Brain Tumor surgery - help! info needed

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PhilB
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Date Joined Feb 2008
Total Posts : 4
   Posted 12/18/2008 7:00 PM (GMT -7)   
Today my 4 yearold grandson underwent surgery to remove a benign (but growing) tumor that had caused him to have epilepsy to a debilitating degree (a dozen or more seizures a day, at times).
 
The surgery lasted 7 hours and it has been a very difficult day waiting for news and worrying. Most upsetting of all has been the story of his comment immediately before going into the operating theatre. "Daddy, is it time for my operation, now?" "Daddy, I dont want it, I am scared"
 
Thankfully he is recovering now in the intensive care unit, after apparently successful removal of the tumor. However, he cannot feel or move his right arm. He is pumped full of morphine and other drugs and perhaps I should wait and see if the sensation returns, but has anyone out there got experience of something similar, and did the sensation return or not?  It has been a long day and I would appreciate your help -

jujub
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Date Joined Mar 2003
Total Posts : 10391
   Posted 12/19/2008 8:25 AM (GMT -7)   
His brain is swollen from the surgery now, and it's likely the loss of sensation is due to that. There is a small chance it could be from disruption in the connections within the brain that govern it. Even if that's the case, brains of 4 year-olds are remarkably resilient, and usually regain much more of any lost function than those of adults. So the odds are in his favor.
Judy
 
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Dannipinkprincess
Regular Member


Date Joined Apr 2008
Total Posts : 23
   Posted 12/22/2008 1:24 PM (GMT -7)   
one of my friends a similar operation and she has made a full recovery now.
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djdaz_1985
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Date Joined Jan 2006
Total Posts : 2408
   Posted 12/27/2008 2:07 AM (GMT -7)   
I think Judy has hit the nail on the head really. Brain surgery normally causes some kind of temporary side effect (which varies depending on location) but the brain usually recovers (Especially in young children)

How are things at the moment?

Darren
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PhilB
New Member


Date Joined Feb 2008
Total Posts : 4
   Posted 1/1/2009 9:19 PM (GMT -7)   
It is now a couple of weeks since the surgery and Young Grandson is recovering well. His right arm is restricted in its movement, but he can lift the arm to head height and can also wiggle his fingers. These are all positive signs and are something for the physiotherapist to build on.

Thank you for your support.

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10391
   Posted 1/1/2009 9:30 PM (GMT -7)   
That's great to hear! You can look for him to continue improving as time goes by.

Praying for his complete recovery.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

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