What does beginning neuropathy feel like?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 6/28/2007 6:54 AM (GMT -6)   
I have been feeling burning/tingling in my hands a feet for a couple of weeks now. Last night I noticed part of my big toe is weird feeling, not totally numb bot "off."

My control has been "excellent" for the past two years (after my diagnosis) according to my doctor, yet Dr. B. would not agree. It's possible/probable that I have had high numbers for five/six years previous to diagnosis.

It it POSSIBLE that these are the beginnings signs of neuropathy? I will <sigh> admit to being a highly anxious person ... I know it's also possible that it could just be anxiety.

Sorry for the self disclosure but I really would appreciate your thoughts/opinions!
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


Phishbowl
Veteran Member


Date Joined May 2006
Total Posts : 547
   Posted 6/29/2007 12:26 PM (GMT -6)   
Wearing any tight shoes or on your feet more than usual, Ruth? Or the opposite - sometimes that does it for me (like moving into sandal weather :-)

When my sugars are running high, sometimes I feel my baby finger is cold and numb. As for my feet, I usually know when my sugars are high 'cause they start to burn/get hot.

I don't have neuropathy but, I figure if/when I do that these signs I'm seeing now are probably where it'll hit me later.

Cheers,
Kris
Cheers,
- Phishbowl (Type 1 since Jan'05 - Levemir, NovoRapid)
"What's Not Measured Is Not Managed"

"It is impossible for a man to learn what he thinks he already knows"-Epictetus


4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 6/29/2007 1:05 PM (GMT -6)   
Thanks for your reply, Kris ... the weird thing is my sugars AREN'T that high! But I think of our own dear Jeannie ... who says her numbers never got that high either.

Plus, it's elsewhere on my arms. I'll be glad to see the doctor in about a week!
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


murphey
New Member


Date Joined Jun 2007
Total Posts : 5
   Posted 7/2/2007 5:53 PM (GMT -6)   
Hi Ruth,
I'm a newbie. Your description is EXACTLY how mine began, in my left big toe. It felt numb and a little weird. My sugars are totally controlled. Worst ever was 6.2. Average 5.6. Numbness grew from my toes to both feet. Now no feeling below ankles. But at the same time extreme, and I mean extreme hyper-sensitivity say if I were to step on a small pebble. Hard to describe to others. Get yourself a good neuro and a good GP. I talked to a lady last week who has same thing. She's in her mid 60's and it's almost up to her knees. Talk about a glimps into the future. It scared the hell out of me. She's on 240 mg of oxycotin sp?. Don't mean to scare you, but be aggressive in your therapy. Oh, and check your B12 levels.

48 f/Type 2 diabetic/Actos/Have tried: Neurontin, Carbatrol, Trtamadol, Lyrica (did best for pain but side effects made me quit), Lamictal, and am now on Topamax. I'm getting off Topamax in 2 wks. Not doing much for pain. Pain meds: Darvocet, Lortab, Firocet (sp???)

I'm thrilled to have found this site. Anyone have suggestions for shoes? I'm wearing nursing shoes/tennis shoes.

4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 7/2/2007 6:01 PM (GMT -6)   
Well, Murphey ... that's darned scary to me. I see my doctor on Thursday.

What kind of therapy IS there. I hear other than blood sugar control there isn't any.

True?

Where was the numbness in your toe? On the top, side, or bottom?
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 7/3/2007 2:15 PM (GMT -6)   
murphey said...
Hi Ruth,
I'm a newbie. Your description is EXACTLY how mine began, in my left big toe. It felt numb and a little weird. My sugars are totally controlled. Worst ever was 6.2. Average 5.6. Numbness grew from my toes to both feet. Now no feeling below ankles. But at the same time extreme, and I mean extreme hyper-sensitivity say if I were to step on a small pebble. Hard to describe to others. Get yourself a good neuro and a good GP. I talked to a lady last week who has same thing. She's in her mid 60's and it's almost up to her knees. Talk about a glimps into the future. It scared the hell out of me. She's on 240 mg of oxycotin sp?. Don't mean to scare you, but be aggressive in your therapy. Oh, and check your B12 levels.

48 f/Type 2 diabetic/Actos/Have tried: Neurontin, Carbatrol, Trtamadol, Lyrica (did best for pain but side effects made me quit), Lamictal, and am now on Topamax. I'm getting off Topamax in 2 wks. Not doing much for pain. Pain meds: Darvocet, Lortab, Firocet (sp???)

I'm thrilled to have found this site. Anyone have suggestions for shoes? I'm wearing nursing shoes/tennis shoes.


Ok. Now that I've quit hyperventilating I have to come back to this again.

How long have you been a diabetic? What do you eat/how do you exercise? How much Actos do you take? Are you following any kind of nutritional plan? Studies seems to indicate that low carb diets can stave off or prevent the increase of neuropathy once its taken hold. I'm certainly claiming that one. If this *is* neurpathy I certainly don't think I have to progress numbness below the ankle! How many years between your odd feelings and the total numbness?

I've been reading quite a bit this morning ... probably too much and other than pain meds it doesn't say anything but "tight control" can prevent the spread. Were the neurontin, carbatrol, trtamadol and lyrica for the pain? I recognize the other pain meds.

I'm not trying to be controversial and my heart goes OUT to you ... I'm just trying to understand the situation.

Blessings ..
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


murphey
New Member


Date Joined Jun 2007
Total Posts : 5
   Posted 7/3/2007 4:39 PM (GMT -6)   
Oh dear, I'm so sorry for my bluntness. So sorry to have scared you. I've been diabetic since 2001. Actos 30 mg/day. Never been put on diabetic diet. Diabetes well under control. Docs say keep doing what ur doing. Never heard of carbs and neuropathy. Love my carbs. They'll have to pry the pasta from my cold dead hands. Looking back my neuropathy signs started long before being diagnosed as diabetic. Approx 1997. Extremely hot, burning feet. Thought I had athetic foot prob., or allergy, doc said no. The progression is so slow, but methodical. One day your toe is half numb. You think nothing of it. Several years later the numbness has progressed but now your feet are cold as ice one minute and you grab an extra pair of socks (but its summer). Slowly but surely your nerves keep dying or misfiring and it doesn't stop. If you aren't happy with your doc, get another....they are a dime a dozen.
The neurontin, carbatrol, tramadol, lyrica, topamax are mostly seizure or miagrane meds. I am NO doc. Anyone out there please correct me if I am wrong. My understanding is they block the message or "turn down the volume" of the messages from the nerves in your feet going to your brain. Some work, some don't. I still haven't found the right one for me. The other pain meds I mentioned are for "break through" pain. Pain that persists to scream or spike while the other nerves are behaving in quiet time because of the meds.

Do not be complacient. Do relentless research. Ask questions. Demand answers. As long as there is breath in my body, I will not become the lady taking 240 mg of oxycotin a day. She said she prayed for a miracle. I'm hoping to find one for me and for her. I cannot tell you how much I have cried and prayed for her since we talked last Friday. She's given up. If you believe in prayer, say one for Vivian. She lit a fire in me that has made me rethink about my own pain. I've got no right to whine. I've got no right to *****. It IS however my privledge to fight like hell to learn as much as I can about this nasty disease that so few have heard of.

Nice to meet you Ruth! I have 3 sons and two german shepherds (also males) Maybe the root cause of my problem is too much testosterone!!!!!!!!!!!!

4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 7/3/2007 5:57 PM (GMT -6)   
murphey said...
Oh dear, I'm so sorry for my bluntness. So sorry to have scared you. I've been diabetic since 2001. Actos 30 mg/day. Never been put on diabetic diet. Diabetes well under control. Docs say keep doing what ur doing. Never heard of carbs and neuropathy. Love my carbs. They'll have to pry the pasta from my cold dead hands. Looking back my neuropathy signs started long before being diagnosed as diabetic. Approx 1997. Extremely hot, burning feet. Thought I had athetic foot prob., or allergy, doc said no. The progression is so slow, but methodical. One day your toe is half numb. You think nothing of it. Several years later the numbness has progressed but now your feet are cold as ice one minute and you grab an extra pair of socks (but its summer). Slowly but surely your nerves keep dying or misfiring and it doesn't stop. If you aren't happy with your doc, get another....they are a dime a dozen.
The neurontin, carbatrol, tramadol, lyrica, topamax are mostly seizure or miagrane meds. I am NO doc. Anyone out there please correct me if I am wrong. My understanding is they block the message or "turn down the volume" of the messages from the nerves in your feet going to your brain. Some work, some don't. I still haven't found the right one for me. The other pain meds I mentioned are for "break through" pain. Pain that persists to scream or spike while the other nerves are behaving in quiet time because of the meds.

Do not be complacient. Do relentless research. Ask questions. Demand answers. As long as there is breath in my body, I will not become the lady taking 240 mg of oxycotin a day. She said she prayed for a miracle. I'm hoping to find one for me and for her. I cannot tell you how much I have cried and prayed for her since we talked last Friday. She's given up. If you believe in prayer, say one for Vivian. She lit a fire in me that has made me rethink about my own pain. I've got no right to whine. I've got no right to *****. It IS however my privledge to fight like hell to learn as much as I can about this nasty disease that so few have heard of.

Nice to meet you Ruth! I have 3 sons and two german shepherds (also males) Maybe the root cause of my problem is too much testosterone!!!!!!!!!!!!


Hmmmmm. If it's all about the testosterone then I'm in trouble, too! Nice to meet you, Murph. I recoginze the anti-seizure/migraine meds because I've been on some of them. This morning I read sometimes those are used but I wondered exactly in what regard.

I'll join you in your fight and I will NOT be complacent!!! And I have prayed for your dear friend.

Edited to ask ... were you being sarcastic about not knowing about carbs and diabetics? Do you still eat a lot of pasta? If so, I want to gently tell you something. Really. From one diabetic to the other. Knock off the carbs. Read "The Diabetic Solution." We'll keep talking and will encourage each other alone the way. Honest.

I appreciate "blunt" and am glad to hear more of the story! You have every right to whine, b*itch, and fight like a mad woman. This is the place for it.
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise

Post Edited (4sons) : 7/3/2007 5:59:07 PM (GMT-6)


murphey
New Member


Date Joined Jun 2007
Total Posts : 5
   Posted 7/3/2007 7:14 PM (GMT -6)   
Hi Ruth,
No, I know about the carbs and diabetics.....what I hadn't heard of was the carbs and the neuropathy being linked. Diabetes isn't the only cause of neuropathy.

Keeping this one short. My mind is fried (more than usual-HAHA), was in lawyer office most of afternoon regarding disability case I'm filing. I forsee a BIG recliner in my very near future.

Thanks for welcoming me to the BGMGM's. (B*itch, Gripes, Moans, & Groans Meetings)! I should have frequent flyer miles already!!!!!!!!

4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 7/3/2007 7:37 PM (GMT -6)   
The carb connection goes like this: high carb diet = high blood sugar levels (epecially pp). Consistently high bs = neuropathy. Good luck with your disability case!
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 23, 2014 3:18 PM (GMT -6)
There are a total of 2,224,749 posts in 247,544 threads.
View Active Threads


Who's Online
This forum has 156684 registered members. Please welcome our newest member, Nicole.marie.
465 Guest(s), 28 Registered Member(s) are currently online.  Details
sarahm620, MissGigi, Mom of 2, PeterDisAbelard., Sloth, not creative, Jerry L., tickbite666, Utahgal, Nicole.marie, Lymeinthecuckoonut, Ryli, BluAngel, Girlie, cccmama3000, Fronton, Sherrine, SuperBlanks, marchcat31891, MalloryMac, fruitgirl, Old Mike, JA75, Spangerchops, joshwee, Don_D, blckmstngman1, Will-Sandy


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer