date. I have never felt nauseated. And my numbers are really staying steady. I cant wait to go to the next level with this stuff.
One question I have for all of you "pros" out there is, Do you experience any bruising on your belly from the shots???? I tried the thigh but I really prefer the belly pain-wise. Am I just really horrible at giving these injections or is this just something that comes with it????
Thanks for everything
Gina
Bakersfield, Ca

Warren
Veteran Member


Date Joined Oct 2005
Total Posts : 534
   Posted 2/23/2006 1:25 PM (GMT -7)   

Hi Jawzz,

I use a 31g 3/16s inch needle so its super small.  As a result I really don't have any pain or bruising.  There is a thread on injections here, go read that and it will give you some good hints on how to do a relatively pain free belly injection!  I think being far enough away from teh belly button and using a tiny needle are two really important facets to using byetta!!

scool Warren

PS  if you do the injection correctly with a 31g needle you should really never feel it in the thigh!!


It's not that some people have willpower and some don't. It's that some people are ready to change and others are not. - James Gordon, M.D.
What some call health, if purchased by perpetual anxiety about diet, isn't much better than tedious disease. - George Dennison Prentice

I can only please one person per day, today is not your day...tomorrow doesn't look good either.


jawzz666
New Member


Date Joined Jan 2006
Total Posts : 5
   Posted 2/24/2006 12:20 PM (GMT -7)   
devil  Thanks Warren,
I will give it a try. I use the same size needle that you do. I get little red spots where the needle went in and pretty soon a big huge bruise.
I am in no way complaining about this though. This stuff is amazing.

cool

Gina


Warren
Veteran Member


Date Joined Oct 2005
Total Posts : 534
   Posted 2/24/2006 12:56 PM (GMT -7)   
Ok, in case you don't find it here's what I do.  I pinch up the skin (you don't really have to do this but I do anyway) and I rest the point of the needle on the skin..if I feel a prick I move it.  If that whole area is sensitive I find anohter spot until I can't feel the stick from the point.  Then when I don't feel the point of the needle, I put a little pressure on it and it slides right in pain free.  If the needle burns going in...Its probably NOT a good place to inject and a sure sign you'll bruise.  I stumbled on this by trial and error and it works like a charm..99% of the time I get that needle in there without feeling it whatsoever.
 
Now, about the belly injections.  I try to stay about 6 inches from the mid-line or out sideways from the belly button.  Get a good pinch of fat and try the same thing. If it pricks...move until you can't feel it.  Also, when you hold the pen, I hold it like a pencil to get the needle in then move my hand around and grip it like they show you to push he button...just becarefull in pushing the button with a death grip on the pen, that you don't put more pressure on the needle or move it around inside of you as this will definately cause you some bruising....The pushing the button on the pen through its 3 clicks is an artform, something you have to work at to do it without really putting a lot of pressure on the needle area.  Good Luck
 
scool  Warren
It's not that some people have willpower and some don't. It's that some people are ready to change and others are not. - James Gordon, M.D.
What some call health, if purchased by perpetual anxiety about diet, isn't much better than tedious disease. - George Dennison Prentice

I can only please one person per day, today is not your day...tomorrow doesn't look good either.


HealthChick
New Member


Date Joined Mar 2006
Total Posts : 1
   Posted 3/2/2006 1:54 PM (GMT -7)   
Hello all,
 
I'm a health reporter researching a story on Byetta.  I've read some really informative comments in this chatroom. I'm looking for someone in the Toronto area (or even Montreal, Vancouver, other major Cdn centres) who buys Byetta in the US (Buffalo for example).  I understand it is not yet approved for use in Canada.
 
Please contact me at ccrosbie@globaltv.ca if you are a Canadian who fits this profile.  I'm hoping that giving this medication a media profile could speed up the approval process.
 
HealthChick
 
 

mjjm1945
New Member


Date Joined Mar 2006
Total Posts : 2
   Posted 3/3/2006 7:29 PM (GMT -7)   

Greetings:

I am  a new member who has just been taken off Byetta by my physician because my gloucose readings were back in the 300's. I was returned to insulin thereapy with metformin, the maximum dose 2000 mg/day. I am now taking 70/30 mix and have been on it for four days.

I started on Byetta as a substitute for Lantus (60 units/day) and Regular (30units/day) insulin. I was also on Avandia and Metformin. The insulin helped my already weak appetite control become even weaker so that I gained a large amount of weight. Got to the point where I needed heart surgery and in cardio rehab came upon Byetta. Started with 5 mcg and did that for 30 days and dropped Avandia when I stopped using the insulin. Gloucose readings dropped from mid-300's to 170-190 and my appetite was fiinally under control--no cravings. It was great. After 30 days, went to 10 mcg. Continued to work for a few days, and then my levels shot back to 300's with a decreased amount of food intake. Neither doctors or me understand what went wrong.

Cardiologist and primary doctor confer and remove me from Byetta regime and start me on the 70/30 insulin. Cravings are back. I lost 22 pounds on the Byetta and have gained back 12 in one weekend.

My question is does anyone have personal experience with taking Byetta and insulin concurrently? My thought was that if I could use the Byetta for appetite control and the insulin for glucose control, I might do better. Your experience will be gratefully appreciated.

Thanks.

mjjm

 


Warren
Veteran Member


Date Joined Oct 2005
Total Posts : 534
   Posted 3/4/2006 8:15 PM (GMT -7)   

Hi Mjjm,

Did you keep your Byetta refrigerated??  The fact that it suddenly stopped working leads me to suspect that maybe it got contaminated and its potency was spoiled....or that your beta cells are simply shot and you really need insulin like a type 1.  60 units of Lantus a day is a HUGE amount of Lantus.  I don't know what to tell you.  I wish you the best of luck and Im sorry the Byetta didn't work for you.

scool Warren
It's not that some people have willpower and some don't. It's that some people are ready to change and others are not. - James Gordon, M.D.
What some call health, if purchased by perpetual anxiety about diet, isn't much better than tedious disease. - George Dennison Prentice

I can only please one person per day, today is not your day...tomorrow doesn't look good either.


mjjm1945
New Member


Date Joined Mar 2006
Total Posts : 2
   Posted 3/5/2006 7:44 AM (GMT -7)   

Dear Warren:

Yes, Byetta was refrigerated. Started my experiment yesterday with 2 doses of 10mcg Byetta and 20 units of Humalog (70-30) at noon. Average reading for the day was 140 which is an unbelievable number for me. Will continue and see how it works out.

Thanks for the response.

mjjm1945

 

 

 


Prosper
New Member


Date Joined Jan 2006
Total Posts : 14
   Posted 3/7/2006 7:36 AM (GMT -7)   
 Hi,
 
Update time.  Well, I had used one month of 5mcg with not much result, and the first 12 days of my first 10mcg Byetta pen, were pretty much the same..the WOWSY all of a sudden I started to experience better numbers - like 112 which was a first for me, and I lost my appetite!  I don't know how long the appetite thing will last, but I will not look a gift horse in the mouth (pardon the pun).  I am not finished with this 10mcg pen, but I do hope that they are all of equal potency.  I always keep refrigerated and always inject in abdomen.  In addition to the two 10mcg pens per day, I take two metformin 850's per day.
 
Wishing all of us the best results.
 
yeah

Prosper
New Member


Date Joined Jan 2006
Total Posts : 14
   Posted 3/7/2006 7:37 AM (GMT -7)   
Oops - I didn't mean to say two 10mcg PENS PER DAY, I meant two injections per day!

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 3/7/2006 8:12 AM (GMT -7)   
Prosper,
I'm jealous... I wonder how much Byetta is without drug insurance coverage? Have to make some phone calls...
~ Jeannie

"People are like stained glass windows: they sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."

- Elizabeth Kubler-Ross


Prosper
New Member


Date Joined Jan 2006
Total Posts : 14
   Posted 3/7/2006 8:20 AM (GMT -7)   
Hi Jeannie,

I also couldn't understand why some people were getting such good weight loss results and I was not...but I am hoping that this good turn of events with the second half of the 10 mcg pen will continue.

From my research, the Byetta without insurance can cost between $190 - $230 dollars. My insurance barely covers it and it costs me about $156.00 out of pocket per month. I NEED it to do the job, otherwise it would not be worth it for me to spend that much in addition to all the other prescription costs I have per month.

Good luck.

elisejk
New Member


Date Joined Mar 2006
Total Posts : 4
   Posted 3/14/2006 11:15 AM (GMT -7)   
Hello, my name is elisejk and I just came across this site today. I'll be 50 in a few weeks. Was diagnosed with Diabetes in 1995, and it's never been under control. My A1C is under 7 but my numbers in the morning (between 4 and 6 am.) fluctuate between 130 and 190.

My job requires that I work really strange hours and sometimes I work on the weekend and don’t get much sleep.

I try to take my meds at the same time, but that doesn’t always work out.

I just started Byetta on 2/26/06.

My current meds are:

a.m.

Actos 45 mg
Quinapril 40mg
Bupropion sr 150mg
Multi vitamin
Omega 3 1000mg
80 mg Baby aspirin

I hr before lunch

Byetta 5 mcg

bupropion sr 150 mg

1 hr before dinner

Byetta 5 mcg

Before bed

Vytorin 10/20
Omeg 3 1000 mg
Fortamet ER 1000mg x 2
Lantus 21units

I was on 42 units of Lantus prior to the introduction of Byetta.

I am overweight and would welcome any weight loss.

I haven’t noticed any weight loss yet, but would welcome it as I am about 220 and 5’1”

I have never exercised to any extent. I do have a treadmill that I am going to try to use on a regular basis.

I haven’t really noticed any side effects of the Byetta.

I’m sweating pretty frequently – but I’m not sure that isn’t menopause either.

I’m supposed to switch to the 10 mcg pen after 30 days.

I have a few questions.

1) When will I noticed a drop in my numbers?
2) What happens if the pen is not refrigerated for a
number of hours? I have been trying to carry it with
me when not at home – will also be traveling a few
times in the next few weeks.

elisejk
New Member


Date Joined Mar 2006
Total Posts : 4
   Posted 3/17/2006 7:29 AM (GMT -7)   
sad

===========
(Be sure to click on the number '2' in the lower right hand corner to see the next page's postings. Warren came by to help.) :-)

Post Edited By Moderator (Jeannie143) : 3/17/2006 11:21:51 AM (GMT-7)

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