I've been on diantin and pheonabarb since 1979 and now according to my neorologist, although my seizures are controlled, if I were to change meds, I would run the risk of lower brain stem damage as well as more seizures (more severe).
Currently I live in NY and it is not a mandatory reporting state. I myself have chosen not to drive for a while until my seizures are controlled. The med for E make me very sleepy, drowsy, cranky and dizzy. I have only been on them 3 weeks and the side effects are starting to level out. I have no adverse reactions to my dicyclomin or aciphex. Just can "feel it" if I don't take it. I forgot my seizure meds one night on my birthday and had a nocturnal seizure.
I believe stress is a major issue and factor with all of my illnesses. I am not sure if this site has private messaging or not, but if so, please email me and we can talk some more. Right now I am kind of a floater with work. I have always been selling on ebay. That is great because I can do it from home and get rid of alot of junk . I was scheduled to start full time school this september, but with the seizures and AED's the timing was very off, so I had to postpone until next year.
I am loving this forum so far and hope to talk to you soon.
submit reply, then at the top of the page it says member list.
From this list you can get my e-mail address as well as add yours.
Hi Randy, stress and sz's go hand in hand with me. I'm stressed cause i'm having sz's and i'm having sz's cause i'm stressed out. Unfortunately i'm raising 3 little girls so eliminating stress from my life is next to impossible. So, puppy, since Jenn is watching out for you does that mean I get to take off my boxing gloves?
Are you sure you can take IB Profin for your headache if you are already on seizure meds as well as other medsfor your ulcer problems and your reflux and/or what ever else you might be on??
You better check with your doc on that first because I was told (and experienced myself) internal bleeding or nose bleeds from most headache meds exept Tylonol. That's the only one that I can take that doesn't react to my seizure meds.
I can't take aspirin, IB Profen, Advil, Exederin or Motrin, just Tylonol.
I took 2 Advil once by mistake and had massive nose bleeds that wouldn't stop. At the time I didn't think it had anything to do with the meds then it happened again just a couple of days before I had to see my neurologist. I happened to mention this to him and he was very concerned and said that I was lucky that I didn't bleed out through my stomach.
This is more of a problem in my case because I also take meds for my ulcerative colitis.
If you are taking an anti-seizure medication, you should definately not take any cold or flu medications that contain DECONGESTANT or it can have a negative reaction.
Post Edited (RanMan) : 9/23/2004 12:05:58 PM (GMT-6)
I have a 3 year old daughter who was diagnosed with Crohn's disease at age 2. Now, out of the blue, she has developed a seizure disorder. Her EEG showed "generalized" seizures and now, she is having many, many petit mal seizures a day. I am not scrambling to pick between Depakote and Lamictal - or the best of two evils. Luckily, she is on no meds for her crohn's now, as her cd is being controlled by elemental formula pumped through an ng tube (she does not eat or drink, just gets the formula) I am responding to your post because I have come across a number of people with IBD and seizure disorder. My 3 year old does not have much stress in her life, so I really believe there is a connection between IBD and seizure disorders. I was dx with CD at age 16 and had a seizure disorder (not as severe as my daughters) develop as well. When I had my colon removed at age 20m the crohn's disappeared and the seizures. makes you think...
By the way, any thoughts on which med would be better for a 3 year old?
Your reply is most interesting because it is more proof that CD and EP are connected.