New member - 26 year old guy dealing with seizures for 14 years now...

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New Member

Date Joined Mar 2008
Total Posts : 14
   Posted 3/21/2008 10:21 PM (GMT -6)   
So, I have had to deal with seizures for 14 years now. My sister who is 4 years younger then me and about to graduate college just had a friend who got diagnosed with seizures 2 weeks ago. So, I have decided to come back and share my experiences from the person with the seizures when I was a kid to others that need it.

Quick summary of knowledge:
I started having seizures at the age of 12 (6th grade). So, I know how it feels to be the kid in school and feel "different". I know how it feels to go to college with this kind of condition. I know how to live a life without the parents as I have had my first job and first apartment for 1.5 yrs now.

Drugs: I have been on Depakote, Neurontin, Tegretal, Lamictal (currently on this), Keppra (just started this a month ago).

Current state of my epilepsy: I thought that it had been pretty much taken care of, but just 2 months ago I had my first seizure in over 2 years while I was driving my car. The car is pretty much totaled (although I got very lucky and did not hit any other cars and actually just ended up running into a bush over 8 ft tall, so i ramped the bush and the front wheel drive car was suspended in the air at like a 30 degree angle) and I have had 2 other seizures since then (more then like the last 2-3 years). Now, I never had the consistent seizures, it just seemed to be a once in the while thing when I missed medication or when I was really short on sleep. When I started having seizures it was maybe 3-4 a month (grand mal), so I did not have a lot of them right in a row or something like that.

I just want to offer any knowledge that I have to anyone who asks for it. Everyone from parents, to the person having the seizures, to the friends of the person having the seizures, or even if anyone is just curious.

Veteran Member

Date Joined Jan 2006
Total Posts : 2408
   Posted 3/23/2008 8:26 AM (GMT -6)   

Hi there and Welcome to Healingwell!

Its great to hear from people who have been long term sufferers and who are prepared to share their knowledge with those who are confused and have questions. We have many people come to HealingWell who are parents or sufferers themselves who do not understand Epilepsy as a disorder. It would be great if you were going to hang around and help out.

All the Best


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