My 2 year old niece has diabetes

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8038
   Posted 7/12/2007 11:24 AM (GMT -7)   
Hi,
I'm a healingwell veteran but not in this forum.  I have had incredible support in the prostate cancer forum at this web site and I thought I'd query these threads about my 2 year old niece who is staying with us for a couple weeks.  I live in Las Vegas and my sister in law is from Florida.  Her daughter is so darn cheerful and cute it grabs my heart to see her smile while mom gets the blood sugar meter out and does the testing...at least six times a day.  I am trying to learn how to do this and what a new experience.  If I didn't appreciate what a diabetic goes through, I sure do now.  Since my niece was diagnosed, my sister in law does not have too many chances to get away and have her own fun.  The in law is here in Vegas with her brothers and sisters and is afraid to leave the kids alone. (The other daughter of hers is 6 and does not have diabetes).  Well, enter me.  I am trying to learn how to count the carbs, do the math, set the injection and do it for her as much as possible so that she can go out with my wife and have a brief moment of vacation.
 
I write here looking for similar experiences not just from my point of view, but for parents here having to deal with this situation.  My sister in law does have a kids oriented support site that she goes to, but says most support sites like this one are type II or all adults and not the same experience she is having to deal with.  She is mired in a decision right now about whether to start using a pump, but is getting conflicting answers from her practisioners. 
 
You thoughts are certainly welcome and appreciated.  Hopefully I get good enough as a helpful uncle that she can go out and at least try to relax...
 
Tony
 
Age 45
Diagnosed with Stage III prostate cancer last year (pT3b, N0, Mx) PSA 19.8 presurgery, Gleason 4+3=7, four positive margins post surgery.
Undergoing hormone treatment quarterly, and radiation daily.  Very positive attitude!!

Post Edited (TC-LasVegas) : 7/12/2007 12:30:05 PM (GMT-6)


AMM
Regular Member


Date Joined Dec 2006
Total Posts : 234
   Posted 7/12/2007 3:29 PM (GMT -7)   
I am a type 1 diabetic who has had diabetes since I was ten years old. I am on a pump. I personally think a pump is the best thing in the world. My daughter is a type 2 diabetic but if she would have been a type 1 or would require insulin I absolutely would have her on a pump in a flash. I only wish they had been available when I was a kid. She might want to think about a continuous glucose monitor too. With a child that young it is hard to know if they are going hypo. The continuous glucose monitor isn't usually covered by insurance and can be quite expensive, but knowing your child's blood sugar is dropping would be worth it. They aren't completely reliable enough to not still finger test, but they do give an idea of trends and alarms can be set for dropping or rising blood sugars. As far as the pump is concerned children generally change the site every 2 days as opposed to the several shots a day. I can't imagine why anyone would not be in favor of the pump.
What doesn't kill you makes you stronger.  Shouldn't I be invincible by now?


4sons
Regular Member


Date Joined Dec 2006
Total Posts : 406
   Posted 7/13/2007 4:44 PM (GMT -7)   
I have a colleague with a Type 1 daughter who got a pump when she was about three (now she's 7). I guess it's literally changed her life. We teachers had to learn how to take care of O. and it's really no big deal. Her mom and dad handle all the site stuff ... and because her mom works at school it's made life a lot easier for little O. If she's low we call her mom ...
Cheers -

Ruth/4sons

age 52/Type 2 diabetic/"controlled" by diet and exercise


Drconnoisseur
Regular Member


Date Joined Jul 2007
Total Posts : 102
   Posted 7/21/2007 9:25 AM (GMT -7)   
Hi Uncle,
 
I've had type I since I was ten, also.  I just wanted to suggest that if you're looking for a great deal of wonderful advice and information, both dlife.com and diabetes.org (the ADA website) have forums that are much more involved than this one, with separate areas for type Is, parents of type I children, and even an area for people on a pump.  You might want to check those out.  You can ask any question you can think of and instantly have a bunch of people in the exact same situation answer you.  This site mostly has type IIs, and they have their own set of issues, but they won't necessarily know about dealing with a type I two-year-old.  Not that I don't think this site is great--it serves its own purpose--but those others may be more of what you need at the moment.
 
I wish you and your niece luck.  I thank God I was old enough to understand what was happening to me when I got it.  (Not to mention that's 8 fewer years with the disease that might cause complications.)  I feel bad for the really little ones.  Anyway, I should shut up before I depress you.  Good luck and happy surfing! 

P.S.  about the pump-I have had a pump for 6 years now, and I love it, but I'm not sure I would have one on a child that young.  I'm not saying I wouldn't, just saying I don't know.  I suffer from a ton of low blood sugars since I got the pump (although most people actually experience fewer lows) and if your niece had the same problems it would be much more difficult because she is so young.  The continuous glucose monitors that come with the Medtronic Minimed pump cost $1000 initially for the transmitter, and then $350 a month (if you want to use them continually) for the sensors, and I don't think they work that well, especially at catching lows.  The technology is still brand new, and of course insurance won't cover them yet.  So it is definitely not a decision that should be made lightly.  Pumps are awesome, but if a parent makes a mistake estimating a meal bolus and a two-year-old's blood sugar drops, it could be a mess.  If they can hold off until she's five, then she'll be much better equipped to tell you when something's wrong.  That's just my advice; take it for what it's worth.  And definitely check out the pump areas on those two websites for more ideas.  Hope this helps.


29 yo female with two fuzzy children: a Pom named Snuggles and a Pom mix named PomPom.
Health History: Type I diabetes (19 years), allergies/asthma, hypothyroidism, osteopenia & multiple fractures, iron-deficiency anemia, Crohn's (of course), and depression (go figure.)
Crohn's History:  May have had it since I was 11 (1988-89), definitely have had it since I was 15, was diagnosed when I was 25 (2003), was un-diagnosed in 2005 and re-diagnosed June 2007.   

Post Edited (Drconnoisseur) : 7/21/2007 10:34:56 AM (GMT-6)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8038
   Posted 7/22/2007 10:12 PM (GMT -7)   
Great post Drconnoisseur

I knew the true seekers of support would eventually show their wares here. What a fabulous post. Thanks!. To all the posters as well. D. I can't live depressed with a physical condition.   I am concerned about stage IV disease.  But I want this little girl to thrive.  Its a personal victory.
 

Tony

Post Edited (TC-LasVegas) : 7/22/2007 11:29:53 PM (GMT-6)

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