new here with neuropathy

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Lonna
Regular Member


Date Joined Jun 2006
Total Posts : 77
   Posted 8/4/2006 6:35 AM (GMT -7)   
Hello, this is my first post here. I have lupus and have developed neuropathy in both hands and feet. It's very painful in my feet, to the point where 2 vicodin just takes the edge off. I've lost a little strength in my hands and am a little clumsy with one.  I also have some numbness in my feet. I'm being tested for everything but it isn't that common, but is possible, to have the lupus cause the neuropathy. My dad, brother (both type 2) and daughter (type 1) have diabetes. I had my daughter check my glucose levels and I had 2 high normal and 2 high, one was 232 then an immediate recheck was 202. ( I read the post about the meters not being that accurate and that concerns us since my daughter is pregnant). I have a re-check to find out what the lab tests found in a little over 2 weeks. I was given the 'warning' 2 yrs ago that I had the gene for type 2. I dieted and lost 15 lbs and my cholesteral improved and my fasting blood glucose went back to normal. Then I let it go again. So I think diabetes is a possibility but I've been on prednisone for 14 mo. and that can raise the blood sugar too. I don't know what to eat, I'm sitting here really wanting my cereal but am afraid to eat that many carbs. I don't want anymore damage from the neuropathy. What do I do in the mean time? I really don't know what to eat and I don't know if a couple more weeks of eating my high carb diet will hurt me further. Also if my neuropathy is caused by diabetes is there any chance it will be reversed or cause less pain when my blood sugars get normal? Sorry this is so long. thanks, Lonna

Pin Cushion
Regular Member


Date Joined Feb 2003
Total Posts : 442
   Posted 8/4/2006 9:59 PM (GMT -7)   
The best advice I can give you at this time is try to eat smaller balenced meals, being careful with carbs. try and keep them low but dont try and stop them completely your doomed to fail as all including me did.
I am going to do a post here in just a second that has great info on it about what foods to get. It was posted here a while ago and it is time to bring it back.
AL
Sigmoid Colostomy / Crohns / Type 1 Diabetic / Ostioarthritus / Fibromyalgia / Asthma / High Blood Pressure / High Colesterol / Migraines. Ain't life a joy?



* I think it may be time for a colorful metaphor*


spooky
Regular Member


Date Joined Jan 2006
Total Posts : 101
   Posted 8/5/2006 8:41 AM (GMT -7)   
Hi there,
               Lupus can involve many organs and peripheral neuropathy is in the list but sure is uncommon.
               You have a family history of diabetes and you have been on steroids for 14 months and counting,and that's a recipe for Diabetes to occur.
 
               You had a previous episode when your sugars went high which you could bring back.Now the precipitating factor is prednisolone.Containing the flare in lupus is the first priority for you and steroid-induced Diabetes is incidental.Usually once the steroids are tapered off,the glucose values return to normal,but in your situation it is unlikely because of the prolonged use of high dose steroids.
 
                Don't worry about the glucometer accuracy when your sugars are in the mid 200's.Anyway glucometers are not designed for diagnosis of Diabetes.
 
                Yes,the neuropathic pain will and should subside once you can bring blood glucose values to within limits.There are many medications touted as the best for managing neuropathic pain,but blood glucose control is the best drug yet!
 
               Thumbs up!

ilovecats94
Regular Member


Date Joined Jul 2006
Total Posts : 190
   Posted 8/5/2006 3:53 PM (GMT -7)   
Spooky is right, blood sugar control is the best for neuropathy as I don't have much pain at all.

Also if your meter says you are in 200's, then you really need to see a doctor about that, and you may need to go on a med to lower your sugar while you are on steriods. The steriods would be enough to put you over the edge and give you full blown diabetes, I believe. Keep in mind, I'm not a doctor.

Hugs,
Faye
Hypothyroidism (1953), Diabetes type 2 (1976), High cholesterol (1989), Gastroparesis (1990), FMS (1995), and GERD (2006).


Lonna
Regular Member


Date Joined Jun 2006
Total Posts : 77
   Posted 8/5/2006 7:12 PM (GMT -7)   
Thank you so much for your responses. I see my rheumatologist on the 20th and he'll give me the test results and lead me in the right direction. I'm just so worried the neuropathy will get worse as it is very painful to walk and I don't do much on my feet because of it. (part of my pain is from the lupus too) How long can blood sugars be high before damage occurs to the brain and heart? I've cut out sugar and am trying to limit carbs and eat balanced meals but it is hard. I'm about 30 lbs overweight so losing it would help my feet but that's been very hard for me too. Thanks for your support....Lonna
DX: lupus, headaches, hairloss, lipoatrophy, high blood pressure, allergies, chemical sensitivities, neuropathy in both hands and both feet
 
Meds: placquenil 200mg, prednisone 7mg, cozaar 100mg for high blood pressure, effexor 75mg antidepressant, trazodone 100mg & lunesta for sleep,vicodin for pain, imitrex nasal for migraines, nasonex and astelin for allergies.


ilovecats94
Regular Member


Date Joined Jul 2006
Total Posts : 190
   Posted 8/6/2006 1:54 AM (GMT -7)   
Generally blood sugars need to be high for years to cause damage, but I would think it would depend how high. Someone running around 500 for 3 years is probably going to have big problems.

My son has neuropathy in his feet so badly he had to take Lortabs because his job at the time was retail and he was on his feet most of the day. Now he has a desk job and by controlling his sugars better, he doen't have pain much anymore.

I also have hair loss since 1993 (prior to FMS), and I have heard that flax seed helps, so I'm going to try flax seed oil to see if it helps getting my cholesterol down. I'll post if I see any thicker hair from it. lol

Hugs,
Faye
Hypothyroidism (1953), Diabetes type 2 (1976), High cholesterol (1989), Gastroparesis (1990), FMS (1995), and GERD (2006).


Lonna
Regular Member


Date Joined Jun 2006
Total Posts : 77
   Posted 8/6/2006 7:53 AM (GMT -7)   
Thanks for your post. I'll try not to worry, my appt. is in 2 weeks and they've done lots of tests so hopefully we'll know what is going on. I'm being treated at an excellent clinic so I know they'll get to the bottom of this. I'm glad to know the pain may subside since the vicodin is just taking the edge off. It's just so all consuming right now it's hard not to think about it. I'm happy and look healthy but I don't do much. I have about 4 hr. a day I can be on my feet at the most, not all at once. Oh well.....thanks
Lonna
DX: lupus, headaches, hairloss, lipoatrophy, high blood pressure, allergies, chemical sensitivities, neuropathy in both hands and both feet
 
Meds: placquenil 200mg, prednisone 7mg, cozaar 100mg for high blood pressure, effexor 75mg antidepressant, trazodone 100mg & lunesta for sleep,vicodin for pain, imitrex nasal for migraines, nasonex and astelin for allergies.


IpheliaPayne
Regular Member


Date Joined Aug 2006
Total Posts : 35
   Posted 8/8/2006 9:26 AM (GMT -7)   
I just wanted to say hello and good luck with your upcoming Dr.'s appt. I'll be interested to hear what you find out about the neuropathy. I am dealing with something simular as well and totally understand what you mean about vicodin just taking the edge off.

And Faye, flaxseed oil? Wow...hope it works. If it does, I'll stock up! (ha)

All my best. Take care All,
~Jen
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