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Aurora60
Veteran Member


Date Joined Jul 2006
Total Posts : 1249
   Posted 4/6/2009 12:54 PM (GMT -7)   
I am not getting any replies to my post about my son's meds and if any of you take the generics of these meds.  They are lamictal, keppra and zonegran.  I am sure there are members on this forum who have taken the generic form of these meds.  I really need help with this.  The reason we post is to get help with problems so please someone give me some answers to this question on meds.  Even if you only take one of these and know how the generic works I would like to know.  Thank you.
 
Aurora

McGoo
New Member


Date Joined Mar 2009
Total Posts : 12
   Posted 4/7/2009 7:49 PM (GMT -7)   
I'm sorry, I take Tegretal and gabapentin. I know that usually the generic works just as well as the brand name since it's the fillers and not the actual medication that is different. That being said, however, there are some people who do not do well on the generic forms and can only take the brand name drugs. I wish u the best in finding ur answers, sorry I couldn't help out more.

MISTYGIRL
Regular Member


Date Joined Sep 2008
Total Posts : 27
   Posted 4/10/2009 8:48 AM (GMT -7)   

 

 Aurora,

 I have taken Lamictal,Keppra and Zonegran but I took them when they had just come out so they did not have a generic yet. I take Tegretol in generic form and it works just as well and I also take Lyrica but there is no generic of that yet. I don't think that there is too much difference between the brand name and the generic form  but you just have to try it and see.

MistyGirl


Aurora60
Veteran Member


Date Joined Jul 2006
Total Posts : 1249
   Posted 4/11/2009 8:11 PM (GMT -7)   

Thanks for your reply Misty.  I have heard that the generic lamictal does not work as well, that it is not up to the standard of the brand.  I have heard people say who have had to make the switch that they have had break through seizures.  His neurologist wants him on the brands but if he loses his job he will lose his health ins and drug coverage. He is living a very normal life and drives and I want his life to stay as normal as possible.  You say you have been on the same meds.  Did you take all 3 at the same time?  My son is on 500mg lamictal, 2000 keppra and 700 zonegran so he is on some pretty heavy doses to keep control. During a past EEG he had as many as 50 absence seizures in an hour. I am just hoping and praying he keeps his job.  I appreciate your help.

Aurora


casi
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/28/2009 6:49 PM (GMT -7)   
I took all three generics but they didnt work for me. My insurance actually wasnt going to pay for my zonegran but after going on generic I was in ER 3 times in a week.
 
I will be off them soon because I had a successful surgery in aug08 and almost seizure free for 37 weeks.
 
 

JessFTW
New Member


Date Joined Apr 2009
Total Posts : 5
   Posted 4/29/2009 9:44 AM (GMT -7)   
Hi Aurora60,
 
I just wanted to give you some perspective coming from someone who works at a neurologist office in town who's doctor specializes in epilepsy. The doctor that I work for tend to want to keep meds the same, in reguards to seizure medications brand vs generic, if they are working, unless the patient wants to try generic. Why take the chance if the patient is doing well. Each patient is different as far as whether they tollerate generic or not. Generic Lamictal we really havent seen problems with patients who have wanted to switch from brand to generic. Zonegran is the same as far as not having many major problems with generic. Keppra is where we are seeing tons of problems. We have patients who have been seizure free for years, and then seize when they are switched to generic Keppra. The major problem that we have as far as keeping patients on brand Keppra is the pharmacies wanting to change because insurance wont cover brand since there are generic forms available. If this is the case, and your physicians staff is good, they will fight the insurance company to keep the patient on the medication that is best for the patient. Majority of the time, after some fighting, the insurance company will approve the brand. The pharmacies sometimes will tell you that they had no choice, but they do. And antiepileptic meds are definately not something to be messed with. With Keppra, there are over 17 different companies/generics available, so while one may work one month, you never know what you'll get the next. Another problem we are finding, is that the pharmacies aren't even calling our office to ask if they can switch the patient from brand to generic Keppra, which brings us back to the original point of patients ending up in ER. It's the patient's choice if they want brand or generic medications; make sure that you check each time you pick up a script from the pharmacy (they will try to switch monthly); and if they say generic is the only thing your insurance will pay for, make them call your physicians office to request prior auth. If your physicians office cant get the insurance to budge, there is always the option of KeppraXR, which, I believe, is now the preferred med of insurance cos (meaning that they will charge regular copay on KeppraXR, an overly inflated copay on brand Keppra). KeppraXR works fine, it's extended release, which may be good for those that are on multiple doses per day, or kids who cant remember to take their meds.
 
As far as addressing the issue of keeping on brand after job loss: there are patient assistance programs for the majority of medications, just ask your physician about getting paperwork, or who you need to contact. Keppra does, I believe Lamictal does (if not, there are discount cards), and I'm thinking Zonegran might.
 
Hope this helps!!

Aurora60
Veteran Member


Date Joined Jul 2006
Total Posts : 1249
   Posted 5/1/2009 6:02 PM (GMT -7)   

Jess, thank you so much for your reply. You have cleared up my qustions.  So far my son is on all brand meds at the request of his dr. and the pharmacy always gives him brand.  The copays are pretty high but $50 as opposed to over $700 is quite a difference.  My son's neurologist is an epilepsy specialist so I imagine he will do everything he can to keep my son on the brand meds as this is what he has been taking for over 4 yrs.  I am worrying I think too much about his job.  I have a tendency to worry too far into the future so let's hope that all remains the same and he will continue to keep working where he is.  I truly appreciate all your help and am grateful to have such a good reply that answered my questions.

Aurora

 


JessFTW
New Member


Date Joined Apr 2009
Total Posts : 5
   Posted 5/6/2009 7:20 AM (GMT -7)   
Aurora,
Not a problem, glad to help answer some of your questions. If you need anything in the future, feel free to PM me, and I'll try to help! :)

Animal Lover
New Member


Date Joined May 2009
Total Posts : 15
   Posted 5/10/2009 1:19 PM (GMT -7)   
cool  Hey Aurora,
I didn't see your original post as I am a brand new member, but I take generic Keppra (Levetiracetam) and it works great.  I pay only $10.00 at Wal*Mart after my insurance pays their part.  I wish you well!
Sue
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