Hi everyone. I'm new to the site and new to my diagnosis of Temporal Lobe Seizures. From what I've read, I get a sense that they're not quite what other people experience. If there's anyone out there who has the same symptoms I have, please do come forward.
For a few months I bit my tongue in my sleep.
Now that's stopped and I'm having head twitching. All day every day, my head twitches...it reminds me of seeing people in movies with Tourette's syndrome. Nobody else can see it, unless I'm wearing long earrings then they can see them swaying.
I had an MRI and it's clear. I had an EEG and my neurologist says I'm having seizures in my temporal lobes, more on the left side, but they're happening on both sides. He says I have brain damage from head trauma. The only time I had any head trauma that I can think of was a car accident when I was 15.
So, he started me on Dilantin on Wednesday. Today is Sunday and they seem no better.
So, for those of you who have these types of seizures, does anyone out there experience them in this way (I remember having them, every 5 seconds or so, all day every day, just twitching...)?
Also, how long does it take for Dilantin to begin working typically? And if anyone has had the same symptoms, are you also on Dilantin and is it working for you? I guess what I'm wondering too is, do you all think I've been diagnosed correctly?