As Carla has said, it can take up to 2-3 weeks for the meds to fully kick in and start reducing your seizures again. Also, I would definately look into the FMLA that Carla has mentioned. Taking a couple of weeks off to allow your meds to change could help them work quicker as you are reducing your stress levels etc... If you are not getting any better after 3 weeks I would go back and see your neuro. It may be that your body has gotten used to the meds and that you need to change.
Hey thanks for your kind words and sound advice, it is nice to know someone is cheering for you! Yesterday and today have been better, maybe the Lamictal is starting to kick in....I can only hope. I send good thoughts your way....Toni
All good posts!! It DOES take awhile for your brain to get used to a particular dose. In my case, it can take up to one month. I too have partial seizure syndrome, and like you one aspect of my seizure pattern is that I get woken up at night in a seizure state. Not fun, and as you've found out it can be exhausting if it persists.
For me, my partial seizure symptoms occur because of what my neurologist terms "breakthrough." In other words, my primary medication (Dilantin) is no longer sufficiently controlling my brain's tendency to seize, especially during sleep. My breakthrough occurs almost precisely 90 minutes after falling asleep. When breakthrough occurs, and only when it occurs, I take a secondary drug. In my case, it's a 0.5 mg or 1.0 mg dose of Ativan (Lorazepam). The dose varies based on my years of experience of dealing with this. Typically, within 5-30 minutes after taking Ativan, my seizure symptoms subside. Ativan is a narcotic, so you have to be careful not to take a too much in total per day, otherwise you begin to tolerate it (meaning it doesn't work). You DON'T want to go to a secondary drug until you've explored the options with your primary drug in close consultatiion with your neuro, and found you really do need a secondary drug.