Non-epileptic seizures and epilepsy

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problemed child
New Member


Date Joined Oct 2008
Total Posts : 1
   Posted 10/10/2008 11:30 PM (GMT -7)   
Hey i was 15 when i first started having seizures.
Im now 16. For a year thay thought i was having psuedo seizures because the test came back negative, i had an EEG and MRI and thay were all normal. They told me to go to a counsler. This didnt help.
a few months ago I had a 1 hour long seizure and i was rushed to hospital. The doctors had to put me into an induced coma and had to place a chube down my wind pipe to help me breath. The doctors told me i was having psuedo seizures and epileptic seizures.
The doctors didnt see this because they only saw a non epileptic seizure and because my history with depression as soon as i went to another hospital that didnt treat me for depression they noticed that i was not having psuedo seizures.
Please If you think that you are having epileptic seizures and not psuedo seizures contact a nerologist.
thanks Binky
 
P.S. sorry for the spelling
 

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 10/11/2008 5:51 AM (GMT -7)   
Hi there and Welcome to Healingwell,

I think that is very good advice. If you had a stomach ulcer, you wouldnt see a gynocologist so it makes sense for epileptics to see a neurologist. Sometimes EEG's and MRI's dont pick things up that they should but that is in a small number of cases.

I think the bottom line is: If you want advice, see an expert!

Darren
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
"A gold medal is a wonderful thing. But if your not enough without it, you will never be enough with it." - Irvine Blitzer (John Candy) in Cool Runnings
 
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mom71
New Member


Date Joined Jan 2012
Total Posts : 2
   Posted 1/31/2012 12:21 PM (GMT -7)   
HI. I am a 40 year old married woman with 6 children. about a year ago I started experiencing having seizures and blackouts. When I was hospitalized all the neurological test were performed along with cardiac. They tested my glucose levels and everything come back normal. Thats when the neurologists said that I did not have epilepsy that I was in fact having pseudoseizures. Of course being a nurse I recognized pseudo as being false, and in return became very defensive. I don't look down on people with mental issues but it like most of you that responded, felt and was mislead to think that I was faking it. I have been to a psychiatrist and she told me that if these seizures go untreated you can have death threatening outcomes. You can go into cardiac or respiratory arrest. I was told and my family was told to get me to the ER if lasted over 5 minutes or if there was a injury. Well I can have a cluster of seizures lasting for hours and feel like I was just beaten by a baseball bat. When my family would call 911 or take me into the ER the doctors and nurses treated me very poorly and told my family to ignore the seizures that the more I get attention the longer they would last. Then I started getting poor "bedside manner" not only from the hospitals but from the EMT's. The last time I went with the EMT's, which my family told me because I don't remember, the man told me to just stop and made me walk to the ambulance. We have 3 hospitals here and all of them have put me and most of all my family through hell and embarrassment. We have called and put in a complaint to all the facilities involved. But my family and I feel helpless, I hate putting my loved ones through this and I most definitely am not doing any of this intentionally. So I understand what you all are saying and wish all of you the best. Last but not least I am totally ashamed of once being a part of the medical field and can't believe the treatment people are getting just because the doctors don't have a clue.

Shawnna
New Member


Date Joined Feb 2012
Total Posts : 11
   Posted 2/2/2012 1:26 AM (GMT -7)   
@Mom71

I'm so sorry you have suffered not only your seizure condition but also at the hands of the medical system that is suppose to help.

It is an unfortunate reality that when a condition is not well-understood - like Epilepsy - some individuals in the medical community allow their own ignorance to interfere with the care they should be providing.

I do hope you find a neurologist who can give you the attention and care you need.

I also hope you continue to look for answers on your own as well.

mom71
New Member


Date Joined Jan 2012
Total Posts : 2
   Posted 2/2/2012 11:15 AM (GMT -7)   
Thank you for your reply, It is a very horrible thing to go through. But when I found this web site and seen that I wasn't alone made a big difference. And as well as you wished me the best care as I wish everyone else here.

jolly36
New Member


Date Joined Apr 2013
Total Posts : 1
   Posted 4/9/2013 2:58 PM (GMT -7)   
I have been diagnosed with a seizure disorder four yrs ago. I disagree with the Dr. I believe it's pseudo seizures. I have no family history of it only migraines. It only started after I came out the hospital after a hysterectomy and bowel obstruction all within a week apart I found out my husband divorced me at the same time. Since then life as been hard for me and my kids financially I have been on topomax,diltain, and now tegretol by I hardly take. I only have the seizures when I have headache sometimes but not often as before. My doctor refuses to believe me. I am alert, never loss consciousness, never lose control of my bladder only slurred speech and a little tired after. My web and cat scan were fine.
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