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terriwest
New Member


Date Joined Dec 2007
Total Posts : 7
   Posted 12/27/2007 2:40 PM (GMT -7)   
Darren;
Hi my name is Terri, I'm new to this fourm and I've been reading some of your past post's.  I have a 29 yr old son who has epilepsy and he talks often about getting his drivers license back too. Currently he is in the hospital with back to back seizures.  I'm so glad I found this form.  I told my son about it and he is looking forward to chating here.  May I ask how old you are?  If you choose not to say I understand. I'm trying to fully understand what my son is feeling and how I can help him.  Currently they have him on Depakote,Lamictal,Dilantin,Capra, I am amaized at how much medication his body can handle. Plus they are giving him Ativan when he is seizing which makes him very loopy.  I hate seeing him in this state.  I wish I knew what to do to get him back home.  Darren; what medications are you on?
 
Terri
Bernie's mom
 

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 12/28/2007 3:29 PM (GMT -7)   
Hi there Terri,
 
I am nearly 23 now and I currently take 600mg Carbamazipine / Tegretol twice a day. That is quite a cocktail of drugs to be taking but I am not going to question a professionals advice. I look forward to seeing your son on here and chatting with him as well as chatting with you as well. As for getting his driving licence back... where do you live? I am aware that in the US different states have different laws. I am from the UK.
 
Darren
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
Moderator - Epilepsy Forum
Co-Moderator - Depression Forum
 
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Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 1/18/2008 9:29 PM (GMT -7)   
Terri,
 
I am 56 years old, gosh, almost 57 and I am on three seizure medications.  I was just diagnosed about a year and a half ago.  I take Keppra, Topamax and Klonipin.  I was lost before I found this forum.  As Darren and some of the others can tell you, I always had a real hard time when they would add/change a new medication or increase the dosage.  It took me 15 months to get 90 days seizure free so that I could drive.  Then I had a seizure during the holidays because I did not realize my pharmacy was closing early on Christmas Eve and was out of one of my medications for a day and a half.
 
Will he be coming home to stay with you when he gets out of the hospital for awhile?  Please keep posting and tell your son we look forward to hearing from him when he gets out of the hospital.
 
Take care!
 
Carla

Moderator, Allergies/Asthma
 
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Epilepsy, asthma, GERD, depression, hypothyroidism, tinnitus


terriwest
New Member


Date Joined Dec 2007
Total Posts : 7
   Posted 1/21/2008 7:22 AM (GMT -7)   

Good morning everybody;

Thank you all for replying.  Well my son Vernon spent 12 days in the hospital from December 21 to January 1st.  Currently I can't get him to do anything.  He has fallen into a depression and is very angry.  My husband just dropped him off at St. Lukes Hospital this morning for a week long stay for an EEG VIDEO MONITORING STUDY.  Have any of you had this done before?  To be very honest I feel like this is a sort of vacation.  I don't have to wake up in the middle of the night because I hear a noise and am afraid of him falling and hitting his head etc.  I know that sounds terrible but I'm very tired.  redface I hope they find something on this test. 

If I suggest any type of reading materal or activity like puzzels he gets so angry.  I think he has given up, he is not interested in excercising his brain and I think he is just going backwards.  He says he can't remember anything so why try.  Am I enableing him by not inforcing him to try?  I'm afraid if I push I will set him off to have a siezure. Is this normal for him to be so angry? especially at his family.  Thanks for being there Y'all.

 

Terri


djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 1/23/2008 6:29 AM (GMT -7)   

Hi Terri,

It is normal for people to rebel against a diagnosis, especially one which is life long. Whether its Bi-Polar, Depression, Epilepsy or Lupus people are often angry about it. I can only speak from personal experience but the main things people worry about when they are diagnosed is that they are different to everyone else and that their life is going to change so dramatically, it will stop them doing anything they want to.

Yes it is true that being diagnosed with a disorder makes you different to a lot of people on the surface. But when you think about it... everyone (mostly) has something. I have epilepsy, my friend has ecxsma(sp), another friend has Asthma, my sister has Bi-Polar, my dad has a bowel condition that I cant remember! etc... The point is that everyone has something that affects their lives to a greater or lesser extent. If we accept that everyone is unique (Which most people do) how can there be a 'normal' category if we are all different? Allow him to come to terms with it at his own pace... it will allow the anger to pass quicker.

As for his life changing... yes it will. As an epileptic, you have to avoid your triggers. For me its stress. But thats much easier than it sounds once you get the hang of it. He will still be able to drive. In the UK you have to be seizure free for a year... in the states I think it is 90 days (But I think that depends where you live). Who Vernon is has not changed. He is still Vernon, he is still a son etc... right at the bottom of the list is: He is epileptic. He needs to understand that it only controls your life if you let it.

I can completely understand how he feels as I was in the same position in 1999 when I had my first seizure. But it will pass. Video EEG's are very popular at the moment as they can tell people much more that a normal EEG since they can also see the patients reactions, their activities before and after the seizure as well as what kind of seizure it is. They are not dangerous in any way so please dont worry about it.

Please keep talking

Darren


Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
Moderator - Epilepsy Forum
Co-Moderator - Depression Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 


terriwest
New Member


Date Joined Dec 2007
Total Posts : 7
   Posted 1/23/2008 9:06 AM (GMT -7)   
Good Morning Darren,
 
Thanks for the reply.  So far this is Vernon's third day for the EEG VIDEO and he has not had a siezure yet.  They started to take him off his meds yesterday and today they are going to try and keep him up for 24hrs. I guess just try and make him very uncomfortable so he can have a siezure.  I'm really concerned if he does not have one then what will they do next.  Vernon has had siezures for about 7 years now and we are just getting started on the treatment. 
 
Terri

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 1/24/2008 5:59 AM (GMT -7)   

If Vernon does not have a seziure during the video EEG it is a possibility that they will want to repeat the EEG a little way in the future. Do you know what triggers his seizures other than stress? I mean, can you be more specific with the doctors? This may help them.

Darren


Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
Moderator - Epilepsy Forum
Co-Moderator - Depression Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 

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