Double Cortex Syndrome

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giuliano
New Member


Date Joined Feb 2009
Total Posts : 1
   Posted 2/24/2009 6:58 AM (GMT -7)   
Hello everyone,
i'm Giuliano from Italy.
My little daughter Margherita (she is 5 months) has "Double Cortex Syndrome" who cause her frequently seazures and will bring her heavy mental/physical retardation.
Doct are following her at hospital of Florence (Italy).
 
They have proove to cure her first at all with SABRIL but we have no good effects.
Now they are prooving with DEPAKIN and they will go on with ACTH.
 
I have read that this is a rare desease... Can anyone tell me something more? Could u tell me your story?
As anyone any son/daughter like mine?
 
I'm desperate...i'm looking for answer all around the world.
 
If anyone know something...help me please.
 
Thank u all
 
Ciao
 
Giuliano

spinney eel
New Member


Date Joined Jul 2013
Total Posts : 1
   Posted 7/11/2013 8:44 PM (GMT -7)   
hi there my daughter was diagnosed with band heterotopia (double cortex) at the age of three and a half, she is now 19yrs you can contact me on tanyaadams111@gmail.com.au I look forward to a chat wink
 
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