Hi there and Welcome to HealingWell,
I am really sorry that you are having a hard time with this at the moment. Brain surgery always carries a certain level of risk in that behavioural changes can occur and the doctors should have warned you about that. Not doing so is, at best, unethical. Please try not to worry about this too much though as the changes can be (and more often than not) are only temporary... although the length of time can vary to person to person. There is not much you can do to help your brain heal any quicker but having a good balanced diet and drinking plenty of water will help your brain get all the nutrients it needs to heal. If the behavioural side has not changed in the next 5-9 weeks I would suggest seeing a neurologist to have him explain what is happening and why.
Please continue to talk to us and we will continue to help you in any way we can
Im from the UK so I cant help much with the poodle problem. As for the personality change... it maybe just a temporary thing in which case there is nothing that you can do about it other than wait. It is an unfortunate occupational hazard of brain surgery since the brain is so complex. Personally I would wait a couple of months to see how things pan out (unless you start to get serious problems) but if you wanted to put your mind at rest, a neurologist is your best bet. Family doctors are unlikely to be able to help you as much as a neuro.
So many people tell me that! Im not a doctor, I just believed that when I was forst diagnosed that knowledge was the way to cope. Im also a psychology student so I study the brain, my mum is epileptic and I have moderated here for about a year now so I am always learning. I guess because I am a student, I just absorb info!
YOur email will show on your profile only, and there will be a link to it (The envelope icon on posts). The main reason for not putting it in posts is to stop malicious software picking it up. (And most spammers cant be bothered looking manually!)
Im glad that you are starting to make progress after your surgery... Hopefully you can keep making these "firsts" and start to grt back towards something of a normal life. Remember to take it slowly though... dont try to run before you can walk!
Thanks for the update
Be kind to yourself. You have been thru a lot. You won't believe how fast time will go and you will look back and feel so proud of your accomplishments! I will be 8 months postop in a couple of days and that amazes me. Take each day as it comes, even if it is two steps forward and one step back. It's good to hear from you and stay well.
I have just now read your thread. Do you realize how amazing you are? You need to go back and see how much you have accomplished in less than a month. You are so lucky to have several supporters who have already gone through this surgery.
They have been an awesome support team for you and I'm sure they will continue to be. That's how it works on HealingWell.
With love and prayers,
Yes, I had terrible migraines, the bad part for me is I still have bad migraines. I have 2-3 a week which makes it impossilbe to work. I have an appt Aug 5th to see my neurologist to see what med we can try now . I've just dealt with it for so long, it's just part of my life. I do hope you and your doctor will be able to get your migraines undercontrol, so they don't control your life.
I just got back from my neuro surgeons office, I've also had back surgery, it's been a uphill battle for me. The doc gave me another steroid injection, and I start pool therphy next week. nothing really helps back pain either, but I'll get through it. My Faith is in God, and He gives me strength everyday for whatever may come my way. Without Him I would never be able to endure all this.
Maybe we can chat online sometime?
I would like to know how you are progressing. Your story has been very helpfull to me. My 4 year old son just had a temporal lobectomy 2 weeks ago. He had a grade 2 tumor as well as abnormal tissue which caused his complex partial seizures. His seizures became uncontrollable with his meds due to the tumor. After he went throught the 72 hour video EEG and neuropsyc testing they found that the seizures started to cause complications with his speech, memory, word finding abilities, and word comprehension. They determined the best course of action would be to do the temporal lobectomy and it needed to be done quickly. The surgery went well. He was is alot of pain afterwards but seemed to recovery pretty quickly. He is very emotional at times and cries alot it seems. From your experience and others that I have read about I guess that is to be expected. We have been concerned about the swelling and what should be normal. It doesn't seem like it has gone down at all since we left the hospital. His follow up isn't until the 15th and the hospital is 2 1/2 hours from where we live so I call the nurse about every other day to ask more questions but it would be good to hear from someone who has been through it. They have told me it is possible that some of the CSF will leak into the tissue causing some of the swelling but not to be concerned unless there is leaking from the incision. How long was it before you were able to see some improvement with the swelling? He complains quite often of headaches and we are giving him motrin and tylenol regularly. He is really active and I think he is over doing it and not resting enough. Do you have any suggestions? How was it for you as far as getting around. What can I do for him that I am not that will help with the pain/swelling? I hope you are continuing to improve and doing well. Thank you for any suggestions and information