It's neuropathy -

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4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 7/5/2007 1:29 PM (GMT -7)   
There, I said it. I have been diagnosed with mild, beginning neuropathy and got the "come to Jesus" meeting of all times.

I was told.

1. Any A1C over 5.5 indicates ongoing damage.
2. Veggies (low carb) and protein. THE END.
3. No artificial sweetners.
4. If weight loss is too rapid, add CALORIES, not carbs. (I am not allowed to lose more weight.)
5. The MAIN thing a Type 2 can do is be their proper weight. 5' = 100 lbs. Five pounds per inch after that.

6. I was told this is irreversible but NOT necessarily progressive. I can learn to live with the discomforts.

I am also having a bunch of labs done as well as a bunch of heart tests. In August I will have MORE labs and an EMT (the one that shows the extent of the nerve damage).
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 5406
   Posted 7/5/2007 1:36 PM (GMT -7)   

Oh Ruth.  I just didn't think this was really it!  Had you been having the symptoms for awhile?  How did they test for it?  How is it determined?  I'm sure your diet is what it's supposed to be, isn't it?  I know you're following it to the letter.  What did the doctor say about that? (((((((((hugs)))))))))

Lanie.. mad


"pre-diabetic" controlled so far by diet and exercise
following low/no carb diet, no meds


AMM
Regular Member


Date Joined Dec 2006
Total Posts : 234
   Posted 7/5/2007 1:36 PM (GMT -7)   
It's not always pleasant, but like you say, you can live with it. I have. I try to always keep my numbers in control and it doesn't bother me too much. You'll be OK.
What doesn't kill you makes you stronger.  Shouldn't I be invincible by now?


tangerine bear
Veteran Member


Date Joined Aug 2005
Total Posts : 941
   Posted 7/5/2007 3:54 PM (GMT -7)   

Dear Ruth,

It sounds like you had a rough day sad . Your doc sounds pretty harsh... eek! Now I'm really scared about my appointment tomorrow! I don't think I could get down to that weight if I stopped eating completely... confused !!! I think I'm having symptoms now as well and I've only been diagnosed for a few months. We will all get through this together... ((((BIG HUGS)))),

Bear


"It's a jungle out there....." 
Theme song from "Monk" by Randy Newman
 
OCD: Obsessive...Compulsive...Diabetic
 
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4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 7/5/2007 5:12 PM (GMT -7)   
Bear, don't worry. Perhaps you were diagnosed early. My doctor thinks I've may have had neuropathy before I was diagnosed ... but didn't realize it. She says she's treated people with neuropathies who were diagnosed as diabetics years later! The shift is soooooo gradual.

Lanie ...thanks for the hugs. I can hardly believe it myself. I thought it was all anxiety. I've been "pinging" on and off for awhile but thought it was menopause. Guess not.

No drugs ... it's blood sugar that does the damage. Once it's done it's done. The discomforts aren't so bad that I can't learn to live with them. They hurt/burn but the "pain" isn't doing damage. That was all silent.
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 5406
   Posted 7/5/2007 5:25 PM (GMT -7)   
Ruth, I swear I feel like I'm going through this with you.  Being part of the forum here and knowing others with the same disease feels like we're in a large family even though we haven't met.  I'm thankful you went to the doctor.  Now with this new 'phase', what are you supposed to do for the neuropathy?  I know there is medicine for neuropathy pain if needed.  It's even advertised on this site.
 
You are in my thoughts especially, friend.    yeah
Lanie


"pre-diabetic" controlled so far by diet and exercise
following low/no carb diet, no meds

Post Edited (lanieg) : 7/5/2007 6:28:35 PM (GMT-6)


4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 7/5/2007 6:44 PM (GMT -7)   
Ok. Here's the whole story.

I was a slim or average build until I was had my third and fourth sons (18 months apart.) I did NOT ever have gestational diabetes. The weigh never really came off after that ... I was probably about 20 - 30 lbs. overweight. My weight does all concentrate in my stomach.

My kids' dad moved out about ten years ago this month. I gained another 20 lbs. within the first three years. Really .... having full custody of four kids is hard. And it's true ... I did NOT get regular checkups. about four years ago I went to an alternative clinic for something and was told I was "almost" a diabetic. I never asked my number. Two years ago my life settled down again and I lost weight AND went to the doctor's again. BOOM. I was a diabetic (A1C 7.0) but I am SURE my A1C was higher previous to that reading. I'd bet the farm that I've been a diabetic a GOOD five years before I found out. In the beginning I was terrified and was SUCH a good girl. Brought it down to 6.0 in eight weeks. 5.5 a month later. Then I began to relax ... nothing horrid, no bowls of ice cream or even cake ... but "cheats," no doubt about it. SOMEWHERE in there (within the past year) I've noticed that sometimes at night I would wake up because my KNEES were numb! As long as there wasn't a lot of pressure from my covers I was ok. I just thought it was "weird."

Since March I've been feeling burning, "pinging" in my extremities. I thought it was menopause. Last week when I was cutting my toenails I noticed there was a spot on my left big toe that was numb. I called immediately and made an appointment.

Today when I went in I had a foot exam which I passed with FLYING colors as do MANY who already have beginning neuropathy (or so I was told). My circulation is great and I felt every single little place she touched although that numb spot did feel less intensely. During our conversations she asked how long I've felt little "pings" and I told her about suspecting menopause, being an anxious individual etc. etc. THEN I said, "OH YEAH ... I have the weirdest things with my knees!!!" She questioned me further and asked several times, "Are you telling me that sometimes even blankets make your knees go numb?" I could see it on her face.

She said she suspected I had beginning neuropathy but that it did NOT have to get worse. I cried (oh yeah, I'm a baby and a single, fairly low income mom ... so much for being highly educated, huh!?). She told me it was not reversible and there are NOT medications to make it go away. I have nerve damage. It's like being a diabetic. I can control it's progression but I CAN'T make it go away. If the pain is severe I can begin to treat the pain, but she recommended I learn to live with it. There are side effects with those meds. It's distracting but it's not HORRID. I CAN learn to live with this.

AND ... I'm have had such a stressful life this year and am clinically depressed. I've started taking Lexipro and will go see her again in eight weeks. At that time we may schedule an EMT to ascertain how much damage has been done.

Of course, I am devastated. I am fighting with myself to tell myself I did NOT do this intentionally to myself, and I did NOT cause my diabetes. What I did was put myself last ... over and over and over again.
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


AMM
Regular Member


Date Joined Dec 2006
Total Posts : 234
   Posted 7/6/2007 5:20 AM (GMT -7)   
Ruth, Don't be hard on yourself. You DID NOT do this intentionally. From reading your post I think the blame falls on the clinic that told you that you were "almost diabetic". And being a single mom, you did what most of us single moms do. (I used to be a single mom, although I am not anymore.) You put your children first. Sometimes it takes a long time before we realize we have to take care of ourselves first so we can take care of them. You did NOTHING wrong. I wish I could reach through this computer and hug you. I don't take medication for mine, but I can get it if the pain gets too bad. I took Lyrica short term when it bothered me a lot. It really worked well. I don't like to take anything I don't have to take, but it is nice knowing that if I need something there are options.
What doesn't kill you makes you stronger.  Shouldn't I be invincible by now?


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 7/6/2007 7:09 AM (GMT -7)   
Ruth,
Dear girl, you didn't do this on purpose so there can't be guilt. I was diabetic (by today's standards) after my son was born 31 years ago. Fasting blood sugar was in the 120 to 140 range and that used to be considered 'borderline'. (Yes! I'm that old that I actually had a doctor say "borderline".)

I didn't receive my true diagnosis until they lowered the numbers for diagnosis and by then I had lost four toenails to chronic infections that wouldn't heal. Stupid podiatrist never even mentioned the fact that my infections might be diabetes related. I have numb spots on my feet and neuropathy in my hands and feet. I used to almost scald my children in the bathtub because I couldn't tell the water was too hot. After their complaints I finally got a bath thermometer! Never connected the lack of feeling with neuropathy! DUH! (I quit nursing school 3 months before graduation- a story for another day- You would think I learned SOMETHING!!!)

Anyway, here's the good news. Your doctor is correct that this can't be undone. But the feeling of pain is the nerves dying from lack of blood supply. If you up your exercise levels and drop your sugars as best you can, you can increase your circulatory flow to stop the dying of nerves. Your best weapons against this are our old friends sugar control and exercise. Now you have another reason to stay on track. Maybe you were blessed with neuropathy so you would keep your numbers low and save your sight or your kidneys? Neuropathy in and of itself is not life threatening, only painful. There are ways to deal with pain... It's the blindness we can do without. tongue
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
~Please remember that 50% of all doctors graduated in the bottom half of their class! Yours may be one of them...
==================
"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."
- Elizabeth Kubler-Ross


murphey
New Member


Date Joined Jun 2007
Total Posts : 5
   Posted 7/6/2007 8:39 AM (GMT -7)   
Ruth, Sorry to hear of your diagnosis. But looks as if you are totally surrounded by hugs here. I'll add mine as well. There is a wealth of information each time I visit this site. I thank each of you for the education. Jeannie, you have such a way with words. I have never thought of my neuopathy pain as a gift, but now I can and so will Ruth. Each time I've gone in for a checkup at my neurologist, I've told him I'm very thankful for my feet. Most of our soldiers aren't that lucky.

Oh, and how quickly I forget.......only 4 short years ago I had to visit the ****** Treatment Center and Hematology Center once a month because they thought I had leukemia (high white count). I went every month for over 2 years. During which time I finally wised up and quit smoking. You're right Jeannie, neuropathy can't kill me, but leukemia can. Luckily to-date my white count is normal and I'm 3 years smoke free! Yeeeee Haaaaaaaaaa Hang in there Ruth. Throw caution to the wind tonight, RUN NAKED THRU YOUR BACK YARD OR AT LEAST THRU YOUR LIVING ROOM AFTER THE BOYS ARE ASLEEP.

fergusc
Regular Member


Date Joined Dec 2005
Total Posts : 230
   Posted 7/6/2007 3:53 PM (GMT -7)   
Stay strong Ruth. You honestly have a better grasp of this condition than a whole bunch of people with white coats I can think of. You know how to achieve near normal blood sugars, the correct approach to diet, and the value of exercise. Those are the keys to stabilising diabetes.
If we weren't diabetic, we wouldn't have the understanding we've had to develop to deal with the disease. OK, so it's maybe not the best trade-off ever but without diabetes I know I wouldn't have the motivation to eat and exercise properly. My whole family (4 kids here too!) benefits from the knowledge we have had to aquire.

All the very best,

fergusc

4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 7/9/2007 4:51 PM (GMT -7)   
You are all so dear to me.

Your kindnesses have brought tears running down my face. I am so darned scared!!!

And thank you, THANK YOU for not joining me in blaming myself!!!
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


gelchick
Regular Member


Date Joined Aug 2006
Total Posts : 477
   Posted 7/10/2007 8:44 AM (GMT -7)   
Ruth
 
I am so sorry to hear about your neuropathy. I have been out of touch here for a couple of days (too many deadlines!).  You are a strong woman, intelligent, motivated and I'm sure you're going to do everything in your power to stay on top of this and that's all you can do. There are no guarantees that if you maintain an A1c of xxx- there will be no problems or complications. The processes may have been in motion long before you or your health care providers even suspected that you might have a sugar metabolism problem. You may have a genetic predisposition to them. Save your energy for the fight ahead instead of spending it on 'what ifs' and 'if only I hads...' You never know when a new procedure or medication will be developed to generate new nerve tissue (and labs are doing it already in rodents with stem cells). You just have to fight to preserve every one of your healthy neurons so you will be ready when the time comes! We're here to help you win this battle. All the best, Ruth
sandy
I just want to live happily ever after-every now and then. Jimmy Buffett


Cali Jules
Regular Member


Date Joined May 2007
Total Posts : 38
   Posted 7/10/2007 6:55 PM (GMT -7)   
Dear Ruth,

I know I bounce back between a desire to live in denial and a knowledge that I must get better educated and handle all this diabetes crap better. Reading your post has both scared me and shaken me. The past week I haven't been eating very well. I have been either not eating or eating a bit for comfort. I have been overwhelmed and stressed. Every time I am in bed I get pins and needles in my hands and it often keeps me awake.

And all that just doesn't matter. I have to read what others like you are going through when you are doing everything so well and right and realize that I can't keep *****footing around with this. Being consistent one week and not the next won't help me.

So thank you so much for sharing your results and fear and pain. It is helping me to keep motivated to continue to educate myself on how to eat and test and LIVE.

My biggest squishiest hugs for you.

Love

Julia
Ulcerative colitis - Remission May 29, 2007, FM, AS, Type 2 Diabetes, PCOS, sober since 6/92, PTSD, Chronic Urticaria, Hypertension, High Cholesterol, GERD and a partridge in a pair tree.

My labels may give you insight, but they don't define me. JAFA

http://www.myspace.com/juliapulia
http://internalblue.blogspot.com/


4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 7/10/2007 7:45 PM (GMT -7)   
Hi Julia ...

I am doing everything right NOW ... but eventhough my numbers weren't BAD post diagnosis, I wasn't doing everything I could. Also, as I think back I bet I was a diabetic for years previous to diagnosis.

Be good to yourself .... that's how I intend to live every day allotted on this earth.
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise

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