Tonic Clonic seizure sufferer, no epilepsy diagnosed, please read....

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Carguy86
New Member


Date Joined Mar 2008
Total Posts : 13
   Posted 8/15/2009 2:20 AM (GMT -7)   
First off I wanted to say I am also a Ulcerative Colitis dieaser' and enjoy this forum/board.  I have had a down or depressed feeling to me haning over my head since my parent's divorce in 2005, and after dealing with the death of my young nephew last year I finally went in to my primary care doctor for feeling down or like a cloud was over my head. I was diagnosed with Generalized Anxiety Disorder, and began taking Lexpapro, 4 weeks after I have 2 tonic clonic seizures, after that I had medications changed to Effexor XR, and about 4 weeks after that I had 2 more T.C. seizures. All my test results have came back normal, C.T. scan, MRI, EEG, although my sleep deprived EEG was a little fuzzy:
 
"This is a 20 channel digital EEG, with FT9, FT10, and 1 channel for EKG obtained according to the International 10-20 system.

ELECTROENCEPHALOGRAM FINDINGS: Drowsiness and wakefulness were obtained during this recording. During maxamil wakefulness the posterior background consisted of symmetrical, regular, reactive 10HZ alpa rhythm. No frank epileptiform discharges were note, however, intermittent, infrequent delt range slowing was noted in the left frontotemporal region. There was no evidence of seizure activity. Drowsiness was characterized bt mild background attenuation, with symmetric vertex waves.

CLINICAL INTEROERRETATION: This is an abnormal EEG due to the presence of functional versus structural abnormality in the left hemisphere, mainly the frontotemporal region. Absence of epileptiform discharges does not rule-out a seizure disorder. Clinical correlation is advised."
 
I made the mistake of not slowly starting my Lexapro at first and began taking full tablets rather then the 1/2 tablet I was supposed to take for the first two weeks, and so my 4 weeks on Lexapro were at 1 tablet each day. Also, was supposed to start the Keppra XR at 75mg, I did for a week then only had 150mg 's available to me, so the remaining time was on 150mg of Keppra XR. Just feeling like I may have caused the seizures on my own. :/
 
My neurologist said that I do not have epilepsy, or a seizure disease. I am currently on Keppra @ 500mg/twice daily, seems to keep myself seizure free. I am however not on any meds for my enxiety short of Klonopin for now. I would like to know if there are anyone else out there like this, as I am hoping this goes away in the future and am not battling this for life. Thanks for reading, comments and help greatly apprecaited!
 
-Tyler(22y.o. male w/ U.Colitis and recent seizures)

LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 8/15/2009 5:14 AM (GMT -7)   
Thought about stopping the drugs? You didn't have any seizure problems before, did you?
33 year old male
diagnosed severe pancolitis in 2004, unresponsive to all drugs
turned down recommendation to have j-pouch surgery
have been mostly symptom free since 2004 via diet modification (removed all carbs)


Carguy86
New Member


Date Joined Mar 2008
Total Posts : 13
   Posted 8/17/2009 11:01 PM (GMT -7)   
The seizure meds? They want to keep me on them for about 3 years, Keppra specifically, then do an evaluation on me and check my status  almost 2 1/2 years from now. Stuff is spending too when ya dont have insurance :/

LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 8/18/2009 5:19 AM (GMT -7)   
No, the anti-anxiety meds. Sounded like the anti-anxiety drugs and seizures were linked. Antidepressants and anti-anxiety drugs can have some pretty nasty side effects.

I hear you on the cost. The seizure meds get MUCH more expensive once you move past Keppra. My 4 year old niece has a seizure disorder where she gets ~20-100 seizures per day without meds. On meds it's about 5. One of the drugs she used to take cost $30,000/month. It was insane. Luckily insurance paid most of it (and my brother got a new job so it now pays all of it).
33 year old male
diagnosed severe pancolitis in 2004, unresponsive to all drugs
turned down recommendation to have j-pouch surgery
have been mostly symptom free since 2004 via diet modification (removed all carbs)


ebee
New Member


Date Joined Aug 2009
Total Posts : 1
   Posted 8/18/2009 10:15 AM (GMT -7)   
shakehead  I'm sad now that I have had my 10th or so non-epileptic seizures - the doctors seem to think I need to take Dilantin so as not to have a seizure again - the fact is I am extremely hypoglycemic - when I first had the glucose test it was 40 - now I need to watch and keep it above 60 or else contact the doctors again.  I don't even have insurance, but somebody at Alexian bros finally decided to take notice only because I was not in the area where I usually go to the hospital when I have one of these "sugar crashes".  The problem is I didn't have my protein shake in the a.m. and went out walking in 90 degree heat then went to work afterward and didn't drink enough water.  These people (neurologist) want to make believe that I am having an epileptic seizure when it is a sugar crash plain and simple.  Of course now I'm on a drug again which I hate, but all the better but I can't drive now and I work 7 days a week not at home - AHHHHHH!!!!!!!  For those that don't know what's wrong - have your primary care do a glucose tolerance test in a safe area - because you need to be safe until it is over and you can have some protein of some kind!!!!!!!!
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