My daughter's bs is 349!

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AMM
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Date Joined Dec 2006
Total Posts : 234
   Posted 6/16/2007 10:01 AM (GMT -7)   
She is 2 hours pp and was at a baseball game with her grandparents.  She ate 2 hotdogs, cheese fries and had some regular bubble gum while she was with them.  She did drink diet pop.  When she got home she went straight to the fridge and downed two cans of diet pop in under 5 minutes.  Called her pediatrician and we are on our way to the ER. 
What doesn't kill you makes you stronger.  Shouldn't I be invincible by now?


LanieG
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Date Joined Nov 2006
Total Posts : 5393
   Posted 6/16/2007 1:52 PM (GMT -7)   
I hope and pray she's ok. Is she on meds? Please tell us how she is.
Lanie
"pre-diabetic" controlled so far by diet and exercise
following low/no carb diet, no meds


AMM
Regular Member


Date Joined Dec 2006
Total Posts : 234
   Posted 6/16/2007 6:03 PM (GMT -7)   
She didn't have the healthiest food while out, but it shouldn't have caused her to go that high. The doctor said if everything was working properly she could have been eating nothing but candy and it wouldn't have done that. She did go back down to a nice 88 after 5 hours, but it shouldn't have gone up in the first place. I checked an hour after her 88 also. She had not eaten anything but was 158 before supper. I gave her salad and some steak for supper and will check her bs again in a few minutes. She had some sugar in her urine, but her ketones were OK. I am to keep a record of her readings for a few days, make an appointment with her doctor on Monday and set her up for a glucose tolerance test. I gave her a brand new freestyle flash to call her own. She really likes it. She also likes testing her blood sugar because it is like me. They are hesitating to call it diabetes, but they know she isn't handling glucose like she should. I'll keep you posted on how things are going with her. Oh, and she is peeing so frequently that she hasn't always made it to the bathroom. I'm not real satisfied with what the hospital did but I am watching her. As long as it doesn't spike like that in the next couple days she'll be ok until they do more tests.
What doesn't kill you makes you stronger.  Shouldn't I be invincible by now?


AMM
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Date Joined Dec 2006
Total Posts : 234
   Posted 6/17/2007 6:32 AM (GMT -7)   
After her supper of steak and salad she was 109. I gave her celery and peanut butter for a bedtime snack. This morning her fasting is 118. She has been doing so good about testing her blood sugar and wanting to eat food that will help her. This morning she had to go through a whole list of foods. She would tell me the food and I had to tell her if it was bad for her, good for her or something she could just eat a little of. I am keeping a record of everything she puts in her mouth and all the blood test results to take to the pediatrician. I don't think her fasting should have been 118 this morning, especially on just celery and peanut butter.

Lanie, No she is not on any diabetes medication. She is on a medication that diabetes is a risk factor of taking it. We tried many other drugs to help with that problem, but the only one working is this one. With our family history of diabetes I really didn't want to put her on it. We tried other meds and we tried unmedicated. After consulting with several doctors I allowed her to go back on it. She has a brain disorder and it causes violent episodes where she can hurt herself or others. The risk of her being badly hurt or hurting someone else was worse than diabetes. It was a choice I didn't want, but had to make. I was certainly hoping that it wouldn't happen to her, but the risks were not in her favor. Everyone is telling me that at least she is in good hands since I have been a diabetic most of my life and am very active in diabetes awareness in the community. I know I will do my best to take care of her, but my heart is breaking. They gave no definate diagnosis until after all the tests come in, but I know what signs I am seeing and that 349 scared the crap out of me.
What doesn't kill you makes you stronger.  Shouldn't I be invincible by now?


LanieG
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Date Joined Nov 2006
Total Posts : 5393
   Posted 6/17/2007 8:19 AM (GMT -7)   

My heart goes out to you.  Choosing for her to take that medication or not puts you between a rock and hard place, the lesser of 2 evils, I suppose.  First and foremost, I'm sure the brain disorder is priority.  I suppose the high blood sugar takes a back seat in importance but can still be dealt with.  Besides being her loving mom, you are perfect for her understanding and dealing with the high blood sugar readings. so in this small way you might have more control of the situation.  Even though her fasting was higher than you wanted, it seems like her readings are coming down, so you've been successful in that regard.  I wonder if some oral diabetes meds would help the rest of the way?  Good luck with her tests this week.  Hopefully, the careful diet you've got her on will avoid a repeat of that high number, and I'm glad your daughter is not fighting having to use the blood glucose monitor, a small relief.

And don't forget to take care of yourself through all this!

Lanie


"pre-diabetic" controlled so far by diet and exercise
following low/no carb diet, no meds


Phishbowl
Veteran Member


Date Joined May 2006
Total Posts : 547
   Posted 6/17/2007 8:21 AM (GMT -7)   
I'm so, so sorry to hear that news, AMM. It does seem like something is definitely going on with your daughter's metabolism. I hopeful that you will get those answers ye seek and that all will become manageable as quickly as possible. I just hate hearing about the youngins' having to deal with this stupid disease. My thoughts and prayers are with you <hugs>.

Kris
Cheers,
- Phishbowl (Type 1 since Jan'05 - Levemir, NovoRapid)
"What's Not Measured Is Not Managed"

"It is impossible for a man to learn what he thinks he already knows"-Epictetus


AMM
Regular Member


Date Joined Dec 2006
Total Posts : 234
   Posted 6/17/2007 11:35 AM (GMT -7)   
This morning I gave her 2 scrambled eggs, 1 slice of whole wheat toast and 4 oz. apple juice. I was really nervous giving her the juice, but I know how much she loves it. Whe prefers 8 oz. at breakfast but she got 4 oz. of juice and 4 oz. of water! She didn't notice a thing. Two hours pp her reading was 168. We ate a late lunch and I was happy to see a pre lunch reading of 102. Hubby cooked lunch while I was at church. He thought he was doing real good but he made peas for a veggie. He also made a little rice, but he knew we couldn't have a lot of that so he made a small amount. I just measured her rice and peas so she didn't have too much. She had a pork chop, but it wasn't fatty. Weighed it and gave her 3 oz. of meat. I have a nice digital food scale, so that helps me write down exactly what she eats. She is being such a good girl about all this. We have to take her to her ball game. I'll tell you later about her "urine samples".
What doesn't kill you makes you stronger.  Shouldn't I be invincible by now?


tangerine bear
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Date Joined Aug 2005
Total Posts : 941
   Posted 6/17/2007 5:28 PM (GMT -7)   
My heart goes out to you AMM. It is hard enough worrying about my own readings... I can only imagine the stress you must be dealing with! How old is your daughter? I just want you to know I'm sending (((((Hugs))))) to you both.

Bear
"It's a jungle out there....." 
Theme song from "Monk" by Randy Newman
 
"Turn this car around... I'm goin' back..."
Tom Petty
 
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4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 6/17/2007 5:33 PM (GMT -7)   
My thoughts are with you and your family! The stress we feel on behalf of those we love is huge! Hang in there ... you're a great mom!!
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


Dead Man walking
Regular Member


Date Joined May 2007
Total Posts : 49
   Posted 6/17/2007 7:44 PM (GMT -7)   
Please add my prayer to growing list of prayers on this thread!
 
Kids love snacks. I have been eating these Atkins advantage bars with one gram of sugar, no sugar alcohol, and lot of other good stuff.  My favorite are the Chocolate Peanut butter bar, and the chocolate coconut bar. They taste awesome!  Just like a Reese peanut butter cup. Actually better, since I dont like the taste of that much sugar anymore. LOL.
 
Some of the other flavors made by Atkins have a couple more grams of sugar so don't forget to read the box if you try them.  
 
They are expensive, but a five pack at Walmarts is under 8 bucks.

AMM
Regular Member


Date Joined Dec 2006
Total Posts : 234
   Posted 6/18/2007 3:39 AM (GMT -7)   
Thanks DMW, but she really isn't much of a snacker. The first thing she did was go in her room and throw away all of the candy she had. She is, however, mourning french fries with cheese! I was a little like that when I developed diabetes as a kid. When I came home from the hospital, I simply refused to eat anything I wasn't allowed to have. (If only I had stayed like that!) She's doing so well. I am very proud of how she is handling this. Me, on the other hand, is a totally different story. I feel like I have been run over by a freight train.
What doesn't kill you makes you stronger.  Shouldn't I be invincible by now?


4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 6/18/2007 5:58 AM (GMT -7)   
Oooooooo, AMM, my heart goes out to you!!! I'm proud of your daughter AND proud of you. You're doing such a great job and raising such a terrifically responsible kid. I hope you're able to get some emotional rest soon!!
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


Jeannie143
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Date Joined Apr 2004
Total Posts : 6056
   Posted 6/18/2007 7:15 AM (GMT -7)   
AMM,
I'm beginning to think you are invincible... You sure handled this well. Hope this continues to work out for you both.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
~Please remember that 50% of all doctors graduated in the bottom half of their class! Yours may be one of them...
==================
"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."
- Elizabeth Kubler-Ross


AMM
Regular Member


Date Joined Dec 2006
Total Posts : 234
   Posted 6/20/2007 4:36 AM (GMT -7)   
The past couple days have been really nuts. Monday morning I called to get an appointment with her pediatrician as I was told to do at the hospital. They told me to come in at 10, so I did. When I got there the pediatrician asked me what made me worried about her blood sugar. So I told her she was drinking alot, peeing alot, tired, etc. Then she turned to me and said, "Well, what business do you have with a blood testing meter?" (I have told her many times that I have diabetes.) I said, "27 years as a type 1 diabetic is what business I have with one, not to mention you can buy them anywhere." So then she asks me what right I have to take her blood. I am thinking, "Lady, you are acting like I am giving my child narcotics, not taking a drop of blood out of her finger!" I told her the hospital recommended a glucose tolerance test. So she writes me a prescription and tells me to schedule one at the front desk. After I schedule the thing I notice on the slip the receptionist gave me it says, 1 hour glucose tolerance test! So, I am wondering what good is a one hour gtt since your bs spikes 2 hours after you eat. So, I just drive on home and call the Joslin Diabetes Center. I got lucky and the CDE had actually been the one to answer the phone. I told her everything that happened at the pediatrician. She told me to take her to Children's hospital either that night or the next morning. She said it could wait until the next morning as long as I was keeping her numbers reasonable by her diet, but if it went over 200 to leave immediately or if I saw any ketones. My husband was really tired and I wasn't feeling well by that time, so we waited until morning. Yesterday morning I took her to Children's with my Dad. At the ER desk they asked me what had brought us to the ER. I explained what had happened and that I wasn't real comfortable with trusting the pediatrician at that point. When I told them what she said about me testing her blood sugar every staff member turned around and looked with a completely amazed look on their faces. When the ER doctor saw her and I told him what had been going on he actually apologized to me on behalf of the entire medical profession! LOL Then he told me that first off I have EVERY right concerning my child. That doctors and nurses get the privilege of caring for my child only if I give MY consent. Then he said and as for the business you have with a meter, beyond knowing you are a diabetic for your daughter's history, it is none of her business. Then he said he couldn't believe she was offended that I was doing something to help my daughter and make the job of the doctor easier. I had kept a log of every before meal and pp reading I had on her along with a food log with every bite she consumed, including how much. He told me it was wonderful information that would help them to help her. He said with my careful monitoring of her diet and her blood sugar readings as well as that I was checking for ketones if I saw a higher number he didn't feel she would need hospitalized. I have managed to keep her numbers mostly good with her diet. So, he sent us home, told me to continue doing just as I am, make an appointment with the endo for 2 weeks, and good luck in getting another doctor! LOL They didn't start her on meds since her numbers have been good on diet. He said they may add a med in two weeks after all the labs have come in and we see how she does on the diet only for two weeks. Of course, if she starts having a lot of highs or won't come down or spills ketones we are to go back to the ER.
What doesn't kill you makes you stronger.  Shouldn't I be invincible by now?


4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 6/20/2007 4:39 AM (GMT -7)   
WOW ... what an ordeal!!

You probably can't tell, but when you look through the monitor into the real world I'm the one in the pink shirt applauding and waving my arms in the air.

GO YOU!!!!!!!!!!
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


AMM
Regular Member


Date Joined Dec 2006
Total Posts : 234
   Posted 6/20/2007 4:46 AM (GMT -7)   
Oh, I see you! You look lovely! Oh and here is another one for you. When I said I was type 1 she ASKED me if I take insulin. I said, "Yes, I use an insulin pump." as I pointed to it. She said, "Oh that thing. I thought it was a pager." Then when I told her that the night before Amanda had gone to the fridge and ate an entire pound of lunchmeat and an entire pound of cheese right there in front of the open door she said, "Oh my! What would cause her to do that." I said, "Oh, maybe she felt very hungry. And just so you know, excessive hunger is a symptom of diabetes." (I was beyond p.o.ed)
What doesn't kill you makes you stronger.  Shouldn't I be invincible by now?


4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 6/20/2007 5:15 AM (GMT -7)   
:-)

Doctors can really be something, eh? There's a reason Jeannie has the signature line she does! My brother is a doctor (ER) and says the STUPIDEST things to me about diabetes. Because he's my brother I can throw him dirty looks and yell "DUH" at him when necessary, but if someone like him EVER had to treat my diabetes I'd turn and RUN!!!!!!!

Knowledge, TRUE knowledge is power!!!
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


AMM
Regular Member


Date Joined Dec 2006
Total Posts : 234
   Posted 6/20/2007 5:22 AM (GMT -7)   
You don't know how many times I find myself educating doctors. One time I was in an ER for high blood sugar with vomiting and ketones. I was clearly in DKA. The doctor refused to give me an IV until I would consent to a rectal exam! I asked him what the h*ll he wanted to do a rectal exam for since I was in DKA. I called an ambulance to the ER and transferred myself to a different hospital!
What doesn't kill you makes you stronger.  Shouldn't I be invincible by now?


LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 5393
   Posted 6/20/2007 6:59 AM (GMT -7)   

AMM, reading your account with the pediatrician visit is so maddening and frustrating.  Instead of trying to learn something she might not be totally up on, she became offensive.  skull And I suppose that's her only way of defending her ignorance and ultimately her stupidity.  mad You are awsome in taking control of the situation and what a relief the ER people and Joselin Center have their heads on right.  Good luck with Amanda's plight.

I have a question.  Can you explain ketones?  What are they and how do you check them?  I've seen reference to them but don't know anything about them.  redface Thanks!

Lanie


"pre-diabetic" controlled so far by diet and exercise
following low/no carb diet, no meds


AMM
Regular Member


Date Joined Dec 2006
Total Posts : 234
   Posted 6/20/2007 8:05 AM (GMT -7)   
They are the byproduct that can spill into the urine when high sugars are present. They can lead to what is called diabetic ketoacidosis (DKA) which can be fatal. It is not really common for a type 2 to spill ketones, but it can happen. It is most often a problem with type 1 diabetes because we very little to no insulin of our own. You can check for them with a urine test strip. You can buy them over the counter in most pharmacies or walmart. Some places even carry a store brand. I think they cost about $10-15. I was airlifted to Children's hospital when I was 16 due to DKA. It is not fun. It causes nausea, excessive vomiting, peeing, trouble breathing, etc. Untreated it leads to coma and death. The first stages of the high that goes to DKA are the typical thirsty/peeing thing, sometimes diarreah (I never could spell that), then vomiting, then what is called kusmal (spelling?) breathing. The breath is measured by how far away you can feel the breathing. Mine was 6 feet. My heart rate was 180 beats per minute while lying perfectly still. I lost 14 pounds in 8 hours from dehydration. I barely survived.
What doesn't kill you makes you stronger.  Shouldn't I be invincible by now?


SnowyLynne
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Date Joined Apr 2004
Total Posts : 1539
   Posted 6/20/2007 8:16 AM (GMT -7)   
Maybe you could move to another town where the Drs.aren't so stupid,lol.............
SnowyLynne


LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 5393
   Posted 6/20/2007 9:26 AM (GMT -7)   

Thanks so much, AMM.  (You're a natural born teacher!) That explains it to me.  :-)

Lanie


"pre-diabetic" controlled so far by diet and exercise
following low/no carb diet, no meds

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