At my wits end..

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IpheliaPayne
Regular Member


Date Joined Aug 2006
Total Posts : 35
   Posted 8/7/2006 7:09 PM (GMT -7)   
Hi everyone!

Brand new here and have a couple questions for you guys. I was diagnosed with type 2 almost two years ago. It was found by accident when testing for the reason behind diziness, vertigo and leg&foot PAIN. I was diagnosed Fibro almost 5 years ago, but this kind of pain was all numbness, tingling and a shocking type feeling in my feet and legs. The pain is intense, but also ultra annoying.
Skip forward to now...Doc says its neuropathy, but there have been no definitive tests, just going on symptoms. I have been on 600mgs of neurotin 3x a day, cymbalta and vicodin for the last year. The vicodin was mainly for breakthrough pain, but its constant. I also use ultra stregth Tiger Balm- I dunno if it does much, but feels decent.
I take metfomin for the diabetes and spirolactone for blood pressure as well.
I need help. The PAIN, burning, tingling, numbness, shocking feeling is driving me slowly insane! Does anyone have any ideas, suggestions, comments that could lead me in the right direction? Any help would be more then appreciated!
Sorry for the long post. Thanks All.
Take care,
~Jen

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/7/2006 7:20 PM (GMT -7)   
Hi Jen,

And welcome to Healing Well! I'm also a fibro and diabetic on insulin for over 13 years. I've just started to get a bit of neuropathy in one foot so am also interested in hearing what the others have to say. I've worked hard at keeping my sugars under control and my A1C's are great. But, the nerve that feeds this part of my foot (#5) comes from where I have a collapsed disk. I can't handle neurontin nor cymbalta...nor lyrics, nortrip, amatryp, tagretol...you name it. The side effects are a nightmare. Anyway, I know answers will come along. Hang in there girlfriend.

Chutz
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.....sheesh, what a wreck!
***************

The only difference between genius and stupidity is that genius has it's limits.
Albert Einstein: (1879-1955)


spooky
Regular Member


Date Joined Jan 2006
Total Posts : 101
   Posted 8/7/2006 9:37 PM (GMT -7)   
Hi there Jen,

welcome!To sum up you have fibromyalgia(which too affected your lower limbs),Type 2 Diabetes on Metformin for two years,High blood pressure and symptomatically diagnosed 1 year back to have peripheral neuropathy on Neurotin and Vicodin.Vicodin potentiates the action of Neurotin.Beware,Vicodin is addictive.

How is your blood sugar control? Tight control of blood sugars is still the best drug for your neuropathy-like symptoms.Metformin is for starters and may not be enough later on,though i cannot definitively say how long metformin alone would suffice!It depends on the severity of diabetes.

Objective testing in a clinic by a physician will be very useful to confirm the diagnosis.

Though you're suffering,the the fact remains that the symptomatic neuropathy is only of one year duration,which stage is considered "reversible".

There is one drug yet which should prove very useful to you and that's "Alpha-Lipoic Acid",which is already approved in Europe for Diabetic neuropathy!I hate to say this,but for your immediate benefit i must---"Bio synergy in USA is marketing alpha-lipoic acid as"R-Alpha Lipoic Acid" casules of 100 mg strength each and two capsules per day should suffice!Hope this is of help!Thumbs up!

Please don't give up hope.Please let us know your present fasting and 2 hour post-meal values.

IpheliaPayne
Regular Member


Date Joined Aug 2006
Total Posts : 35
   Posted 8/7/2006 10:09 PM (GMT -7)   
Hi Chutz and Spooky! Thank you for the replies!
I have had 3- 12 hour fasting sugar tests which ranged from 139-177. Two hours post meals run anywhere in the 150-200's. My mornings used to be the highest, but after a few months on meds, they are now sitting in the 120-130's, so thats good from what the doc says.

I gave up soda's 2 years ago and have been watching my carbs. I've been trying my best to follow a "traditional" diabetic diet with smaller meals more often, but old habits are hard to break. Our main meal has always been evening and I know thats the absolute worst.

I was a hairdresser for 12 years with 8-10 hours a day on my feet. There was always pain and numbness, but definitely not to the extent, after being off 2 years, that it is now. I suppose thats one thing thats hard for me to figure out that now I am resting more, taking better care of myself, I am in more pain all the time. Not to complain, but every person has their limits.

With the vicodin, my doc said that was easier on my organs then all the advil I was taking, but I try to limit them as much as possible. I can't say they kill the pain whatsoever, but it does seem to take an edge off.

One thing that may be totally unrelated, but I have TMJ and have been breaking my teeth. I know the clenching/grinding wears teeth, but they are getting weaker and weaker. I wonder if these is a med side effect or a diabetic side effect?

I will look into the Alpha Lipoic Acid- thank you for telling me about it! Is this an oc med?
Thanks again for the replies and welcomes!
Take care,
~Jen

IpheliaPayne
Regular Member


Date Joined Aug 2006
Total Posts : 35
   Posted 8/7/2006 10:13 PM (GMT -7)   
Oh, as a P.S...My blood pressure being higher is due to pain levels. I have tried to convince my doc of that, but when I go in, if I am in a lot of pain that day, bp is high. She added the med more as a precaution to having high bp causing later probs.
Thanks again!

ilovecats94
Regular Member


Date Joined Jul 2006
Total Posts : 190
   Posted 8/8/2006 2:23 AM (GMT -7)   
Iphelia,
I have neuropathy of the feet.  I have found the best thing is to keep my sugar as good as possible.  I have had type 2 for 29 years. 
 
Next best thing is the meds I take for FMS, Prozac, Xanax, Diclofenac/Cytotec.  Also I take Lortabs when I need them. 
 
Basically my feet don't bother me much anymore.  The loss of sensation/numbness does drive me sort of crazy though, but the shocking sharp pains I don't get like I used to.  I sort of think once you can get your FMS under control, you'll have your neuropathy under control.
 
I've never seen a neurologist about my feet before or stayed on any of the meds given for that, that are popular.  I sort of just suffered through the pains at night.  It really never got so bad that I had to get up and take anything for pain. 
 
I'm really sharp about my sugar though.  I am on insulin, so I think that helps me as I can control how much I take due to what I eat and what my blood sugar levels are. 
 
I do understand what you are going through.  Sometimes I wonder if my nerves have just given up on the pain part?
 
Hugs,
Faye

Hypothyroidism (1958), Diabetes type 2 (1976), High cholesterol (1989), Gastroparesis (1990), FMS (1995), and GERD (2006).


spooky
Regular Member


Date Joined Jan 2006
Total Posts : 101
   Posted 8/8/2006 7:29 AM (GMT -7)   

Hi there,

            Yes,the medicine i mentioned is an anti-oxidant and is available otc.

            I feel you should add a multi-vitamin,multi-mineral like centrum silver to your list of drugs.

            I googled around for you and found this website informative:

http://www.uspharmacist.com/index.asp?show=article&page=8_996.htm


IpheliaPayne
Regular Member


Date Joined Aug 2006
Total Posts : 35
   Posted 8/8/2006 9:17 AM (GMT -7)   
Hi Faye and thank you for your response! Thank you too spooky for looking up and sending me the link!

I do take klonopin at night to help wind down and sleep cause it always seems the pain is worse at night, for whatever reason.

Seems like I am on the popular drug choices or have tried them. The neurontin in the beginning was a godsend. My bod seems to be getting used to it because its not giving me the same benefits as before, but doc keeps upping the dose. I really think its time for me to find a new doctor. Seems as though we have hit a rut. Instead of changing meds, she just keeps upping the old ones- which in same cases may work, but isn't proving effective for me.

I just want to say thank you again! I am so thrilled I found this board with all the wonderful information and kind, thoughtful, knowing people.
Take care All,
~Jen

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 8/21/2006 7:24 AM (GMT -7)   
Jen,
I have diabetes, fibro, tmj and neuropathy, although it's not as bad as yours. It's only my 2ยข but I don't think your doctor is being aggressive enough in your diabetes control. You need to see morning sugars of 100 to 110 or less and after meal 2 hr. checks under 180. My neuropathy is much better when I keep my first morning readings around 90 and 2 hr. post meal around 150. This is because I have low enough sugars to keep the blood supply thin (not as many huge sugar molecules) and the oxygen and nutruients can reach the nerve fibers. (It is thought that the pain is caused by dying nerves.) I found an online article that sums it up pretty well.

"The exact cause of diabetic neuropathy is not known. Researchers believe that the process of nerve damage is related to high glucose concentrations in the blood that could cause chemical changes in nerves, disrupting their ability to effectively send messages. High blood glucose is also known to damage the blood vessels that carry oxygen and other nutrients to the nerves. "

Anything that helps with circulation, such as walking or swimming or even going up and down your stairs a few times a day will help. Increasing your intake of B vitamins will make sure that they are available for nerve health. I'm also getting better sugar control with the addition of Lantus insulin, one injection at bedtime. That has really brought my sugars in line.

I feel that you need to take tighter control of your diet and meds to get the numbers down. This should lead to a slowdown in the nerve death in your legs and feet. By asking your doctor for a tighter control diet and med regimen you will show him/her that you are interested in preserving your own health. By being more careful in your food choices you may be able to preserve your sight and kidneys much longer. See if your insurance will cover another nutrition class and start learning about glycemic index food choices. There is a food choice application that I downloaded called CalorieKing that really helps with my food plan. Something like that on your computer will keep you in line, too.

I will happily be your cheerleader as your numbers come down. You let me know how you are doing and you will be an inspiration to anyone with this dumb disease. I'm glad to make you as a new friend, but sorry for the reason. Take care.
~ Jeannie

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."

- Elizabeth Kubler-Ross


IpheliaPayne
Regular Member


Date Joined Aug 2006
Total Posts : 35
   Posted 8/23/2006 8:14 AM (GMT -7)   
HI Jeannie and thank you for all your response and wonderful info!

I went to a new doc yesterday. I had another fasting- AC1 (?) the 3 month sugar average, liver functions, cholesterol and some other random ones that I can't think of. Those were the top 3.

He seems to be interested and a little agressive. I wasn't expecting much, since I am pretty well bummed with docs in general, but he left me feeling like we might get somewhere. He mentioned first thing about adding insulin to get my numbers lower, but he'll decide after the bloodwork come back.

He did add Requip to my laundry list of meds for restless leg. He thinks it will help with the neuropathy pains. I take it at night, 2 hours before bedtime, buildup over 2 weeks. I have to say, and I hope I am just not hoping too much, but I think last night was better! I actually slept in 2-3 hour spurts instead of up and down for hours on end. So, fingers crossed, maybe its a med that will help me and others too. Even a tiny bit of relief keeps a persons chin up. :)

The Gerd symptoms have been really severe over the last couple weeks. I am not sure what kicked it into high gear, but I have been having a lot of dental work done and 2 shots of antibiotics since I can't take them orally and maybe thats part of it? Not sure. Today is another root canal. It's amazing to me and my dentist how last May nothing was wrong with my teeth and since then, 11 have broken and/or absessed. I guess thats a subject for another thread though. It just keeps me wondering and searching for clues as to why. If its a med thing, diabetic thing or what...

I guess I have blathered on enough. Thanks again everyone for all the wonderful info, support and compassion! My thoughts are with you All!!!
Take care,
~Jen

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 8/23/2006 12:27 PM (GMT -7)   
Jen,
The dental problems may be diabetes related. Our bodies try to excrete excess sugar any way that they can and it shows up in our urine, sweat and saliva. I have 12 gold crowns and have 'enjoyed' three root canals so far. I understand completely! Also, high sugars make us prone to infections along with decreased circulation which allows the germs to grow and inhibits the antibiotics and our own antibodies from reaching the infected areas.

My physician started me on Colgate Total toothpaste as soon as I was diagnosed as a diabetic. So far it's the only toothpaste I have seen that works directly on the problems that diabetics face with tooth decay and mouth bacteria. It also helps kill the bacteria that cause plaque build up. These same bugs have been identified in causing plaque build up in our arteries and there has been a link established between heart attacks and poor oral health. I don't mean to sound like a commercial but you may find a lesser incidence in gingivitis and plaque if you switch toothpastes.

Glad you found a better doc. If you have to start on insulin we will all be with you thru it. It's about as hard as learning to apply mascara for the first time, honest! Take care.
~ Jeannie

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."

- Elizabeth Kubler-Ross


coton
New Member


Date Joined Aug 2005
Total Posts : 6
   Posted 8/24/2006 12:24 PM (GMT -7)   
:-)  Hi Jen,
My husband had neuropathy mostly in his feet but also starting out in his shoulder & knee.  The shoulder & knee pain is gone. The feet do not cause him pain but he feels a slight tingly feeling at times.  My husband  takes Metformin,  his sugars are well controlled.
 
We are well aware of the progressive dangers of diabetis and want to make sure my husband keeps his health as much as possible.  With that in mind we searched out some complementary methods of help for him.  He is unable to take B/p Medication past the minimal strength,  also his kidney spill was progressing,  he is unable to take much of Altace at all. 
 
What we did find was some homeopathic formulas that are absolutely awesome at controlling his B/P, his kidney spill has actually improved which is unheard of and most important of all since his arterial / venous blood flow is improved, his kidneys improved his neuropathy has all but gone.  It is important that you get those arteries, veins flowing properly and also your kidneys preforming well. 
 

Post Edited By Moderator (Admin) : 8/24/2006 4:18:55 PM (GMT-6)


IpheliaPayne
Regular Member


Date Joined Aug 2006
Total Posts : 35
   Posted 8/28/2006 9:34 AM (GMT -7)   
Hi Jeannie- Thanks again for all the great info! Just regular Colgate? I'll get some when I head to the store tonight. Willing to try anything and I hadn't heard about a difference between one toothpaste and another.

Hi Coton- Thank you for your reply and great info, too! Depending on what my Doc says next week, he is going to add another B/P med since the Spirolactone (sp?) isn't enough. My B/P was really high when I went to the Doc last week, but pain level was high and I was nervous, so he wants to see what it will run next time. Makes so much sense about the blood flow. That is so wonderful about your husband finding relief and his kidney performance! What homeopathic formulas did you find that made such a difference?

Thanks again. My thoughts are with you All.
Take care,
~Jen

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 8/29/2006 9:43 PM (GMT -7)   
Colgate Total.
~ Jeannie

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."

- Elizabeth Kubler-Ross

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