I've had clusters of myoclonic seizures twice this week. I think it is probably from the stress of being sick for about seven weeks. Most of you don't know that, but Darren does.
I finally found out what was going on. I have fibromyalgia. So, that has been the cause of my severe pain and my fatigue. I actually diagnosed myself! I think the experience of being on this board has helped. My PCP did some labs and sent me for at CT of the abdomen which showed a hiatal hernia and I guess he thought I would be happy just having a diagnosis. I don't want it repaired; I would just tear it open before it healed like I did the last time by getting bronchitis.
I told his nurse to please tell him that I thought I had fibromyalgia and I would like to be referred out. He told her that was rather hard to diagnose, but this Dr. Bother took an interest in it. I took a print out of all the pressure points circled for my first visit this week with Dr. Botner. I could not believe how many more he found when he did the exam. No wonder I've been in such pain.
He did some blood work to make sure I can tolerate Lyrica and I go back on Wednesday for training on taking Lyrica. He says it will make me very sleepy as we build up the dosage. I told him I was familiar with that from my seizure medications.
I guess my seizures are from knowing that I have another chronic disease and also knowing that I'm going to be down for some time while my system gets used to the Lyrica.
Thanks for listening and please say a prayer that I don't have any more seizures.
Hugs to all!