doctor very concerned about my hypo

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Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/1/2007 7:49 AM (GMT -7)   
Well, I called my Endocrinologist yesterday and told her what has been going on the last couple of weeks.  She's concerned.  So I'm getting a bunch of tests done this morning, electrolytes, AlkPhos, calcium, hemoglobin, ALT, creatinine, free thyroxine, TSH, a random glucose test and we're testing my glucose monitor too.
 
I don't have to fast for the glucose test.  My levels drop to below 4 (Acucheck compact monitor) in about 3 hours, so she said that is plenty of time for me to be fasting.  Funny eh.... I'm eating every hour now to avoid the hypo symptoms. 
 
I know what she's testing. I get these done for my lupus.  So I'm not in the dark about the tests.  Man this is rough. I'll keep you all posted on what happens.
 
Thanks for your support everyone,
Ginny 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Marburg
Regular Member


Date Joined Mar 2006
Total Posts : 486
   Posted 11/1/2007 9:25 AM (GMT -7)   
Ginny,

I'm praying that you and your doctors get to the bottom of this soon. Please let us know.

Marburg

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/1/2007 2:56 PM (GMT -7)   
Thank you for the prayers Marburg.  My tests this morning went perfectly.  My glucose was at 4.2 and I was feeling crappy.  It was perfect. (never thought I'd say that).  So we'll see.  Either tomorrow or Monday I hope for some answers.  In the meantime, I'm wolfing down the food big time!!
 
Blessings,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


tutorgirl
Regular Member


Date Joined Aug 2007
Total Posts : 235
   Posted 11/1/2007 3:20 PM (GMT -7)   
I pray they get some answers for you, Ginny. Having to eat all the time must be just as frustrating as trying not to eat. Wouldn't it be lovely if we could all live the happy medium. :)
===================
>Karen<
~Forum Moderator/Diabetes~


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 11/2/2007 1:58 PM (GMT -7)   
Well, in a way I have some answers, and in a way I still don't.  all the blood tests came back normal.  My glucose monitor is not acurate either.  So much for it being called "Acucheck".  It was telling me I was low, when actually I was normal....
 
So, my doc is suspecting Primary Hypoglycemia.  I'm just super sensitive to any fluctuations, even the smallest ones.  But she still wants to monitor me at the hospital. I'll go in and have a nurse draw blood every hour until I have some major low symptoms.  Then we'll see what happens.  I'm glad I'm okay on all other accounts.  I did ask if my lupus might be attacking my pancreas and creating these symptoms, but she said if my lupus was doing that I'd have high blood sugar.  Definitely not the case.
 
So that's about it for now.  I've had a really good day today actually.  Very even for the most part.  This is such a quandry and a frustration!
 
Karen, what a blessing it would be to live the happy medium!  We can all pray for that!
 
Thanks!
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, neutropenia, thrombocytopenia. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


LanieG
Forum Moderator


Date Joined Nov 2006
Total Posts : 5393
   Posted 11/4/2007 9:38 AM (GMT -7)   
Ginny,  it sounds like you've been through the mill!  In a way, I'm glad the glucose monitor was not recording the blood sugar correctly so now you know you weren't that low.  In any case, I'm really glad the doctor is on top of things.  Sorry for the unanswered questions though.  Hang in there and let us know the next step.

Lanie
forum moderator - diabetes
"pre-diabetic" controlled so far by diet and exercise
following low/no carb diet, no meds

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