I know what you mean. Absence seizures (AKA Petit Mal Seizures) are probably more common than you think. My mum had then as a teenager so I do know about them, even though my seizures are Tonic-Clonic (AKA Grand-Mal) I can certainly relate to the problem. Do you have seizures often? Do you have medication to control them? How long have you been diagnosed?
Thanks for the reply. I know that absence seizures are quite common in children, teachers and parents often mistake it for daydreaming and they usually grow out of it. My PCP and neuro said that it is very uncommon in adults, but then maybe they just haven't come across it too often. I was diagnosed about 5 yrs. ago, seizure meds really didn't do much and didn't really agree with me. It's hard to tell how often I have them, they can be only a few seconds or several minutes. I could be having as many as 100 each day. Sometimes I am aware of them because they have lasted several minutes, or my husband will come in and find me having one, between this and the firbro fog life can be very disconcerting. I have had to give up driving, sure don't want to have a seizure while at the wheel. It's difficult to lose that last bit of independence, being in a wheelchair is limiting enough.
I'm sorry to hear that your daughter at only 17 is already in a wheelchair. It must be tough to accept at that age. Does she have your basic type hospital chair or is it a custom chair? There is a wonderful magazine out there for those of us in chair called New Mobility. It covers all types of subjects and products and helps you realize that there are a lot of people out there just like you. It always has the latest products to make life easier or more fun. You can go on line and check out some issues.
My fibro probably does have something to do with my needing a chair, but I also have osteoporsis and osteoarthritis. I am 55, but when I was 27 i had a bad accident at the roller skating rink and damaged my right knee very badly. I've had 2 surgeries on it, but the ortho said the main problem is that my knee joints don't fit together the way they should and so I fall alot.
My last MRI was probably about a yr. ago, I don't know how many I've had, too many to count. I even had, I think it's called an EEG, where they hook all those things to your scalp. I even had to fall asleep during the test to see what would happen. All the tests showed nothing significant, and yet I still have the absence seizures. Sometimes I know when I've had one but most of the time I don't. Sometimes my husband will tell me, because he has walked into the room and found me sitting there, maybe with my arm up because I was reaching for something, looking like a frozen statue. Needless to say, I haven't driven since finding this out and last yr. finally gave up and surrendered my liscence. Most of the anti-seizure drugs either didn't work or had the nasty side effect of causing me to gain weight. So I just do without.
Sorry to hear about your wife. I am 55 and know how disorienting it can be. I have read that you can have as many as 100 petit mals in a day, because some of them can be so quick, just a few seconds, so you don't even realize you've had one. It must be awful to get them so bad that she even gets a headache, the seizures are bad enough. I tried Topamax twice, but it didn't do me any good. Neurontin seemed to help, but it caused me to gain so much weight that I had to stop taking it. Withdrawal from that was just horrible. You could be right, I do think it is possible to build up an imunity to drugs you have taken for a long period of time. Good Luck.
Thank you for the kind offer. For the last few months to a yr. I have been saying no to my doc about all tests except for simple blood tests. As you can imagine after a while you just get sick and tired of being poked, prodded and stuck. I probably wouldn't care but the docs keep sending me for tests and they keep coming back normal, normal normal. I had several blood tests for arthritis, negative, and yet the last MRI clearly showed osteophytes(sP?) growing down my spinal column. I also have 2 large tumors on my back and when I did some research I found that many researshers now believe they are caused by too much exposure to xrays, mri's, cat scans, bone scans and that type of thing. I told my doc that I already know what is wrong with me and more tests aren't going to help treat it.
I am so sorry to hear that your son at such a tender age is already having absence seizures. The good news is that from everything that I have read, and that's a lot, children almost always grow out of it. At least you know what it is. So many children have them and parents and teachers think the child is simply daydreaming or not paying attention. I hope they are not too difficult for him to deal with.
Post Edited By Moderator (djdaz_1985) : 4/12/2008 4:36:04 AM (GMT-6)