Absnece seizures

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Gamma
Regular Member


Date Joined Feb 2008
Total Posts : 233
   Posted 3/16/2008 9:49 AM (GMT -7)   
Hello,
 
I usually post on the fibro forum, but I have also been diagnosed with a type of epilepsy called absence seizures.  I know that this is highly unusual in adults, but I was wondering if anyone else here has had the same diagnosis.  It would be nice to there is someone else out there  who can relate to this problem. (Not that I hope anybody else is sick) Oh, you know what I mean.
Gentle hugs
Gamma

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 3/17/2008 4:16 AM (GMT -7)   

Hi Gemma!

I know what you mean. Absence seizures (AKA Petit Mal Seizures) are probably more common than you think. My mum had then as a teenager so I do know about them, even though my seizures are Tonic-Clonic (AKA Grand-Mal) I can certainly relate to the problem. Do you have seizures often? Do you have medication to control them? How long have you been diagnosed?

Darren


Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
"A gold medal is a wonderful thing. But if your not enough without it, you will never be enough with it." - Irvine Blitzer (John Candy) in Cool Runnings
 
Moderator - Epilepsy Forum
Co-Moderator - Depression Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 


Gamma
Regular Member


Date Joined Feb 2008
Total Posts : 233
   Posted 3/17/2008 8:02 AM (GMT -7)   

Hi Darren,

Thanks for the reply.  I know that absence seizures are quite common in children, teachers and parents often mistake it for daydreaming and they usually grow out of it.   My PCP and neuro said that it is very uncommon in adults, but then maybe they just haven't come across it too often.  I was diagnosed about 5 yrs. ago, seizure meds really didn't do much and didn't really agree with me.  It's hard to tell how often I have them, they can be only a few seconds or several minutes.  I could be having as many as 100 each day. Sometimes I am aware of them because they have lasted several minutes, or my husband will come in and find me having one, between this and the firbro fog life can be very disconcerting.  I have had to give up driving, sure don't want to have a seizure while at the wheel.  It's difficult to lose that last bit of independence, being in a wheelchair is limiting enough.

Thanks again.

Gentle hugs

Gamma


djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 3/18/2008 2:58 AM (GMT -7)   
I can relate to losing your driving licence as well. Although I am not in a wheelchair, it is a loss of independence. I came within touching distance of a new licence and then I had a seizure (and had to start all over again).
 
Do you have any treatment for the seizures? If the meds dont work, perhaps there are other options you can discuss with your neuro.
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
"A gold medal is a wonderful thing. But if your not enough without it, you will never be enough with it." - Irvine Blitzer (John Candy) in Cool Runnings
 
Moderator - Epilepsy Forum
Co-Moderator - Depression Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 


Gamma
Regular Member


Date Joined Feb 2008
Total Posts : 233
   Posted 3/25/2008 9:51 AM (GMT -7)   

I'm sorry to hear that your daughter at only 17 is already in a wheelchair.  It must be tough to accept at that age.  Does she have your basic type hospital chair or is it a custom chair?  There is a wonderful magazine out there for those of us in chair called New Mobility.  It covers all types of subjects and products and helps you realize that there are a lot of people out there just like you.  It always has the latest products to make life easier or more fun.  You can go on line and check out some issues.

My fibro probably does have something to do with my needing a chair, but I also have osteoporsis and osteoarthritis.  I am 55, but when I was 27 i had a bad accident at the roller skating rink and damaged my right knee very badly.  I've had 2 surgeries on it, but the ortho said the main problem is that my knee joints don't fit together the way they should and so I fall alot.

My last MRI was probably about a yr. ago, I don't know how many I've had, too many to count.  I even had, I think it's called an EEG, where they hook all those things to your scalp.  I even had to fall asleep during the test to see what would happen.  All the tests showed nothing significant, and yet I still have the absence seizures.  Sometimes I know when I've had one but most of the time I don't.  Sometimes my husband will tell me, because he has walked into the room and found me sitting there, maybe with my arm up because I was reaching for something, looking like a frozen statue.  Needless to say, I haven't driven since finding this out and last yr. finally gave up and surrendered my liscence.  Most of the anti-seizure drugs either didn't work or had the nasty side effect of causing me to gain weight.  So I just do without.


Gentle hugs,
 
Gamma
 
Fibro, Osteoporosis, OA, RA, DDD, IBS, Vertigo, Tinnitus, Carpel Tunnel, Epilepsy, Hypothyroidism, Familial Tremors, Spasms, Nerve damage
 
 


Hooty
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/29/2008 7:42 PM (GMT -7)   
So sorry to hear about your misfortunes Gamma. My wife is 50 and has mostly starring spells but they can be just as bad as the grand mals. I seen one or two or more where my wife couldn't talk for up to 15 minutes after a petite mal because it was so severe and after that she can be so dis-oriented and out of it for even hours and sometimes with a headache to boot on top of that. Until recently my wife's seizures were generally under control but in the last month she had at least 6 to 8 which is very high number for her with 2 or 3 Grand Mals thrown in. We figured that she built up an immunity to the Lamictal and Keppra combo she is taking so her Neuro added a little Topamax to try and keep her seizures in check.
Wishing you all a Wonderful day


Gamma
Regular Member


Date Joined Feb 2008
Total Posts : 233
   Posted 3/30/2008 9:21 AM (GMT -7)   

Hi Hooty,

Sorry to hear about your wife.  I am 55 and know how disorienting it can be.  I have read that you can have as many as 100 petit mals in a day, because some of them can be so quick, just a few seconds, so you don't even realize you've had one.  It must be awful to get them so bad that she even gets a headache, the seizures are bad enough.  I tried Topamax twice, but it didn't do me any good.  Neurontin seemed to help, but it caused me to gain so much weight that I had to stop taking it.  Withdrawal from that was just horrible.  You could be right, I do think it is possible to build up an imunity to drugs you have taken for a long period of time.  Good Luck.


Gentle hugs,
 
Gamma
 
Fibro, Osteoporosis, OA, RA, DDD, IBS, Vertigo, Tinnitus, Carpel Tunnel, Epilepsy, Hypothyroidism, Familial Tremors, Spasms, Nerve damage
 
 


Gamma
Regular Member


Date Joined Feb 2008
Total Posts : 233
   Posted 4/1/2008 8:18 AM (GMT -7)   

Thank you for the kind offer.  For the last few months to a yr. I have been saying no to my doc about all tests except for simple blood tests.  As you can imagine after a while you just get sick and tired  of being poked, prodded and stuck.  I probably wouldn't care but the docs keep sending me for tests and they keep coming back normal, normal normal.  I had several blood tests for arthritis, negative, and yet the last MRI clearly showed osteophytes(sP?) growing down my spinal column.  I also have 2 large tumors on my back and when I did some research I found that many researshers now believe they are caused by too much exposure to xrays, mri's, cat scans, bone scans and that type of thing.  I told my doc that I already know what is wrong with me and more tests aren't going to help treat it.

Thanks again


Gentle hugs,
 
Gamma
 
Fibro, Osteoporosis, OA, RA, DDD, IBS, Vertigo, Tinnitus, Carpel Tunnel, Epilepsy, Hypothyroidism, Familial Tremors, Spasms, Nerve damage
 
 


baileys mum
New Member


Date Joined Apr 2008
Total Posts : 3
   Posted 4/2/2008 11:20 AM (GMT -7)   
my 2 year old son has these the docs have also told me that it is unusually for a child his age to have em. children usually get these at about 5 but bailey started earlier. take care hun and look forward to speaking to you soon

Gamma
Regular Member


Date Joined Feb 2008
Total Posts : 233
   Posted 4/2/2008 11:28 AM (GMT -7)   

Bailey's mum,

I am so sorry to hear that your son at such a tender age is already having absence seizures.  The good news is that from everything that I have read, and that's a lot, children almost always  grow out of it.  At least you know what it is.  So many children have them and parents and teachers think the child is simply daydreaming or not paying attention.  I hope they are not too difficult for him to deal with.


Gentle hugs,
 
Gamma
 
Fibro, Osteoporosis, OA, RA, DDD, IBS, Vertigo, Tinnitus, Carpel Tunnel, Epilepsy, Hypothyroidism, Familial Tremors, Spasms, Neuropathy
 
 


scaramoche
New Member


Date Joined Apr 2008
Total Posts : 5
   Posted 4/11/2008 8:35 PM (GMT -7)   
Hi there, im new to this board, my wife found it (she has ibs, endo, and epi) and im an epileptic(marriage made in heaven). I suffer from clonic tonic, myoclonic, and petit(blankstairs). as for your case, ie the blank stairs mine are really quick, ie half a second or so, but i have hundreds a day so i dont even notice them, but when im at neuro, i light up like a xmas tree. for years they thought i just stuttered or was thinking, and i didnt really no anybetter. but when i get into a mode for having a clonic tonic, my petit and myloconic go into overdrive. I feel for you and completely understand. I make light of my condition, and me and my license are on an on/off again releationship but we have to learn to change life styles, find triggers and smile when we cant :) good luck and my prayers are with you
 
Reason for edit:
 
Please see rule #3 (http://www.healingwell.com/community/default.aspx?f=46&m=106997) We dont allow people to flame (post insulting comments) about other people regardless of whether they are members or not. Darren

Post Edited By Moderator (djdaz_1985) : 4/12/2008 4:36:04 AM (GMT-6)

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 1:42 AM (GMT -7)
There are a total of 2,733,979 posts in 301,164 threads.
View Active Threads


Who's Online
This forum has 151298 registered members. Please welcome our newest member, FrankByMonster.
202 Guest(s), 2 Registered Member(s) are currently online.  Details
bluelyme, maldugs


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer