Post Edited (desertdiabetic) : 6/29/2006 9:19:13 PM (GMT-6)
I previusly posted on this on the Diabeticine thread and found another member Fergus C with a similiar experience of incorrect diagnosis. Many within the medical profession just can't accept that nature does not always follow their textbook theories. I convinced that throughout the years there have a significant number of people that have been mis-diagnosed and unfortunately "mis-treated" as type1 instead of type 2. But looking on the bright side there are medics out there that try and challenge convention and look at all possibilities.
I guess that my body was always able to produce some insulin. There is current research in to this phenomenon called monognic diabetes. Have alook at this link if you have not come across this before http://www.diabetesdaily.com/content/2005/11/30/there-is-a-third-type-of-diabetes-and-its-treatable.php. Fergusc, whilst I would never condone confrontational behavioiur in any shape, I do think just judging by both our experiences people need to challenge conventiolnal thinking particularly on diabetic diets. My current challenge is with my MD who says a cholestrol reading of 3 is too high 'cos I am diabetic and this is the current thinking. He Wants me to start taking Lipitor!!
I'm fascinated by your story. It struck me that your early (false!) diagnosis may have worked in your favour though. Perhaps your early insulin regime has preserved some pancreatic beta cell function which has allowed you to return to a Type 2 regime in later life. Lucky you!
You're spot-on about the dangers of potatoes too. In fact all starchy carbohydrate foods will quickly convert to glucose and require large doses of insulin to bring your blood sugar under control. You can add bread, rice and pasta to your list of foods to be very wary of.
Personally, I was diagnosed Type 1 at the age of 18, 24 years ago. The dietary advice then, as now, was to base my diet around starchy carbs. The result of course was a need for high insulin doses and over the years, weight gain and slowly deteriorating glycated haemoglobin and blood lipid profiles. On reflection it now seems that the dietary advice was and still is seriously misguided.
Around 4 years ago I decided to cut starchy carbs - as far as possble - from my diet. The result has been a reduction in my insulin requirement to about 25% of my former needs, normalised blood sugars (averaging 4-5mmol/l), 4 stone of weight loss to a BMI of 22 and blood lipids of an Olympic athlete!
Sounds to me that you are discovering something similar?
I came across this forum a few weeks back and I am really interested in trying any alternative treatments and I am so grateful to people for sharing their experiences of this or any other product good or bad.really want t peopl;.
I am a male of indian origin from the UK and was diagnosed as a type 1 diabetic in 1975 at the age of 15 as I was underweight and always tired. I was started on insulin injections and at first my sugar levels went down and wieght increased. However after a while, I found that the insulin was doing nothing for me, in fact it gave me extremes of very low blood sugars of down to 1/mmol when it was most effecive and very high blood sugars of up to 19/mmol when it's effects were wearing off.
In 1989 after 14 years of injections, I went to see a new diabetes consultant at my local hospital and explained my problem and that the insulin was doing nothing for me. After the customary "up the dosage try different insulins, I managed to convince the consultant that I should try tabletes as I suspected that I had never been a type 1 but conventional wisdom was that childhood onset diabetes must always be type 1. I as then prescribed 2.5mg Glibenclamide twice a day and came off insulin, after the first week my blood sugars stabelised i.e no very Low lows or High Highs. over the years the dosage went up to 5mg twice daily, until in 2004 when I had a double frozen shoulder and the blood sugars were going up to 14/mmol, I was again advised to go on insulin, but resisted and after persistance on my part was prescribed 160mg Gliclazide twice daily. However, with a better diatery regime, (my blood sugars seem to spikee abnormally if I eat normal portions of potato products - so I have cut these to very small portions in my diet). I have reduced my medication to 80mg gliclazide twice a day with HCa at 6.8 ( soory I use uk mmol).
Upon reflection, I realised that as a child, I just lived on potato products like crisps (chips) frys and roast potatoes and jacket potatoes. But it took me till 2004 to realise that this was one of the major causes of elevated sugar levels for me. I guess the point I am trying to make is everyone ' diabetes is unique and if diabeticine or other products don't work for you - change your diet. I only found out about the the GI index after I discovered my problem with potatoes and I now realise that white flour products are also resposible for spikes ( but not as bad as potatoes for me). I see new consultants and new doctors who still can't believe that I went from "type 1" to "type 2" till they read my medical file and I then have to tell them that I was never a "type1" and ask them if I should sue our health service in the UK. Sorry about the long post.
Never Give Up Hope. God loves each on of us