Syndrome X diabetes?

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kie
New Member


Date Joined Oct 2006
Total Posts : 17
   Posted 11/1/2006 1:42 PM (GMT -7)   
my father was diagnosed with diabetes a few years ago and syndrome X. however, he is not obese and never has been. he's actually been very active his whole life and is in great shape and he also eats well. he also has no blood relatives with diabetes syndrome x that we know of. (and it's a small family. if he did, we'd know) his doctors are confused as to why he has this condition as there is no known genetic component and he is not overweight. he doesn't fit the profile. it just doesn't fit. he manages it very well but if anyone has any answers or a similar story it could help. is it possible there's been a misdiagnosis?

i'm a med student and my teacher briefly told us of a friend of hers also diagnosed with diabetes who does not fit the profile and doctors later found he had abnormal iron levels in his blood and diagnosed him with something else saying that he actually doesn't have diabetes and never did. are there other illnesses that could be mistaken for diabetes even if tests show that you have diabetes?

-confused

Warren
Veteran Member


Date Joined Oct 2005
Total Posts : 534
   Posted 11/1/2006 2:19 PM (GMT -7)   
When I was diagnosed with diabetes I was 5'10, 175 lbs. and 7% body fat.  Needless to say I didn't fit the profile.  I've had type II now for a number of years and all the doctors can say is that somewhere in my genes must have been a predisposition for the disease! 
 
Its nice to know if something else might be causing the diabetes, but typically there are signs of something else wrong by the time diabetes shows up (if there is a causal link).  Sometimes we are just earmarked for the disease and there isn't much we can do to get out of its way, so we have to use all the tools you find here to make sure you live to be a ripe old age.
 
scool  Warren
 
PS - make sure you are seeing an Endocrinologist and NOT a GP if you are truely one of the syndrome X people.  He's the one that can give you answers on whats going on with your particular condition. And Endo can also do a battery of specific tests that can help confirm the diagnosis or point to more tests to look for that causal link

kie
New Member


Date Joined Oct 2006
Total Posts : 17
   Posted 11/1/2006 3:06 PM (GMT -7)   
Thank you very much! after reading your post i called my dad and asked if he's been to an endocrinologist or if just his general practitioner diagnosed him, and he said he has not been to an endocrinologist. we'll set up an appointment for him. thank you very much, you have been extremely helpful!

Rabbin
Regular Member


Date Joined Oct 2006
Total Posts : 52
   Posted 11/18/2006 3:12 PM (GMT -7)   

I have been on high dose's of insulin now for well over fifty years.  I was always very active and never had a weight problem in fact many say I'm still to thin!   I have managed to have not had a lot of the side affect of my type 1 onset juvenile diabetes.  I have healed well from infections ect ect.  However blood sugars have fluctuated like a yo yo on a string.  I have always eaten good foods and never have i been known to abuse those foods that are not good for you.  I was raised on a farm with out of the garden greens and lots of them.  Yet diabetes hit me like a rock many many years ago.

My doctors use to say I was the strangest diabetic they had ever seen!

Now that I am older I find some things don't work as they should which is problematic with high and low blood sugars.  Yes a good endocrinologist I also recommend!

Don't know if this information is helpful or not the term X through me a bit!  LOL

May God Bless and Keep you

David



David aka Rabbin


Warren
Veteran Member


Date Joined Oct 2005
Total Posts : 534
   Posted 11/18/2006 10:44 PM (GMT -7)   
Hi Rabbin,
 
Syndrom X is typically associated with insulin resistance and type 2 diabetes.  It is the multiplicity of symptoms in a cluster, aka, high blood pressure, obesity, high cholesterol, high blood sugar, etc.  What was confusing to Kie was that his father was diagnosed with "syndrome x" without having any of the "cluster" symptoms except possibly high blood sugar.  The diagnosis of "syndrome x" was probably dead wrong, but the diagnosis of diabetes could have been correct in that you definately don't have to have a cluster of symptoms to suddenly become insulin resistant.  Most typically, lifestyle is a huge trigger or contributor or casual agent for type 2 diabetes, but sometimes its just genetics.
scool  Warren

Curious Drew
New Member


Date Joined Nov 2006
Total Posts : 6
   Posted 11/27/2006 5:57 PM (GMT -7)   
Kie,

I don't know if your Dad is a Vietnam verteran, but I just recently found out that diabetes was added to the list of diseases associated with Agent Orange and other herbicides used in Vietnam. If he is a Vietnam vet, have him go to the VA and check it out. He could be in line for compensation and free treatment.

Curious Drew
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