Dietician and diabetes consultant

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eljay1066
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Date Joined Jan 2003
Total Posts : 3166
   Posted 9/27/2006 12:03 PM (GMT -7)   
I am seeing the dietician this Friday and the consultant the following Friday.  I have forms, am keeping track of what I eat for three days and filling out a questionnaire.  I'm wondering if there are any questions I should keep in mind to ask them.  Is it really necessary to eat more often? Because of the Crohn's, I have a hard time eating more than three or four times a day, even though I can eat only a little at a time.  I'm losing weight and I know that's good for the diabetes, but I'm wondering whether I'll be able to adapt to a more regimented schedule.  Now, I don't eat if I have to go somewhere because I'll need a bathroom and might not be able to get there.  So my meal plan might start at 3:00 PM instead of in the morning.  I guess I'm answering my own query about what to ask, but are there any other suggestions? Thanks.
Take care. Lois




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Pin Cushion
Regular Member


Date Joined Feb 2003
Total Posts : 442
   Posted 9/27/2006 7:54 PM (GMT -7)   
Lois,
Having both diabetes and crohns can be a losing battle at times when it comes to what to eat and when. I too have modified my eating times to later in the day. Lunchtime ( 1 -2 pm ) is usually my breakfast meal.
If you have a by the book dietician they won't understand and will try and get you to eat 5 - 6 times a day. IT doean't work for me and it may not work for you. It will take time to find what is right but stick with it till you do. But make sure they understand you have active crohns and it has to be this way.
AL
Sigmoid Colostomy / Crohns / Type 1 Diabetic / Ostioarthritus / Fibromyalgia / Asthma / High Blood Pressure / High Colesterol / Migraines. Ain't life a joy?



* I think it may be time for a colorful metaphor*


Jeannie143
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Date Joined Apr 2004
Total Posts : 6056
   Posted 9/27/2006 9:49 PM (GMT -7)   
Lois,
Can you handle baby food? See if you can get the nutritionist to work some alternative meals of baby food into the mix. My daughter usually keeps some pureed stuff on hand for when her CD is acting up but she needs the calories to work. I can't tell you the number of times that she has just about lived on baby food while her system rested. It's small amounts of fruit or veggie or even the meat/noodle purees and seems to do the trick for her. She does add a bit of salt to it but other than that she eats it right out of the jar.

Also, your nutritionist may not just have a perfect food plan for you with CD and Diabetes. What I'm saying is that he/she may need some time to come up with the right foods at the right times so you can control your bathroom times. Let him/her know that you would prefer some time was spent working out a plan for you rather than just being handed a pre-printed food plan.

Definitely take in a list of your 'off limits' foods that bother you the most. Also, if you have a favorite food combo that works note that as well. Some things with Crohns are just weird but the dietician may not know that. My daughter can eat egg whites, but gets violently ill on the yolks. She can live on pineapple and cottage cheese for days at a time. She can't do whole grain breads or any fruits dried with sulfites. Let your nutrionist know that sometimes you may have to fast just to stay away from the bathroom and ask for help adjusting medication amounts with your blood sugars as well.

An appointment with a food specialist costs you and/or your insurance a lot of money. Make sure this one does their homework and you get your money's worth. You have a set of conflicting diagnoses that require a special food plan. Don't accept anybody's cookie cutter print out. (Jeannie gets off her soap box and walks away.)
~ Jeannie

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."

- Elizabeth Kubler-Ross


eljay1066
Veteran Member


Date Joined Jan 2003
Total Posts : 3166
   Posted 9/28/2006 10:58 AM (GMT -7)   
Thank you both so much. You both have experience as well as knowledge, and this is just the kind of information I need. I will explain my "special needs" and ask for a plan that incorporates them. I don't have the results of my last tests yet, unless they are in my mailbox now, but I expect the numbers to be pretty good since I am losing weight and not eating as many carbs as I used to.

Jeannie, yes, I do have baby food, and use it. I mix fruit with plain yogurt and eat it with my cheerios. Sometimes I use the meat like gravy and pour it over mashed potatoes. I am going to make some chicken soup this weekend and I'll put in some jars of carrots, beans, etc. to give it a little more body. The other things that I eat, I chew until they are the consistency of baby food.

Again, thank you so much for your help and caring.
Take care. Lois




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Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 9/29/2006 9:39 AM (GMT -7)   
Lois,
Sometimes when things are going rough for my daughter she also puts raw fruits and veggies thru the juicer. I don't know how this would work for your diabetes because removing the fiber can lead to sugar spikes for non Crohns peeps.(She is not diabetic.) Your GI system may absorb differently so if you juice a carrot and an orange together and make a small glass of juice it may be better for you than trying to handle them whole. The fiber in both of those great foods gives her the big D. I would recommend that you find a friend who has a juicer sitting on a shelf and borrow it for a while or maybe get one on eBay. (They are expensive to purchase new, even a cheap one is about $75.) Do some juice, see if your system handles it and then check your blood sugar at 1/2 hr and an hour. Just a thought... trying to help you out in a difficult situation. BTW, thanks for the meat/gravy/potatoes idea. I'll pass that one on to her. You might want to share that in the Crohns forum, too! :-)
~ Jeannie

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."

- Elizabeth Kubler-Ross

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