help for my brother

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 9/9/2008 8:12 PM (GMT -7)   
Hi.  My name is Becky, and I usually hang out in the Crohn's forum.  (Diagnosed last summer.)  But my brother is having problems, and I hope you can help us.
 
When he was in high school, my brother had a series of attacks.  He'd have terrible abdominal pain and projectile vomiting.  He would shake some, but it was assumed that it was caused by the pain and vomiting.  It stopped as suddenly as it started, and no cause was ever found.
 
Last fall, 12 or 13 years after the last attack, it happened again.  This time, in addition to the stomach problems, he had a couple of episodes of uncontrolable shaking.  He was aware, but he was unable to control his body movements or communicate.  It happened at work, and one of his co-workers called an ambulance.  He spent the night in the hospital, but no diagnosis was made, and he chose not to follow up.
 
Monday a week ago, it happened again.  This time the nausea was relatively mild, but the seizures, or tremors (the doctors have called it both) have been bad.  Some are fairly minor, but some have been very violent.  They had to strap him down and pad the bed rails to stop him from hurting himself or falling out of bed.  They put him on Ativan, Depakote, and Keppra.  The Ativan had him doped to the gills, but it didn't stop the seizures.  The seizures stopped Friday afternoon, and didn't have another all weekend, until Monday morning.  He's still in the hospital, but the doctor says that the insurance company wants him out.  He's still having 3-4 a day, and they can't figure out what's causing it.  He's having double vision which comes and goes, but seems to be worse after the seizures, so they think it might have something to do with the visual cortex.  He's got little to no memory of last Tuesday through Friday, and when asked today he said it was Sept 2.  When he tried to read a menu over the weekend he had trouble, not just with seeing it, but identifying the words, and had to sound some of them out.  The EEG and MRI were both normal.  They're talking about doing a video EEG, but they aren't sure when the equipment will be available.  He's very unsteady on his feet, and he's having trouble with fine motor control, so feeding himself is difficult, too.  They're talking about transfering him to a rehab center if he has to leave the hospital.
 
Does any of this make sense or sound familiar to anyone?  I know that diagnosing chronic conditions can be difficult, but the doctor seems to think that since the basic tests didn't find anything, the best thing to do is dope him up and ship him home.  They had someone come in and do a psych eval, but that didn't show anything, either. 
 
Can anyone tell me how long it might take for the Depakote and Keppra to take effect?  I know that some meds take a while to make a difference.  The blood tests supposedly show he's at therapeutic levels, but he's still having 3-4 seizures a day.
 
Any suggestions, information, or advice are appreciated.  Thanks.

angiomawife
New Member


Date Joined Sep 2008
Total Posts : 4
   Posted 9/10/2008 10:15 PM (GMT -7)   
My husband is currently taking depoke and keppra they say it takes a week. My husband found out he had sezures when he was 9 yrs old nothing to bad until now. He sezure has changed completely. That's why they changed the medicine. My husband is now dizzy, off balance, and mood swings that he didn't have before taking the depoke or keppra. The only good advice I can give is find your family memeber a good doc. My husband is now after 3 months of emergency room visits is being sent to UK to have an eeg monitoring done. The doctor in UK says that a regular eeg and mri can't pick up what this can. All I know is he will be hospitalized for up to 5 days and put on monitors that will read brain activity in sezure area of the brain. Also, I forgot to tell you what my husband's condition is he has angiomas on his brain. Hope, this info can help a little!

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 9/12/2008 3:46 AM (GMT -7)   
HI there,

Have you had any diagnosic tests? MRI and/or EEG are usually the most common ones. My gut says this isnt epilepsy (Although I am not a health professional) but it is definatly something that needs sorting out.

Let us know how things go

Darren
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
"A gold medal is a wonderful thing. But if your not enough without it, you will never be enough with it." - Irvine Blitzer (John Candy) in Cool Runnings
 
Moderator - Epilepsy Forum
Co-Moderator - Depression Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 9/12/2008 1:39 PM (GMT -7)   
He's home now.  They did an EEG and MRI, and he spent about 48 hrs in a video EEG.  They all showed nothing.  I'm glad to report that he hasn't had another seizure since Wednesday morning, but I wish he'd had one while in the video EEG.  The technicians got excited Wednesday night when they saw a blip, but it turns out he was just reacting to dinner being delivered.  Still don't have any idea what's wrong. 

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 9/12/2008 2:39 PM (GMT -7)   
It seems strange that they did an MRI, EEG & vEEG and there was NOTHING. As I said before, my gut says this is not a seizure disorder but im not a health professional. Have you seen a gastrologist? (I think thats what you call them anyway... specialists within the digestive tract.) Might be worth a go since there seems to be gastric problems every time.
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
"A gold medal is a wonderful thing. But if your not enough without it, you will never be enough with it." - Irvine Blitzer (John Candy) in Cool Runnings
 
Moderator - Epilepsy Forum
Co-Moderator - Depression Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 9/12/2008 3:01 PM (GMT -7)   
He went through the GI tests 12 years ago, and there was nothing wrong then.  At that point the GI symptoms were much more serious.  This time he had some nausea and that's it.  They also ran a psyc eval, thinking it might be conversion disorder, but they found nothing there, either.  Basically, no one has any idea why he's had constant seizures, some of them very violent, for over a week.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 8:36 AM (GMT -7)
There are a total of 2,735,338 posts in 301,296 threads.
View Active Threads


Who's Online
This forum has 151398 registered members. Please welcome our newest member, igiveup.
316 Guest(s), 9 Registered Member(s) are currently online.  Details
tickcheckguy, Scaredy Cat, grandpaof4, Derwood, jabele, Denikeef, Fairwind, Cajun Jeff, k07


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer