Well, I have not been here for a while; and it was because my sister was ill. She developed seizures with in the last few months and they were severe. Repeated incidences of grandmals in a day. She would go into the hospital they would stabilize, and release her. On and on it went. We frequented ER's followed by many hospital stays. We would have hope and then she would get over whelmed with seizures and we would fear for her. She was taken by ambulance at times, and even with medication changes it really never was to the point of the seizures being under control.
Then on June 8 the worst happened, she succumb to her illness and passed away. I am here to ask if anyone knows how to go on when youv'e lost a sister to the same illness you have. I feel I should have told her more, some how prevented it. I feel lost. Would like to hear your input.
Post Edited (crozier) : 6/26/2008 6:36:48 PM (GMT-6)
I really am so sorry that you have lost your sister. It must be a really hard tome for you at the moment and I cannot begin to imagine how hard that must be. Please dont blame yourself. It sounds like you did all the right things by taking her to hospital... if there were anything that could have been done, the doctors would have done it im sure. I have always believed that everything happens for a reason and the passing of your sister is no exception. Remember we are all here for you.
Hello, I am Kitt. Please accept my sincere sympathy at the death of your sister.
There are very few things in life that are harder to face than the sudden death of someone you love. The loss of their life can make you feel like you have an enormous hole inside yourself.
You did all you could for your sister so please do not blame yourself for her death. In about seven out of ten people with epilepsy, no cause can be found. You were a wondeful sister and over the past months it sounds to me like your sister had the best care possible.
Now is the time to take care of you, grieve for your sister in your own way and please know we are here and we care. My prayers for you and gentle hugs.
Kitt, Moderator: Anxiety, Panic & Depression *~*
I am so sorry for your loss. There is nothing like the bond between sisters. Please know that there was nothing you could have done to prevent this. I am sure she knew of your love for her. Please know you are in my thoughts and prayers. Please take good care of yourself.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
Thank you to everyone for your kind words and loving thoughts. My sister was 2 months past her 30th birthday. She was diagnosised with epilepsy shortly before her death. Previous to that they were searching for the origin of her illness. She had other issues which are very difficult for me to discuss right now. But a seizure took her life.
Frogpond--I'm so sorry about you boyfriend. I hope he calls you to ease your mind about where he is.
Always Rosie--I remember you from Lupus board. I started coming here after my seizure diagnosis. Thank you for the kind words and thoughts.
And to everyone--Losing a loved one is so difficult; a pain that I never Truely understood until now. I have lost people in my life but this is gut wrenching. The poem was beautiful and everyone's words have been so kind. My life has a void that seems endless and my mind is full of fear it is the worst feeling. It's like a never ending fall from a cliff.
Post Edited (crozier) : 6/27/2008 5:23:11 PM (GMT-6)
I am so very sorry for your loss. I can appreciate thet this must be a very bleak time for you. It can make you feel quite helpless when the death of a loved one occurs. I can see why you feel like you are falling off a never ending cliff. Please be gentle with yourself and take baby steps towards recovering from grief. I really believe that grief is a healing process. It's just a really horrible one!
I hope that you find some peace, don't allow yourself to feel guilt. I'm sure you did everything you needed to. "what if's" are sould destroying, so don't even go there.
I wish you all the best (((((hugs))))) things will get better.
Its been a few days since you checked in and I wanted to make sure you were doing OK. Please email me if you want to talk privately. I have a healingwell account (Check my profile or click the envelope icon) which I check most days
I read your post and just wanted to let you know that you are deep in thoughts and prayers. I am sure that your sister knew how deeply you loved and cared for her.
Again, I just wanted to let you know how sorry I am for your loss.