Double Cortex Syndrome

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New Member

Date Joined Feb 2009
Total Posts : 1
   Posted 2/24/2009 8:58 AM (GMT -6)   
Hello everyone,
i'm Giuliano from Italy.
My little daughter Margherita (she is 5 months) has "Double Cortex Syndrome" who cause her frequently seazures and will bring her heavy mental/physical retardation.
Doct are following her at hospital of Florence (Italy).
They have proove to cure her first at all with SABRIL but we have no good effects.
Now they are prooving with DEPAKIN and they will go on with ACTH.
I have read that this is a rare desease... Can anyone tell me something more? Could u tell me your story?
As anyone any son/daughter like mine?
I'm desperate...i'm looking for answer all around the world.
If anyone know me please.
Thank u all

spinney eel
New Member

Date Joined Jul 2013
Total Posts : 1
   Posted 7/11/2013 10:44 PM (GMT -6)   
hi there my daughter was diagnosed with band heterotopia (double cortex) at the age of three and a half, she is now 19yrs you can contact me on I look forward to a chat wink
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