night after night

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trishy
Regular Member


Date Joined Sep 2008
Total Posts : 20
   Posted 3/27/2009 12:18 PM (GMT -7)   
When I was a child my mom said I would wake up with a gasp and then go back to sleep. All through my adult years I have have what my husband calls "jumping up spells". Well I am 50 now and these "episodes" have gotten very strange. I fall asleep only to jump up and I grab covers or the side of the bed or couch (been sleeping on the couch for weeks now because I sometimes fall out of bed and hurt myself). Then my husband says everything gets stiff and I have an angry grimace on my face. It's like my body stiffens so I can stop this "episode" from happening but it happens anyway. I have no control over this. I fall back to sleep and it can happen again within minutes or even seconds. This can go on all night. My husband says that at first he sees a scared look on my face, then the stiffening and then the grimace on my face. I am aware of this happening to my body but cannot stop it. Does this sound like seizures? I have an appointment with a neuro in a few weeks.

Aurora60
Veteran Member


Date Joined Jul 2006
Total Posts : 1249
   Posted 4/7/2009 7:30 PM (GMT -7)   

I just read your post and what you describe does sound like some type of seizure.  Stiffening of your muscles and body are typical of a seizure.  It is good that you are going to a neurologist. You should have the neurologist give you various tests and you should have an EEG, one that is an asleep and awake EEG. Also, if the neurologist specializes in epilepsy it would be much better.  Some neurologists specialize in other conditions and don't know that much about epilepsy.  If you live near a teaching hospital you are much more likely to find an epilepsy specialist.  Good luck and post how you are doing.  I am sorry it took so long to answer you, I just now found your post.  I have posted twice recently and no one has given my any answers.  I posted because I  have a son with epilespy and I wanted answers to some pretty simple questions.  I usually post on another forum where I get a lot of replies.  It's almost as if no one on here  cares about helping someone out. Makes me wonder why there is this forum if you can't get any help.

Aurora


trishy
Regular Member


Date Joined Sep 2008
Total Posts : 20
   Posted 4/8/2009 5:23 AM (GMT -7)   
Thank you so much for writing. I went to the new neuro yesterday and what a difference. Unlike the other one, he gave was very thorough and spent time asking questions and gave me a thorough exam. I have to get an eeg, mri with dye(very scared of that) and a 24 hour at home eeg. He said it sounds like simple partials but could be anxiety related. I also have rls and head, finger essential tremor. I'm just worried that simple partials don't show up on eeg's. That's what I've read. I hope someone reads this and writes whether there simple partials showed up on tests. It's so frustrating. I slept better last night and only had one event. I remember waking up and my arm was stiffening or something and I turned my head to my arm and shook for a few seconds. I wish my husband would wake up to see if this is what happened but no such luck. In the daytime I sometimes get an odd feeling in my stomach, my heart then starts to beat harder and I get very spacy, clumsy and can't even walk a straight line when this happens. I just want to go in another room and sit quietly, stare and wait for it to pass. I don't know if this is just an aura because nothing happens after that. don't know if this would show up on eeg's either. I don't want to take meds that I do not need so I'm hoping something shows up for sure. And if all the tests are normal can I be positive that these are not some type of seizures? I'm so sorry to hear about your son going through this. I hope someone will answer your post. Thank you again.

Aurora60
Veteran Member


Date Joined Jul 2006
Total Posts : 1249
   Posted 4/8/2009 8:05 AM (GMT -7)   

Hi Trishy, I am so glad you are going to a good neurologist and having the tests.  Please don't be afraid of the tests.  They are not painful.  I don't know much about an MRI with dye but I have had heart tests with dye injectected and the only feeling I had was one of warmth in my body.  My son has had partial and absence seizures as well as grand mal seizures.  The absence seizures did show up on the EEGs and I believe the partials did too as one of his meds is for partials.  He does take 3 different meds but they do control his seizures and that is good and important for him as he feels he can lead a more normal life.  I also think you may have an anxiety issue here.  What is happening to you is scary and you don't have an actual medical diagnosis yet.  So I would tell the dr. that you are wondering if some of the problems are caused by anxiety.  I think you are in good hands and please do post and let me know what is happening with you.  I know how worried you can be with this disorder.  My son strarted having seizures at age 19 and he is now 35 so we have learned to deal with the problems over the years.  The most important thing you can do for yourself is to get plenty of rest.  You need at least 8 hrs a night. And also, stay away from caffeine.  Hope to hear from you and I will reply to any of your posts. Take care of yourself.

Hugs,

Aurora


trishy
Regular Member


Date Joined Sep 2008
Total Posts : 20
   Posted 4/8/2009 10:08 AM (GMT -7)   
Thank you Aurora. I'm also going through perimenopause. Will turn 51 next month. After seeing this doctor I finally slept pretty good last night. I just had one event that I can barely remember and went right back to sleep. I woke up fast and my arm started to clench and my head turned and I started shaking. I just want to know for sure if I'm dealing with anxiety or seizures. I don't want to be on any meds that I do not need with all the other side effects. My son who will be 22 is also going from doctor to doctor with back pain. Finally was sent to a rheumy who said it sounds like anklyosing spondylitis . But his xray was normal so now he has to get an MRI. My daughter got married last May and moved to NJ. I live in NY on Long Island. So it's been a stressful year. Also lost my job. But at this point I can't even see myself getting up and going into work again anyway yet even if I could find a job around here. I will let you know how everything goes. My 1st appt is for the eeg end of April and then the Mri and then the 24 hr eeg. I just want all these doctor visits to end and know one way or another. Happy Holiday.
Pat

Aurora60
Veteran Member


Date Joined Jul 2006
Total Posts : 1249
   Posted 4/8/2009 5:49 PM (GMT -7)   

Hi Trishy.  I am sorry you are continuing to have these problems.  Most of what you describe does not sound like peri menopause.  I am through menopause and have never heard of anyone experiencing what you do because of menopause.  My best advice is to wait to get your tests done to determine or rule out anything going on.  In the meantime, since you are feeling such anxiety can you ask your dr. for a mild anti anxiety med to take as needed for a short duration? I am sorry to hear you lost your job.  Can you get unemployment benefits?   Were you let go or fired or downsized?  If so you should be entitled to unemployment insurance.  After all you have paid for it over the years when you had your job.  I lost my job too last year, although technically I had to leave due to the job being way too physical for me.  I have been looking for part time work but there is nothing and I have many years of experience and very good skills.  No one wants to hire anyone my age, not that I look very old, but when they see on my resume that I have more than 25 yrs office experience they can figure out that I am at least 50 or more. (definitely more!) I hope all goes well with your son. And if your daughter lives in NJ she's not too far away.  I have a son getting married in Oct. and I am very excited about it.  I have such a small family it will be nice to have a daughter in law. And she is lovely.  I also have another son as I mentioned, the one with epilepsy.  Wish he didn't have it, it would make such a difference in my life.  Well, don't want to be writing a short story here so do let me know how your tests go and anything I can do to help support you.  Wishing you a happy holiday too.

Hugs,

Aurora

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