Does anyone have NON Epileptic seizures?

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Veteran Member

Date Joined Apr 2006
Total Posts : 932
   Posted 7/30/2009 2:18 PM (GMT -6)   
I have Non Epileptic Seizures and haven't met ANYONE with the same.
Migraines, Ovarian Cyst, repeat and multiple jaw dislocations, depression/anxiety, PTSD, and the list goes on
On Jan 17th I had a very traumatic situation ending in a colostomy. had the reversal which put me through months of hell, but better now
Meds: Celexa, Klonopin,Zanaflex, some pain meds.

May God give you a reason to smile today, an extra reason to laugh, and bring joy to your soul.

Regular Member

Date Joined Jun 2009
Total Posts : 53
   Posted 7/31/2009 9:37 AM (GMT -6)   
My daughter has had non-epileptic seizures.  She also has migraines and ovarian cyst.  She also has kidney stones (4-5 of them).  Somebody we know had seizures they couldn't explain also when she was a teen and she also had an ovarian cyst as a teen.  She stopped having the seizures once she had her first child, and I've heard of others that they stopped once they had children also.  I don't know if there is any correlation between migraines, ovarian cyst, and kidney stones (also blood sugar drops, calcium and Vitamin D has been very low along with phosphate has been high).
Just a note to let you know others are out there too, but I don't think the non-epileptic seizures are talked about as much.  Somebody we know that's a physiologist said there is so much about the nervous system that is still not known.
God bless you.

New Member

Date Joined Jul 2009
Total Posts : 2
   Posted 8/1/2009 10:23 AM (GMT -6)   
Hi, I have had a hypoglucemic or diabetic seizure which means low blood sugar. I dont have diabetes but i hadnt eaten in awhile and so my blood didnt have sugar or nutrients to feed the brain and so my body went into a seizure. It was similar to a epileptic seizure just didnt last as long.

Regular Member

Date Joined Jun 2009
Total Posts : 53
   Posted 8/4/2009 10:40 PM (GMT -6)   

Has any of the doctors tested your prolactin? My daughter has an ovarian cyst and after the obgyn did the ultrasound to look at the cyst, she did some bloodwork. I just got a call that they want her back in 2 weeks to test it again. When I pulled up info on elevated prolactin and seizures, it said that when a person has an epileptic seizure their prolactin level is high afterwards (also when your prolactin is high you have a higher chance of ovarian cysts). Hopefully, I'm stating things the way it said it when I pulled up info on the web. I hope this might help.

God bless you.



New Member

Date Joined Aug 2009
Total Posts : 1
   Posted 8/6/2009 12:25 AM (GMT -6)   
That's interesting info. I've had ovarian cysts in the past but my seizures are due to an emergency brain surgery in Feb. 1998, 9 days after our daughter was born.
I was told that I would have to be on seizure meds for the rest of my life but...I don't believe that. When I saw that LDN also works on seizures I was most encouraged.
My husband has ordered the LDN for my severe arthritis, fibromyalgia, and his depression. I'm in continual pain and it has limited me to going very slow and not being able to enjoy my life the way I used to before the surgery.
I am very encouraged by the information my husband found on the internet about LDN. Much prayer has gone into this answer and I believe there is relief in sight after 11 years of so many problems with severe pain that disables me from so much joy. I was forced to go on disability at age 40. At 51, I'm a writer, author, and the Shepherdess of Gods online ministry, "Gods Ladies & Gents In Disguise Ministries".

With so many prayer request for so many ailments, it is such a joy to me to Finally have a practical resource to share with others in so much pain, suffering from terminal illness, and their children as well suffering needlessly.

I know in my heart that this is the answer God has sent to us to share with His children that others will finally hear and do something to get the word out about the LDN. It's been around for over 20 years with little knowledge of it being told to the ones that Really need it. Once I have information I pass it on immediately.

Right now I'm seeking a doctor that will prescribe it in Missouri or Colorado so we won't have to order it from India and mix the dosage down ourselves. We have an order coming in from India and I'm very happy my husband Roger found a way to get us started on it. My goal is to help these doctors realize that we aren't trying to put them or the pharmaceutical companies out of work, we are just trying to find what Really works to save our we may Live them and not just continue to stumble around in so much pain with little hope of getting better.

My sister and I both have fibromyalgia, chronic fatigue syndrome, and severe arthritis that we were born with. We would love to enjoy our families and children with the best we have to offer them... with hope that they won't have to suffer the same fate as we have had to endure.

God is Very Good. He loves us all so much and His Word does not say we are to suffer needlessly in Any way. Jeremiah states: "I know the plans I have for you, not to harm you but to give you a Hope and a Future." I take Him at His Word...In Jesus Name Amen.

Whatever I Can do to get the word out to others and let them know about the LDN, I'm on board with...just let me know and I will do it.


Regular Member

Date Joined Jun 2009
Total Posts : 53
   Posted 8/6/2009 10:33 PM (GMT -6)   
I'm going to look into the LDN and pass it on to our pastor's wife and another lady at church who has fibromyalgia. Thanks for your info.

God bless you.


Regular Member

Date Joined May 2003
Total Posts : 81
   Posted 8/8/2009 1:42 PM (GMT -6)   
When I was nine years old, I started having seizures.  The neurologist my mother chose to take me to diagnosed them as ideopathic (of unknown origin) psychomotor seizures.  (I think they now call those partial-complex seizures).  Anyway, when I got older I asked  the neurologist something about my epilepsy.  He turned to me and said very disdainfully, "You don't have epilepsy!  You have seizures!"  I was too shocked at his response to even think to ask what the difference was.  And 40+ years later, I still don't know what the difference is. 
Interestingly, I also had an ovarian cyst when I was a teenager.  My seizures have been under control for 40 years.  I got them under control initially by taking dilantin.  Then when my seizures stopped, I foolishly stopped my medication.  I still remained seizure-free until the age of 16 when I was going through anorexia.  I went back on dilantin as well as phenobarbitol; I also was able to overcome my anorexia after only one year.  After many years on those two meds, I stopped the dilantin because of what I heard about bad side effects.  I still take phenobarbitol twice a day. 
I have been wondering lately about diet and seizures.  I was a sickly child and a sickly teen.  When I got older I suspected that I wasn't absorbing nutrients well from the food that I ate.  I started taking lots of vitamins, minerals, and herbs; and still do to this day.  I found a book that told what supplements you should take for specific ailments; I became my own nutritionist.  I read that magnesium was particularly good for people with seizures.  Anyway, any thoughts on poor absorption leading to illnesses and disorders like seizures, or as to whether or not diet and supplements can help or even prevent seizures altogether?

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