Hi J's Mum,
Hi Darren, Thank you for your response. My son is 15. The doctors aren't sure as to why his salt levels were high. They have just blood and urine tested him again and we are waiting for the results. Doctors indicated that those 'power drinks' can increase salt levels but my son assures us that he hasn't had one for quite a few weeks, so I am totally at a loss.
To answer your question, I was 21 (1979) when I had my first seizure. Didn't lose my drivers licence though. Next seizure wasn't 'til 2002. Lost my DL then. Now I constantly have petit mal seizures weekly. Doctors tell me that if I wasn't on meds, that would be a major grand mal seizure.
That prooves to me that the meds are working.
Question: Would you rather control your seizures with meds and put up with some side effects or take no meds and feel O-Kay but RISK a seizure and possible serious injury.
Hi J's Mum, If your son has had grand mal seizures in the past he most likely will have them again. My son had his first seizure at 19. Nothing was done. In 2 months he had another grand mal and was put on dilantin. He was good for about 12 yrs although had a few seizures due to having a fever which metabolizes the meds faster and then they are not protecting you. 3 yrs ago my son's seizures went out of control. He was put on Zonegran and even at the hightest dose 700 mg he was having many grand mal seizures and absence seizures. He unfortunaltely had a seizure while driving. Luckily he was not hurt and no one else was involved. I found a new neurologist who did an EEG and found he was having multiple seizures during the EEG. He was immediately put on 3 meds - Kept on Zonegran, put on Keppra and Lamictal. He had to take a 3 month leave of absence from work to get used to the meds as they made him very tired and irritable. The meds have worked unbelievably well. He has not had a seizure since and all EEGs have been clean. During one early EEG at the beginning of all this he had a seizure during the EEG and they found that the seizures originate in his right front brain. Can't be operated on so his choice is to take all these meds for ever and see if he can lead a seizure free life. He had to stop driving for a whole year and that was hard but he is driving again and working. If you need more info than you get from your neurologist you should contact the Epilepsy Foundation. Just go on the internet and type in those words and you will find all kinds of info. I don't know where you live but my state has all kinds of epilepsy groups for help. If your son is going to drive then he is going to need to stay on meds. Our state does not have laws about taking away a license. It is up to the neurologist to decide how long you have to stop driving after a seizure. Most will say 1 yr., some 6 mos. It depends. But do go on the internet and you will find tons of info that should help you. I wish both of you the best in working this out. Please keep postng so we know how your son is doing.
I'm glad your son's life got back on track. You have both been through a lot from the sounds of it. Your response made me realise that even if things get bad, that they certainly don't have to stay that way and I thank you for that. I hope things continue to improve for your son. Kids, doesn't matter how old they are, we never stop worrying do we?
Please send me an e-mail with your e-mail addy and I can send you a personal message on some ideas that I have that may help answer some of your questions and/or concerns to help your son addapt.
It's really not that bad.
My e-mail is firstname.lastname@example.org