I got some questions about Seizures.

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Tonya Blackwelder
New Member


Date Joined Feb 2008
Total Posts : 2
   Posted 2/6/2008 6:00 PM (GMT -7)   
My son who was 10 when he had his first seziure. That was easter Sunday. It was the grandmaul type. He spent the night in a hospital at a childrens hospital. They did Cscan, EEG EKG MRI.. nothing showed up. They said the only thing they thought it could be was his ADD Med Stratera. So they took him off it. Everything went well till September of that year. He had another one about the time he layed down to go to bed that night. Sane type . This time his lips were blue so we called a ambulance. They watched him for half the night in the er and  told us to go home. The perscribed a gel like valum to go rectal if he had any more that lasted as long as this one did. They told us to follow up with his pedatric neurologist that next day. We did. He put him on Kepra. He takes 250mg in morning and 500 mgs at night. This was last year when he had these. He hasnt had any more.
My questions are do you think these are isolated? Will he have anymore? His neurologist told me that if he doesnt have anymore in a 2 year period he wants to take him off the Keppra. Since these seizures there is not a day goes by that I dont worry about him. It was  the most scariest thing to me to see your child go thru this. And me being so helpless. I know when he had them he was really sleepy afterwards for about a couple of hours.
Should I let them take him off Keppra after the 2 year period. I am just a scared moma who doesnt want him to go thru this again. He is toloratting the Keppra really well.
Tonya

Another Day
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Date Joined Mar 2007
Total Posts : 1055
   Posted 2/6/2008 7:58 PM (GMT -7)   
Tonya,
 
I would like to welcome you to HealingWell.  I am 56, almost 57 years old and was just diagnosed about 18 months ago myself.  Darren, out moderator lives on the other side of the world and will respond later.  He really knows his stuff when it comes to epilepsy.  I do not know much about grand mals.
 
I can certainly understand you being a frightened mother, who wouldn't be.  I know it must terrify you wondering when or if he is going to have another one.  Keppra is one of the medications I take also.
 
I feel when Darren comes on line, he may be able to ease your mind.  Please know that we are here for you.  We are pretty much like one big family.  Please post and ask questions any time you feel the need.
 
Take care!
 
Carla

Moderator, Allergies/Asthma
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 
 
Epilepsy, asthma, GERD, depression, hypothyroidism, tinnitus


RanMan
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Date Joined Feb 2003
Total Posts : 665
   Posted 2/6/2008 10:59 PM (GMT -7)   

Tonya,

Hi and welcome to Healingwell.

I've had epilepsy since 1979 so I feel that I have SOME experience in the field.

1) Re: nothing showing up on the tests ~ This is very common, the seizure activity is located deep within the brain so the tests won't pick it up. It doesn't necessarily mean that there is/isn't epileptic activity.

2) You mentioned that his gran-mal seizure happened on easter weekend and then again in September. Season change (amount of sunlight) usually affects any type of brain activity, especially ppl with epilepsy and/or bi-polar types of conditions.

3) Re: Frequency ~ The two year window is B.S. Epilepsy doesn't go away - it goes into a type of remission, could be for a lifetime or (as in my case) could appear several years later.

I had one gran-mal in 1979 and although I was on meds. I still had another seizure in 2002, 2004, and two in 2007.

4) ~ If the Keppra is working, keep him on it (if he can put up with the side affects) Why change it. If he stays on Keppra and his seizures are controlled, then keep him on the meds just as an insurance policy.

Randy

   


Diagnosed with Epilepsy & Ulcerative Colitis.
Current Medications: Diantin 275mg, Pheonobarb 150mg, Asocol 3,000 mg.


djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 2/7/2008 4:08 AM (GMT -7)   

Hiya Tonya,

Im going to lay my post out in the same format as randy has because I think it is really clear and easy to read.

1) Tests --> If nothing shows up, it is possible that it indicates an isolated episode. As Randy has said, the activity is deep within the brain but I would expect an EEG to pick it up ~7/10 times. Just because the test says it isnt there, it doesnt mean it isnt.

2) Seasonality --> I think Randy has hit the nail on the head here... not much for me to add. As well as looking at sunlight though, also look at atmospheric pressure and temperature. I dont know what April and September are like where you are, but here in the UK they are both warm (but not hot)... somewhere around 12 degrees celcius.

3) Frequency --> Again, randy has hit the nail on the head. Its not an exact science. For some the epilepsy never goes away, for some it disappears for life and for some it reappears every now and again. The last decent neuro I spoke to would not even consider taking me off my meds until I had been seizure  free for 5 years.

4) Keppra --> If your son is OK with taking it and it works, then why take the risk? As I said in the last bit, I would wait longer than 2 years. Since it is not officially Epilepsy, then maybe I would consider it after 3-4 years rather than 5, but certainly not 2.

I dont understand what it is like to have an epileptic child other than what my mum tells me. I think the main thing for you is not to panic or worry too much when it happens. The best way to combat anxiety is knowledge. If you know what is happening (I.e. what a seizure is, what is possibly causing it), what your going to do (I.e. How you physically treat your son, Using the rectal gel) and what you are looking for (I.e. How long the seizure lasts, Vital life signs etc...)

If it helps, you can write an action plan such as: Check time, Clear area of dangerous objects, Check life signs, etc...

I have done a lot of research into epilepsy, both for my own satisfaction, to help me help my mum (Who is epileptic) and also for my degree. If you have any questions, please dont be afraid to ask. If you dont know the answer, then its not a stupid question.

All the best

Darren


Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
"A gold medal is a wonderful thing. But if your not enough without it, you will never be enough with it." - Irvine Blitzer (John Candy) in Cool Runnings
 
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Tonya Blackwelder
New Member


Date Joined Feb 2008
Total Posts : 2
   Posted 2/7/2008 5:44 AM (GMT -7)   
Thank you all for your replys. I plan on just keeping him on his Keppra longer than they want to. It seems to be working for my son. He virtually has no side effects from it. The only thing i have found is some irrtablity. Other than that he is great. Again thanks and I will keep being a member with you all and let you know if anything changes. I have found alot of info on this board and I feel more at ease now.
Hugs,
Tonya

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 2/8/2008 4:57 AM (GMT -7)   

HIya,

Im glad to hear that you are going to hang around and that you are feeling more at ease. Keeping him on the Keppra make sense to me. He is very lucky to have found a med that reacts well to him.

All the best

Darren


Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
"A gold medal is a wonderful thing. But if your not enough without it, you will never be enough with it." - Irvine Blitzer (John Candy) in Cool Runnings
 
Moderator - Epilepsy Forum
Co-Moderator - Depression Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 

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