My heart goes out to you. Choosing for her to take that medication or not puts you between a rock and hard place, the lesser of 2 evils, I suppose. First and foremost, I'm sure the brain disorder is priority. I suppose the high blood sugar takes a back seat in importance but can still be dealt with. Besides being her loving mom, you are perfect for her understanding and dealing with the high blood sugar readings. so in this small way you might have more control of the situation. Even though her fasting was higher than you wanted, it seems like her readings are coming down, so you've been successful in that regard. I wonder if some oral diabetes meds would help the rest of the way? Good luck with her tests this week. Hopefully, the careful diet you've got her on will avoid a repeat of that high number, and I'm glad your daughter is not fighting having to use the blood glucose monitor, a small relief.
And don't forget to take care of yourself through all this!
AMM, reading your account with the pediatrician visit is so maddening and frustrating. Instead of trying to learn something she might not be totally up on, she became offensive. And I suppose that's her only way of defending her ignorance and ultimately her stupidity. You are awsome in taking control of the situation and what a relief the ER people and Joselin Center have their heads on right. Good luck with Amanda's plight.
I have a question. Can you explain ketones? What are they and how do you check them? I've seen reference to them but don't know anything about them. Thanks!
Thanks so much, AMM. (You're a natural born teacher!) That explains it to me.